Cystic Fibrosis Foundation - Indiana Chapter

🍩DONUT WAIT🍩 Register today for the 2024 Great Strides season!! Click the links below to get started🏁

Indianapolis: https://fightcf.cff.org/site/TR/GreatStrides/60_Indiana_Indianapolis?fr_id=10444&pg=entry

Fort Wayne: https://fightcf.cff.org/site/TR/GreatStrides/60_Indiana_Indianapolis?fr_id=10445&pg=entry

Newburgh: https://fightcf.cff.org/site/TR/GreatStrides/60_Indiana_Indianapolis?fr_id=10446&pg=entry

📣ANNOUNCEMENTS!📣
1️⃣ Great Strides 2024 registration is open! We'll be sharing soon about a special benefit to registering your team this month...and it's not just because we love Great Strides so much! ❤️😉 You can find the registration links for each of our three walk sites here: https://www.cff.org/chapters/indiana-chapter

2️⃣ We want to share one more reminder about TONIGHT's virtual Great Strides Meet & Greet 👋 at 7pm EST. This is for anyone who's ever been a part of Great Strides or wants to be a part of it in 2024! It'll be a quick meeting...and there's a prize involved! 🙂

⭐️Comment below or email Maddie or Tricia with any questions and/or to request the link to join!⭐️

Do you have thoughts on CF care? We need to hear from you! The CF Foundation is invested in continuing to improve the quality of care that people with cystic fibrosis receive at Foundation accredited care centers. You can help inform you or your loved ones’ CF care by taking the Adapting CF Care Survey (also available in Spanish) by December 20 to share your experience and help inform the future of CF care:

https://cff.qualtrics.com/jfe/form/SV_bw5XQIf4B5836dg?Source=7

Relive all of the magic that was PTB 2023! Check out these photos from our amazing photographer Nathaniel Edmunds! If you see yourself, tag yourself and share what the best part of the night for you was! (pin is 7571 to download) Be sure to save the date for Purple Tie Ball 2024, Saturday, September 21 at the Scottish Rite Cathedral. More details to come in the new year!

https://nephoto.pixieset.com/guestlogin/cffpurpletieball/?return=%2Fcffpurpletieball%2F)

Help blaze a trail to better treatments and a cure for cystic fibrosis. As a clinical trial volunteer, you are paving the way for new treatments. Learn more and search for trials that may be right for you and your family.

Find a clinical trial: https://apps.cff.org/trials/finder

🙋‍♂️Who's excited for Great Strides 2024?! 🙋‍♀️

Whether you've been a part of these celebrations for years or are interested in learning more, we hope you'll join us for our upcoming virtual Great Strides Meet & Greet next Wednesday, December 6th, at 7pm EST.

Maddie & Tricia will share a bit as your new staff leads and would love to hear from you all, too! We can also answer any questions you may have about getting registered. Plus, one attendee will be able to snag some fun swag just by showing up!

⭐️Please email Maddie ([email protected]) or Tricia ([email protected]) for the link to join!⭐️

TODAY kicks off an in-store fundraiser for the CF Foundation during the month of December across all 26 Valvoline Instant Oil Change (VIOC) locations in Indiana! If you have a moment, please stop by and simply say thank you to the amazing men and women who are working at their stores. We are so excited to start this partnership in Indiana! Join us in thanking this incredible group!

Together, we made a difference!

Because of your support, and the generosity of the Stremick family, we met our GivingTuesday match – helping ensure that people with cystic fibrosis have a chance to continue to live longer, healthier lives as we work to progress care, accelerate innovative research, advance therapies, and find a cure for cystic fibrosis.

❗️ There's still time ❗️

This GivingTuesday, you can make a difference for Caiden and all those living with cystic fibrosis. Donate today and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. Our work isn’t finished until we’ve fulfilled our mission and every person with CF can live a long, healthy life.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

💜Today's the day - it's GIVINGTUESDAY! 💜

Give today and share this badge to let your community know why you are supporting the CF Foundation this GivingTuesday. To sweeten the deal, there is a match! Donations made today will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. Our work isn’t finished until we’ve fulfilled our mission of curing this disease. Now is the time. Give today for a future without CF.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

☀️ Canaan's future is so bright with you by our side! ☀️

This little ray of sunshine is excited about GivingTuesday! You can make a difference for Canaan and all those living with cystic fibrosis. Donate today and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. Our work isn’t finished until we’ve fulfilled our mission and every person with CF can live a long, healthy life.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

🥳 HIP HIP HOORAY! It's GivingTuesday! 🥳

This GivingTuesday, you can make a difference for Dania and all those living with cystic fibrosis. Donate today and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. Our work isn’t finished until we’ve fulfilled our mission and every person with CF can live a long, healthy life.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

This GivingTuesday, you can make a difference for everyone with this disease. Donate today and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. We still lose precious lives to CF, and our work isn’t finished until we’ve fulfilled our mission, and every person with CF can live a long, healthy life.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

💜 It's one of our favorite days of the year... it's GivingTuesday! 💜

This GivingTuesday, you can make a difference for Brynn and all those living with cystic fibrosis. Donate today and your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF. Our work isn’t finished until we’ve fulfilled our mission and every person with CF can live a long, healthy life.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

Are you ready for GivingTuesday? We’re thrilled to share this GivingTuesday starting at midnight, your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has cystic fibrosis.

By making a donation, you will help ensure that people with CF have a chance to continue to live longer, healthier lives as we work to progress care, accelerate innovative research, advance therapies, and find a cure for this disease.

Donate today: https://give.cff.org/givingtuesday/donate?rbref=GT2303&donate=100&unitid=Indiana

A Legacy Challenge to Fulfill Dreams of Tomorrow!

The Delaney Binker Family Cure Cystic Fibrosis Miami Foundation is once again challenging our community to provide critical funds for tomorrow. For each new member that joins the Legacy Society between June 15 - December 31, 2023, they will donate $1,000, up to $65,000. Make an immediate impact with a gift that costs you nothing today.

Share your legacy: https://mylegacywithcff.org/

Wishing you all a happy and safe Thanksgiving. Our offices will be closed Wednesday, November 22nd-Friday, November 24th, so our staff can spend time with family and friends.

GivingTuesday is just 1 week away, and we have some exciting news to share! This GivingTuesday, your gift will be matched, dollar-for-dollar, up to $250,000, thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has cystic fibrosis. The countdown is on until our match begins. This GivingTuesday, November 28, can we count on you to help us move one step closer to a cure for everyone with cystic fibrosis?

People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone. CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.

Learn more here: https://www.cff.org/support/get-help-cf-foundation-compass

Do you have thoughts on CF care? We need to hear from you! Take the Adapting CF Care Survey to share how the care you or your loved one with cystic fibrosis receives at Foundation accredited care centers should adapt to meet the diverse and changing needs of the CF community. Complete the 6 – 10 minute survey (also available in Spanish) by December 20:

https://cff.qualtrics.com/jfe/form/SV_bw5XQIf4B5836dg?Source=7

The Foundation is investing up to $3 million in ViaNautis, which is developing technology that may be able to address key challenges in delivering a genetic therapy to the body. Genetic therapies have the potential to benefit all people with cystic fibrosis, regardless of their mutations. This investment is part of our $500 million Path to a Cure research initiative to
accelerate treatments for all people with CF.

Read more here: https://www.cff.org/news/2023-11/foundation-invests-3-million-vianautis-deliver-genetic-therapies?utm_source=digital-community&utm_medium=email&utm_campaign=vianautis

As 2023 comes to a close, the Indiana Chapter is gearing up for the 2024 Great Strides season! We are so excited to share with you the three walk locations and dates below! Great Strides is a wonderful way for our community to come together to raise funds, spread awareness, and celebrate progress while renewing our commitment to a cure for all those living with cystic fibrosis. Each year our Great Strides family grows and with that, we are excited to introduce our new leads for our walk sites! We would like to introduce Maddie Young and Tricia Hopkins who will serve in these new roles. Please check out their bios below to learn about each of them, their Great Strides journeys, and what they are looking forward to in 2024!

We couldn’t stride without you! Thank you to our event sponsors: AbbVie, Vertex, Genentech, Nestle Health Science, and Viatris for helping take us one step closer to making CF stand for Cure Found. Great Strides events wouldn’t be possible without your support!

Purple Tie Ball was a rockin’ success, raising just over $375,000 for vital CF research! It was an inspiring night, with a moving speech from Tori Waters, introduced by her mother Diane Brown Fehr. We can’t thank our sponsors enough: Two Men & A Truck, Accredo, Southern Glazers Wine & Spirits, Tito’s Handcrafted Vodka, and Willow Marketing for their dedication to moving our cause forward. And thank you to all who were able to attend, check out some highlights from the evening below! We hope to see you next year on September 21, 2024!

What a story! PTB sponsor, Brett with Green Opportunities, donated custom one-of-a-kind CFF inspired Air Jordans for tonight’s auction. They were created in Atlanta and were flown in by the designer this morning! Brett met him at the airport to pick them up just in time for Purple Tie Ball. If you’re a size 10.5 men’s, take a look and bid!!

Register to bid here - https://auction.cff.org/?idEvent=3717&flsr=1

PTB Eve and all is quiet… but our silent auction is HEATING UP!🔥 Get your bids in, auction closes at 6:45 tomorrow night! Follow this link to join in on the auction fun: https://auction.cff.org/?idEvent=3717&flsr=1

Check out these sneak-peek pics of the venue and drop us a comment of what you’re most excited for!💜

Our Purple Tie Ball Auction is open to the public! Just because you can't attend PTB doesn't mean you can't participate and help move our mission forward. You can preview the auction, make bids on your favorite items and get notifications all on your mobile device. The auction closes on Saturday, November 4th at 6:30 pm.


Register to participate in the silent auction by clicking here: https://auction.cff.org/?idEvent=3717&flsr=1

Our Purple Tie Ball Auction is open to the public! Just because you can't attend PTB doesn't mean you can't participate and help move our mission forward. You can preview the auction, make bids on your favorite items and get notifications all on your mobile device. The auction closes on Saturday, November 4th at 6:30 pm.

If you win an item, you can checkout using your phone. If you are not present at the event to redeem your auction item, you can contact the Indiana Chapter team to schedule a time to pick it up. Physical item(s) must be picked up at the Indiana Chapter office before November 17th. Certificates will be mailed to winning bidders. All items not redeemed will be donated back to the CF Foundation auction for our 2024 events.

Register to participate in the silent auction by clicking here: https://auction.cff.org/?idEvent=3717&flsr=1

It’s your last chance to reserve your table for our Purple Tie Ball, taking place on November 4th!

link to https://events.cff.org/indianaptb/Donate/Tickets

We are thrilled to announce new sponsorship opportunities for our 2023 Purple Tie Ball! Becoming a Course Sponsor is a great way to get your company’s name and logo in front of our attendees!

Check out this opportunity, and others, by visiting: https://events.cff.org/indianaptb/Static/sponsors

Thank you to our Design Sponsor: Willow Marketing