NJ Rett Syndrome Association

NJRSA supports local families as we raise awareness & funds for research that will improve the quality of life for those suffering with Rett syndrome.

08/20/2024

https://www.facebook.com/share/p/vKcwzPFfaepL1WPn/?mibextid=WC7FNe

Registration is NOW OPEN for our fall RettEd Day at Children's Hospital of Philadelphia! Join us in person for a rich and informative day of topics and discussion covering research updates, medical and therapeutic intervention strategies, communications strategies, and more. Registration is just $10 per person and free for individuals with Rett.

Space is limited! Register today: rettsyndrome.org/retteddays/chop24

Photos from NJ Rett Syndrome Association's post 08/05/2024
08/03/2024

My friend needs to sell this practically new 2022 Honda Odyssey side entry conversion van, only 3200 miles. Asking $64,000.00. If interested, please PM me

Bierman Autism Centers 07/27/2024

Bierman Autism Centers Bierman Autism Centers is a place where young kids engage in play to learn foundational skills they can build on such as self-advocacy and communication.We recognize that every kid’s success is unique, and our one-on-one approach allows us to drive progress, measurable outcomes, while each child i...

07/27/2024

New Jersey is committed to being a safe, accessible, and affordable place for all, including those living with disabilities.

💻Visit the Disability Information Hub at nj.gov/disabilities to find services for individuals with disabilities and those who support them.

Photos from International Rett Syndrome Foundation's post 07/24/2024

What an amazing few days!!!💜💜💜

Photos from NJ Rett Syndrome Association's post 07/20/2024

Thanks once again to our favorite photographer and family. Gerard and Judy we love you!💜
Here’s the link https://photos.saydahstudios.com/Rett/NJRSA-Family-Farm-Day/i-cpmd4Vb/A to the farm funday album. Check it out!!💜💜💜

07/19/2024

BIG NEWS! We've added 10 more spots for this Tuesday's Seize the Wave event in Sea Isle City with Paul's Purple Warriors NJ - Epilepsy!

Join us for an unforgettable day where kids with epilepsy will surf the Jersey Shore waves with the help of personal volunteer instructors.

We hit the beach bright and early at 9 a.m., welcoming families, supporters, and beach lovers to surf the waves and raise awareness of epilepsy. Don't miss this incredible experience!

Sign up now at https://www.cognitoforms.com/FamilyResourceNetwork2/_2024SeizeTheWaveRegistrationPhotoReleaseForm2

Register today and help us spread the word!

Photos from Special Strides's post 07/15/2024
Monmouth University | Monmouth University 07/15/2024

The Center for Speech and Language Disorders at Monmouth University is offering FREE summer speech evaluations for both children and adults.

We understand that everyone’s schedule is different so we’ve made it easy to book appointments. Evaluations will be held from July 17th through August 8th, with morning and afternoon slots available.

To schedule an evaluation:
Clients can visit our online form: https://forms.office.com/r/FeEWuzpyfY
Or call our clinic at 732-263-5487

BRITTANY L. KHAN, M.S., CCC-SLP (SHE/HER)
Director, Center for Speech and Language Disorders
Department of Speech-Language Pathology
School of Education
Monmouth University Graduate Center, Room 171b
[email protected]
https://monmouth.zoom.us/my/brittanykhan
o 732.263.5974
f 732.263.5970

400 Cedar Avenue
West Long Branch, NJ 07764
monmouth.edu

Monmouth University | Monmouth University Located along New Jersey’s northern coastline, Monmouth University offers a welcoming and dynamic setting for student development. Innovative academic programs, individual faculty attention and nationally ranked Division I athletics make our private university a great place to amplify your future.

SeriousFun Makes Camp Possible For All 07/12/2024

Several locations around the country.

SeriousFun Makes Camp Possible For All Explore our unique, no-cost programs designed for joy and safety.

Freedom Awaits with MJM All-Terrain! 07/09/2024

Beach friends…
Discounted, but still a lot. Not sure if DDD budget would cover???

Freedom Awaits with MJM All-Terrain! ⭐⭐⭐⭐⭐

07/09/2024

The Diagnostic Experience of Male Rett Syndrome is an online survey that collects information on the lived experiences of parents or caregivers of boys with Rett Syndrome from around the world. Funded in part by IRSF, this study will examine key information including the process of getting a male Rett syndrome diagnosis, your son’s systems of care, and your priorities for his health needs. The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers of boys (alive or passed) with Rett Syndrome.

Learn more about this study and how to join here: https://clinicaltrials.gov/study/NCT06346106

Thank you to the families, doctors, and researchers from across the world who have joined forces to continue to advance research and advocacy for males with Rett Syndrome.

07/02/2024

Who might be interested in riding at Special Strides if we offered a free day?
Please comment below.

https://m.facebook.com/story.php?story_fbid=854252086728177&id=100064301815228

KGI Design Group Of Farmingdale Celebrates 30 Years With 'Fulfilling' Eye Toward Charity 07/02/2024

Congratulations Kim and celebrating 30 years. We are always so grateful for your support. Always creating beautiful ideas to life and quickly! 💜
https://patch.com/new-york/farmingdale/khi-design-group-farmingdale-celebrates-30-years

KGI Design Group Of Farmingdale Celebrates 30 Years With 'Fulfilling' Eye Toward Charity The design business was in a basement or bedroom for years before founder Kim Poulos rented an office space in Farmingdale.

07/02/2024

Mia from NJ riding with Magnolia! Check out and

Embrace Your Voice: Tailored Speech Therapy for Every Journey 06/29/2024

Embrace Your Voice: Tailored Speech Therapy for Every Journey Discover a compassionate approach to speech therapy at The Therapy Garden. We prioritize the unique needs of our clients. Our holistic services extend beyond therapy to include functional skills development, self-advocacy training, and engaging social programming. Above all, we offer a safe, inclusive environment where everyone is celebrated for who they are. We also provide resources and support for the whole family since all forms of therapy are a team effort! Visit our website or call us today to start your journey towards clearer communication and newfound confidence.

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Telephone

Address


PO Box 354
Howell, NJ
07731

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