Foundation For Sickle Cell Disease Research

Our recent Grant Writing Institute was an incredible success! Filled with energy, learning, and collaboration. Participants had the unique opportunity to pair up with experienced mentors, dive deep into the art of crafting winning grants, and bring their funding goals closer to reality.

Swipe through to see highlights from last week's institute and catch a glimpse of the amazing energy and dedication of everyone involved. We are excited to see how these skills propel our participants' projects forward!

Thank you to all who joined and contributed to making this event a success. We can't wait to see the impact of your future endeavors! 📚✍️

Join us for the Grant Writing Institute on Thursday, June 6, from 7 AM to 5 PM, and learn essential skills to secure funding and expand your organization’s reach. This special training session is designed specifically for patients, advocates, and leaders of service and community-based organizations dedicated to improving the lives of those with sickle cell disease.

Thanks to the generous support of our sponsors, bluebird bio and Agios, we are thrilled to offer registration at no cost to you.

📚 What’s Included?

A full day of expert-led instruction.
A year-long mentorship program, with quarterly meetings to evaluate progress and support your goal of submitting at least one grant proposal.
Don’t miss this unique opportunity to enhance your funding skills and make a lasting impact in your community. Spots are limited – secure your place now and start your journey towards greater organizational success!

is committed to making a difference for Sickle Cell Warriors and the community as a whole. Hear from Chief Patient and External Affairs Officer Amit Sachdev, and learn more here: https://www.vrtx.com/stories/we-are-you-message-sickle-cell-community/

Pfizer is excited to be an exhibitor at FSCDR 2024! Stop by Booth #6 to learn more
about an available Rx treatment option for patients living with sickle Cell Disease.

Register at
https://bit.ly/FSCDR24

Join us starting Saturday, June 8, for oral presentations and an opportunity to engage directly with researchers at the forefront of sickle cell disease advancements.

🗓️ Don't miss your chance to learn, connect, and contribute to a brighter future in SCD care.

🌟 Less than a Month to Go! 🌟 Join us for the 18th Annual Sickle Cell Disease Research and Educational Symposium and the 47th National Sickle Cell Scientific Meeting.

🗓️ Standard Registration Ends June 5 🗓️ Register today to secure your spot!

🔹 If you're living with sickle cell disease as a patient, family member, or caregiver, don't miss the Adult, Child, and Caregiver Town Hall & Dinner Panel on Friday, June 7, at 7:30 p.m.

This special event is a unique opportunity to connect with the wider community, share experiences, and build lifelong friendships.

💬 RSVPs are required for the Town Hall. Complimentary registration is available for sickle cell patients and caregivers interested in attending the Symposium. Register for in-person attendance in Category E to receive an invitation.

Find the support and friendships you've been seeking!
REGISTER NOW: https://www.edgereg.net/er/Registration/StepRegInfo.jsp?ActivityID=42078&StepNumber=1&v=NmExMDE2MzUtZjhlZi00ZDA5LTkyMzYtMGQ4NDZlY2YwNTVm

🌟 Support Us Through a Sponsorship 🌟

Our Symposium attracts hundreds of influential individuals from around the world. Exhibitors and sponsors gain exclusive access to key stakeholders in the sickle cell community—including leading researchers, physicians, clinicians, advocates, and social workers.

Your support directly shapes the future of sickle cell disease research, education, and treatment! 🌍✨

Ready to make a difference?
Become a Sponsor and join us in advancing the fight against sickle cell disease:

https://www.conferenceharvester.com/harvester2expw/login.asp?EventKey=IDSLLYBF&UserEmail=&UserPassword=&User=&BoothNumber=

🔬 Support the Front Lines of Disease Research 🔬

Join the Sickle Cell Research Society of America to advance sickle cell disease research and support quality patient care.

Membership Perks Include:
✅ Access to 100+ videos from past Symposiums (new content added quarterly)
✅ Downloadable slide decks from esteemed Symposium Speakers
✅ Published volumes of our Journal of Sickle Cell Disease
✅ Your name listed on our website
✅ 20% discount on Symposium registration and FSCDR merchandise

Ready to make a difference?
👉 Join the SCRSA today: www.fscdr.org/scrsa/

📍 Where is the Symposium?
We're back at the Greater Fort Lauderdale Broward County Convention Center.

✈️ What airport should I fly into?

Fort Lauderdale-Hollywood International Airport (4 miles away)
Miami International Airport (40-minute drive)

🏨 Where should I stay?
We've partnered with two hotels:

Marriott Harbor Beach Resort & Spa (Special rates until May 15)
Holiday Inn Express Ft. Lauderdale Cruise-Airport

🚗 Is parking available at these hotels?

Marriott: $35 per night
Holiday Inn Express: $5 per night
🚌 How do I get to the Convention Center?

Free shuttle service is available exclusively for Symposium attendees from both partner hotels.
Let’s make this a memorable and impactful Symposium together!

🎉 30 Days Left Until the Symposium! 🎉

We're officially counting down to the 18th Annual Sickle Cell Disease Research and Educational Symposium and the 47th National Sickle Cell Scientific Meeting! With only 30 days left until this groundbreaking event kicks off on Friday, June 7, it's time to get excited! 🗓️

Let's unite as a community and share knowledge, hope, and progress. Together, we're shaping the future of sickle cell disease care and research. Mark your calendars and get ready to be part of something truly impactful!

🌟 Exciting Announcement! 🌌 We’re honored to welcome Dr. Mae Jemison, physician, engineer, social scientist and former NASA astronaut with proven experience using scientific innovation to solve problems for humanity. Dr. Mae Jemison has pioneered both science and medicine, and will be our Keynote Speaker at the 18th Annual Sickle Cell Disease Research and Educational Symposium and the 47th National Sickle Cell Disease Scientific Meeting. Join us on Saturday, June 8 at 1 p.m. to hear from the trailblazing entrepreneur and former NASA astronaut.

Dr. Jemison's extraordinary journey from the stars to impactful entrepreneurship perfectly encapsulates the spirit of innovation and exploration we strive to foster in the fight against sickle cell disease. Her insights are sure to inspire and challenge us all to think bigger and push boundaries in research and care.

Don’t miss this opportunity to be inspired by one of the most influential figures in science and medicine today. See you there for a day of groundbreaking ideas and motivational stories! 🚀🔬

🌞🌴 Can’t wait to see your bright smiles in Fort Lauderdale, Florida, from June 7-9th! Get ready for an unforgettable journey at this year’s Symposium, filled with three days of enlightening and inspirational presentations by leading sickle cell experts from across the globe. 🌍✨

Join us as we unite in warmth and wisdom, diving deep into the latest in sickle cell research, treatments, and community stories. This is your opportunity to connect, learn, and be inspired alongside fellow warriors, advocates, and healthcare professionals in the beautiful backdrop of Fort Lauderdale.

Don’t miss out on this incredible gathering of minds and hearts, all dedicated to advancing the cause of sickle cell disease. See you there!

https://fscdr2024.eventscribe.net/

🌟 Personalized Care for Every Sickle Cell Warrior 🌟

At the Foundation for Sickle Cell Disease Research, we understand that each journey with sickle cell disease is unique. That's why our dedicated doctors and hematologists specialize in personalized treatment plans, tailored to fit the individual needs of each patient.

From finding the perfect combination of medications to relieve pain and reduce inflammation, to conducting thorough tests and regular exams, we're committed to adjusting and optimizing your treatment every step of the way.

Our mission? To ensure you can embrace life to the fullest, with the highest quality of life possible. Because you deserve care that's as unique as you are. Let's work together towards a brighter, healthier future.

🌟 Spotlight on Excellence: Dr. Lanetta Bronté-Hall 🌟 We're proud to announce that our esteemed founder, president, and chief health officer, Dr. Lanetta Bronté-Hall, will grace the podium once again at the 18th Annual Sickle Cell Disease Research and Educational Symposium and the 47th National Sickle Cell Scientific Meeting.

As a visionary leader and a beacon of innovation within the sickle cell community, Dr. Bronté-Hall brings her extensive experience and profound insights back to the symposium, where she will deliver the Welcome Address: The State of Sickle Cell Disease, on Friday, June 7 at noon.

With an illustrious career that spans across strategic planning, scientific research, and community-based participatory research, Dr. Bronté-Hall’s work has left an indelible mark on the field of sickle cell disease and rare blood disorders both nationally and internationally. Her leadership at FSCDR and the Sickle Care and Research Network continues to propel forward our mission of transforming care and advancing research.

Join us in welcoming Dr. Bronté-Hall and other global experts for three days of groundbreaking presentations and discussions. Together, we're shaping the future of sickle cell disease.

🌟 Choose Your Path to the 18th Annual Sickle Cell Disease Research and Educational Symposium 🌟 Whether you join us in person or virtually, an enriching experience awaits!

🔹 In-Person Registration: Dive deep into the full conference experience from June 7-9, 2024. Enjoy the opening reception, all sessions, exhibitor booths, exclusive app access, and more, plus the invaluable networking opportunities with experts and advocates alike.

🔸 One-Day Conference: Select any single day to attend and get full access to presentations, exhibitor booths, and all provided meals for that day. Perfect for those with tight schedules wanting to engage deeply with specific topics.

🌐 Virtual Registration: Not able to make it to Fort Lauderdale? Join us live online for all Keynote presentations, with 90-day post-conference access to revisit these insightful talks.

And don't miss the chance to enhance your skills at the In-Person Grant Writing Institute Workshop on June 6th.

Whatever your choice, you're contributing to a future where sickle cell disease is no longer a challenge. Let's learn, share, and innovate together for the sake of every . Register now and secure your spot in the journey towards change!

https://fscdr2024.eventscribe.net/