Fulcrum Therapeutics
Fulcrum Therapeutics is a clinical-stage biopharmaceutical company focused on improving the lives of Learn more about who we are at https://www.fulcrumtx.com/
Our approach to drug discovery generates significant insights into disease biology and allows us to think creatively about the best way to modulate and balance gene expression. Our initial areas of focus are facioscapulohumeral muscular dystrophy (FSHD), sickle cell disease (SCD) and beta thalassemia. We take great pride in being purposeful patient partners who do this work, not just for patients,
07/04/2023
Wishing everyone a !
06/19/2023
In recognition of , we want to shine light on the amazing work being done to support the SCD Community including the William E. Proudford Sickle Cell Fund artSPEAKS Program to help SCD kids tell their story through creativity: https://bit.ly/42MZZ5M
06/18/2023
to all the dads out there that are either struggling with their own rare disease or have a child with a rare disease.
05/30/2023
These physicians may - consciously or unconsciously - attribute the symptoms to hormones or their own perception of the gravity of the disease. Let’s take women’s health seriously.
05/26/2023
Yesterday our Chief Legal Officer, Curt Oltmans, spoke on a panel about clinical trial diversity at the 2023 World Orphan Drug Congress, sharing, "Companies, clinicians and advocates all have to work together to bring education about the clinical trial process into Black and Latino communities...engaging with patients and investing in their communities are critical to gaining and maintaining trust."
Female caregivers often spend more than 6 hours daily caring for their loved ones living with rare diseases. This can lead to decreased mental health wellness.
05/17/2023
Sickle cell disease is the most prevalent rare disease in the US, but it primarily affects black and brown communities. Fulcrum's commitment to patients includes a commitment to finding ways to improve access for those historically underrepresented in drug development & research.
Hear our Chief Legal Officer, Curt Oltmans, discuss this issue during this year's World Orphan Drug Congress panel: "Current best practices for diversity in clinical trials - taking a holistic look at inclusivity, outreach and engagement” on May 25 at 11:50 am.
05/15/2023
Today we reported our Q1 financial results and announced the selection of Alex C. Sapir as our new President & CEO. Visit our website for an archived replay of the webcast: https://bit.ly/3Od3fEa
See our full press release here: https://bit.ly/3Od3xee
We know how much time CMOMs (Chief Medical Officer Moms) give to their loved ones living with rare diseases. Happy Mother’s Day ! Your care does not go unnoticed.
There are often invisible sides to . Struggle with fertility, higher maternal mortality and priapism are real issues for many dealing with . This is why we embrace the work being done by Teonna Woolford and others at Sickle Cell Reproductive Health Education, SC RED. Please save the date for their 2024 annual conference: 'Give Us Our Roses, Survival is Not Enough.'
05/11/2023
During , we’re sharing stats about women’s experiences with rare diseases. A timely diagnosis is crucial to the health of those living with .
05/10/2023
The attended and sponsored the MA SCD Red Ribbon Gala this past weekend. We joined in on celebrating those who have been strong advocates in the fight against sickle cell disease.
This FDA report shows the impact the lack of diversity in a clinical trial can have. During National Minority Health Month, we want to express the importance of creating a world with , which is why we need diversity in trials.
is so important to all of us. In this short video, Caroline describes why she is happy she is a part of the .
A Journal of General Internal Medicine study found that minorities are less likely to be aware of clinical trials.
04/13/2023
National Minority Health Month is a great time to recognize the disparity in health care. A study published in the Journal of the National Medical Association sheds light on the difficulty of receiving a rare disease diagnosis, which is crucial to the health of many suffering from a rare disease. means parity.
Nothing gives the more joy on a day than our . Happy !
04/07/2023
Today, we recognize and join the World Health Organization (WHO) in creating greater awareness of the actions needed to create better . Together, we can create a more equitable society where everyone has an opportunity for quality care and a better future.
According to a U.S. Food and Drug Administration (FDA) report, minorities are often underrepresented in clinical trials. During National Minority Health Month, we want to recognize this and do what we can to create equity in clinical trials.
As trusted patient and community partners, we know the value of sharing patient voices with our team. This is why Swathi knows that putting patients first is crucial to our success.
03/31/2023
Many sickle cell patients experience long-term complications. A recent study estimated that adults with Sickle Cell disease have an approximately 20-year shorter projected life expectancy.
We’re highlighting Elizabeth Blackwell during Women’s History Month because she was the first woman in the United States to receive an M.D. She was well-respected, well-published, and an advocate for medical education for women.
We are thrilled that we met with members of the FSHD Society Leadership Team at the MDA Conference in Dallas this week. Their work is critical to the future of .
03/22/2023
Yesterday, our own Olga Mitelman, SVP of Medical Affairs, presented “Addressing Unmet Needs in FSHD: Data from Losmapimod Long-term Clinical Trials” to attendees at the in Dallas. Muscular Dystrophy Association
03/21/2023
FSHD is a progressive disease that can potentially affect patients' day-to-day lives significantly. In a 2020 report by the FSHD Society, walking was reported as the top daily activity affected by .
In a 2020 report conducted by the FSHD Society, FSHD patients were asked how difficult activities involving their core and lower extremities are.
During Women’s History Month, we want to bring you facts about the state of women’s education in the U.S. Some of these facts are incredibly positive, like this one. Others you’ll find a little perplexing. Our goal is to open all of our minds on how we can do better for
In honor of International Women’s Day, we wanted to celebrate our all-female Medical Affairs team, which embodies .
FSHD is a genetic illness that affects skeletal muscle. Muscle groups affected involve the face, shoulder girdle, and lower extremities. FSHD Society
02/28/2023
As we honor , we refocus on our commitment to creating transformative therapies for those living with rare diseases. Every day is a day to care about rare.
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02139
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