Myasthenia Gravis News

Rituximab isn't officially approved for MG, but is used off-label when standard treatments fail, such as patients with anti-MuSK antibodies. https://buff.ly/3WV4r1J

More than a quarter of gMG patients wait more than one year to receive an accurate diagnosis, according to study of five European countries. https://buff.ly/46Q6ubP

Soliris (eculizumab) was effective at managing myasthenic crisis in four people with myasthenia gravis (MG) at a center in China. https://buff.ly/46UJxo0

An open-label, multicenter Phase 2 clinical trial will test KYV-101 in people with refractory MG and positive for self-reactive antibodies. https://buff.ly/3WL0w7B

Immunovant plans to initiate a pivotal trial of IMVT-1402 in myastenia gravis early next year, and have Phase 3 study results for batoclimab. https://buff.ly/4dIHRAe

Those unfamiliar with MG struggle sometimes to understand how symptoms, especially fatigue, can vary by day. Michelle Gonzaba offers some advice for handling this type of situation: https://buff.ly/3SCsaT2

Generalized myasthenia gravis patients with mild muscle weakness saw more relief after surgery than those with moderate or severe weakness. https://buff.ly/3WBn0b6

Think achieving well-being with MG is impossible? Try reframing what it means to be well. A clinical psychologist at the Cleveland Clinic weighs in: https://buff.ly/3LV6ihE

Since childhood, columnist Mark Harrington has struggled with a negative body image, believing his body is "defective." https://buff.ly/3ysBIZU

Remegen enrolled the first U.S. patient in a Phase 3 trial testing the safety and efficacy of telitacicept for generalized myasthenia gravis. https://buff.ly/4fAzPLi

The anti-malaria drug dihydroartemisinin, known as DHA, showed promise for treating myasthenia gravis in a rat model of MG, per a new study. https://buff.ly/46xZ10V

Myasthenia gravis and summer heat are not friends, but these tactics have helped columnist Shawna Barnes reduce her heat intolerance. https://buff.ly/3LUVkc0

A biotech innovator and former Marine diagnosed in 2016, Ari Maayan offers up some advice about taking back control of your MG journey: https://buff.ly/3SztBkT

If you have visible MG symptoms, how do you feel being in social settings? If "anxious" comes to mind, these strategies from a Cleveland Clinic psychologist may help: https://buff.ly/4druTGy

Soliris effectively eased symptoms and reduced the need for other medications in adults with MG in a clinical practice setting, data show. https://buff.ly/4cbrQ4z

People with gMG with difficulty getting diagnosed or hard-to-manage disease symptoms accrue higher healthcare-related costs, per a study. https://buff.ly/3Sw1IKD

If so, were they recommended to you by providers or did you find them on your own? Join others in the MG community who are sharing their regimens in our forums: https://buff.ly/4c3SY5l

Having a thymectomy was found to significantly ease neurological symptoms in MG patients older than 65 with a thymus tumor, per a new study. https://buff.ly/4fiUqDT

Scientists have identified a set of inflammatory molecules that could be useful as biomarkers to aid in MG diagnosis and classification. https://buff.ly/3WAayth

Looking for a community that deeply understands the challenges and triumphs of living with MG? Look no further than our forums: https://buff.ly/4fgmp73

When you have MG fatigue, the phrase "I need a nap" isn't something to be taken lightly, says columnist Mark Harrington. It upends his world. https://buff.ly/3Sldvvi

Into-the-vein treatment with Vyvgart (efgartigimod alfa) resolved an MG crisis in a man who had failed to respond to prior treatments. https://buff.ly/46kxMHd

A study reports a possible connection between cancer and a myasthenia gravis subtype caused by autoantibodies against muscle-specific kinase. https://buff.ly/3WfewGg

What happens when an MG patient is “normal people sick”? Shawna Barnes shares a glimpse into her life: https://buff.ly/3LU546F

Columnist Shawna Barnes checks her food sensitivities with the carnivore diet, which works as an elimination diet. https://buff.ly/3y5M81o

Zilbrysq is now approved in Canada for adults with generalized MG who are positive for antibodies targeting the acetylcholine receptor. https://buff.ly/4cXPG4y

The subcutaneous or under-the-skin injectable form of efgartigimod alfa was approved in China to treat generalized myasthenia gravis (gMG). https://buff.ly/4bQ3InV

Adolescent girls with MG were more likely than other patients to have enlarged thymus glands, possibly due to puberty hormones, per a study. https://buff.ly/3S9o5We

AI is still in its infancy, so columnist Shawna Barnes shares an informative anecdote about using it for medical research and other purposes. https://buff.ly/3XZl9PD

The final kick in the pants Shawna Barnes needed to start taking better care of herself was her desire to avoid creating more work for her husband. Now she’s learned how selfless self-care really is. https://buff.ly/3LiCJX3