Short Bowel Syndrome Foundation, Inc.

GATTEX is responsible for the growth of intestinal villi. Which in short bowel syndrome patients can be short and stunted. GATTEX was developed to help them grow in length.

The intestine is covered with millions of villi, which are like tiny little fingers that reach out and grab nutrients from food.

New drug treatments for SBS called GLP-2's work by stimulating the growth of these villi so they can absorb more.

Patients with short bowel syndrome can acquire the skills needed to effectively handle their condition, although achieving full adaptability may be challenging.

Like a lost hand or leg, intestines don’t regrow once gone. Your guts will grow with you, but missing parts will not grow back.

While bodies will adapt and progress can be made, no one completely outgrows SBS.

A cold in a patient with short bowel syndrome may pose a more significant challenge compared to an individual without this condition.

The gut is a part of the immune system, so little germs are a big deal.

A common cold or stomach bug can cause dumping, slow gut motility, or imbalance gut flora. This can set back months of progress, trigger dehydration, or send us to the hospital.

For those with central lines, every fever is treated as an emergency. Most fevers mean a trip to the emergency department, if not an automatic hospital admission.

Good to know information about skin care in children. Thanks to the Short Gut Families Support Group for creating and sharing!

SBS allows neither time nor anatomy to neutralize bile acids in the intestine, resulting in highly acidic stool.

This causes severe diaper rash in children & similar pain in adults.

We have to be vigilant about daily skin care from top to... bottom.

Upcoming webinar by The Oley Foundation about School Readiness and preparing caregivers and schools for the new year!

It's that time of year again! Hearing that your medically complex child can attend school may be shocking, and navigating the enrollment process can be overwhelming for both the caregivers and the school district. You may have heard Ashley speak at Oley 2024. This webinar will reiterate and expand upon her presentation during 'Connecting Life's Stages' and will provide you with important tools as well as guidance on how to navigate the process with your child’s school and medical team.

Tuesday, August 27, 2024
10:00-11:00 a.m. ET

To register, go to bit.ly/oleyschoolreadiness

This webinar will be recorded and available for viewing on our website after the live presentation. Register to receive the direct link to this recording when it becomes available.

This presentation will mainly address elementary, middle, and high school. Join us in September to hear about how to advocate for accommodations in higher education.

Go to oley.org/webinars for more info!

🌟 August is Short Bowel Syndrome Awareness Month! 🌟 Let's unite to raise awareness and show support for those with SBS during this time 💙💪 As patients of individuals dealing with SBS, you can celebrate by sharing your story, educating others, connecting with fellow warriors by joining our foundation support groups for Families, Adults, GATTEX, and International groups, and practicing self-care and taking care of you and your health.

Remember, you're not alone in this journey! 💛💫 💙🎗️

Want to join one of our many populated groups? Below are the links to request access. All groups are heavily moderated by a team of admins to keep everyone safe and secure in a friendly environment! Our foundation sponsored groups are:

Short Bowel Foundation Adult Support
Short Bowel Syndrome Foundation Families
Short Bowel Foundation International Support
GATTEX(R) Support Group

🎗️Understanding Short Bowel Syndrome (SBS)

Short Bowel Syndrome happens when parts of the small intestine are missing or removed, leading to difficulty in absorbing nutrients.

🦠Common Causes:
- Birth defects
- Surgical removal due to Crohn’s disease
- Trauma

🔍Our Foundation offers:
- Clear info on SBS
- Support for patients and families
- Resources for better quality of life

Join our community and learn more! 🌐

🌟 During SBS Awareness Month, we unite to illuminate the challenges faced by those living with Short Bowel Syndrome. From sharing personal stories to advocating for understanding and support, let's foster a compassionate community. Join us in spreading knowledge, empathy, and hope! 💙✨

Here are some things you can do to promote awareness:

1. **Share Facts and Personal Stories**: Utilize social media platforms to share informative posts about SBS. Highlight facts, statistics, and personal experiences related to living with SBS. Encourage others to do the same. 📢👥

2. **Participate in Local Events**: Attend or organize local SBS awareness events, webinars, or workshops. These gatherings provide opportunities to connect with others, learn more about SBS, and raise awareness within your community. 🌐🗣️

3. **Open Conversations**: Encourage open dialogues about SBS with friends, family, and colleagues. Discuss the challenges faced by individuals with SBS, dispel myths, and promote understanding. 🗣️🤝

4. **Educational Resources**: Share articles, videos, and infographics about SBS. Educate your audience about the condition, its symptoms, treatment options, and available support. 📚🎥

5. **Support Advocacy Organizations**: Promote and support organizations dedicated to SBS advocacy. Highlight their work, fundraising efforts, and awareness campaigns. 🤝💙

6. **Show Empathy**: Be empathetic toward individuals with SBS. Acknowledge their struggles and celebrate their resilience. Small acts of kindness can make a significant impact. ❤️🌟

7. **Emphasize a Healthy Lifestyle**: Stress the importance of proper nutrition, hydration, and self-care for managing SBS symptoms. 🥗💧💪

Let's make a difference together!

📘 Introducing Our New Infographic Booklet: A Guide to Intestinal Rehabilitation 📘

We’re excited to unveil the cover of our new infographic booklet from the Short Bowel Syndrome Foundation (SBSF)! This comprehensive guide is part of our educational hub, focusing on intestinal rehabilitation programs and services.

This booklet is designed to help you navigate your health journey with Short Bowel Syndrome (SBS). It’s packed with informative graphics, tips, and resources to empower you with knowledge and support.

Click the link to take a sneak peek inside! 👈

For more information and resources, visit our website at www.shortbowelfoundation.org.

Join us in our mission to raise awareness and improve the lives of those living with SBS. Together, we can navigate this journey. 💪🔬🩺
https://shortbowelfoundation.org/wp-content/uploads/2024/08/Navigating-Your-Journey-Intestinal-Rehabilitation-Programs-and-Resources.pdf

🎉 Exciting news! 🎉 The Short Bowel Syndrome Foundation website has been revamped! We’ve made some fantastic updates to our menus and completely overhauled our Centers of Excellence page. 🚀

Navigating our resources is now easier than ever! 🧭 We’ve organized everything you need in a user-friendly way to help you find the information you need, when you need it. 🕵️‍♀️

But that’s not all! Our Centers of Excellence page has been totally redone to better serve you. 🏥 It’s now packed with comprehensive and up-to-date information about the best places for treatment and care. 💖

So why wait? Dive in and explore the new changes! We’re sure you’ll love them as much as we do. 😊 Remember, we’re here to support you every step of the way in your journey with SBS. 💪

www.shortbowelfoundation.org

📚 Exciting News from the Short Bowel Syndrome Foundation! 🎉

We are thrilled to announce the release of our latest educational booklet on GATTEX, now available in our Education Hub! This comprehensive guide is designed to empower and educate those living with Short Bowel Syndrome (SBS) who are taking GATTEX.

💡 Dive into the world of knowledge and discover more about GATTEX, its uses, benefits, and potential side effects. Our aim is to provide you with the most up-to-date and reliable information to help you on your journey with SBS.

🔗 Visit our website at https://bit.ly/3y3yU5g to download your copy today! Let’s continue to learn, grow, and support each other in our SBS community. Knowledge is power, and together, we are stronger! 💪

Thanks for being a top engager and making it on to our weekly engagement list! 🎉

April Blakely, Erin Holmberg

🚀 Exciting update from the Short Bowel Syndrome Foundation! We’ve just unveiled our new Educational Hub, a one-stop destination for individuals with SBS. It’s packed with empowering strategies and practical tips to help you balance professional life with SBS. Discover our guide, “Navigating Success at Work,” and much more at www.shortbowelfoundation.org. Let’s embark on this journey to professional success together! Your path to success begins here. 💼🌱

🌟 Exciting News! 🌟 Our upcoming educational article is just around the corner! 📚🎉 We’re diving deep into strategies for achieving success in the professional environment while managing Short Bowel Syndrome (SBS). 💼💪 Whether you’re navigating your career or supporting someone with SBS, this article is a must-read. Stay tuned! 🤓🔍

In collaboration with Lee Smith!

🚨 Don’t leave home without it! 🚽 Download your FREE Emergency Bathroom Card today and gain peace of mind wherever you go. Stay prepared, stay confident! 💪✅ ” https://shortbowelfoundation.org/restroomcard2024/

🌟 We’re thrilled to unveil our refreshed look! 🎉 Our updated logo symbolizes growth, unity, and progress as we continue to advocate for those impacted by Short Bowel Syndrome. Join us on this journey of resilience and empowerment! 💙✨ ”

📣 Exciting updates from the Short Bowel Syndrome Foundation, Inc.! We’ve been working behind the scenes to enhance your experience on our website.

🔒 Check out our new Privacy Information Page to understand how we protect your data: Privacy Policy under the About SBS Tab in the main menu.

🎓 We’re thrilled to announce a new Educational Hub under the SBS Support Tab. Dive into a wealth of knowledge here: Educational Hub. This will be updated regularly. Please submit any new suggestions for a topic, I will try to make it happen!

🚻 And guess what’s back by popular demand? Our redesigned Public Restroom Card! Get yours today: Restroom Card

A huge thank you for your unwavering support over the last decade! We’re committed to serving the SBS community for as long as possible. Together, we can make a difference! 💙 "

SBSF Emergency Restroom Card Introducing the SBSF Emergency Bathroom Card The Short Bowel Syndrome Foundation, Inc. (SBSF) is proud to introduce the Emergency Bathroom Card, a valuable resource for individuals living with Short Bowel Syndrome (SBS). This card is designed to communicate the urgent need for bathroom access due to...

📣 We’re excited to introduce the SBSF Emergency Bathroom Card! This card is designed to help individuals with Short Bowel Syndrome (SBS) communicate their urgent need for restroom access. It’s not a choice, but a necessity due to their medical condition. Your understanding and cooperation are greatly appreciated. 🙏

For more information about SBS, visit our website www.shortbowelfoundation.org or call us at 402-429-8119. Let’s spread awareness and understanding for those living with SBS. 💙 "

Find and Print your copy today at:
https://shortbowelfoundation.org/restroomcard2024/

📣 Calling all warriors living with Short Bowel Syndrome (SBS) and their incredible caregivers! 🌟

Are you navigating the journey of SBS? You’re not alone. Our Short Bowel Syndrome Foundation is here to support you every step of the way. We believe in the power of community and shared experiences. 💪

We invite you to join our Patient and Families Support Group. It’s a safe space where you can connect with others who truly understand your journey. Share your story, learn from others, and find comfort in knowing you’re part of a community that cares. 💖

Whether you’re an adult living with SBS or a family member caring for a loved one, our support group is here for you. Let’s navigate this journey together, one day at a time. 🤝

Join us today and let’s make our SBS community stronger, together!

🎉 Celebrating a Decade of Dedication 🎉

On October 23rd, 2020

Marked a significant milestone for us - a decade of service to the Short Bowel Syndrome (SBS) community! 🎗️

Over the past 10 years, we’ve been committed to providing education, support, and advocacy for individuals living with SBS. We’ve grown into a global community, connected by shared experiences and a common goal: to empower and uplift each other in our journeys with SBS. 🌍💪

We’re incredibly grateful for the trust and support you’ve shown us over the years. Your stories inspire us, your resilience fuels us, and your triumphs motivate us to keep pushing forward. 🙏

Here’s to another decade of service, growth, and making a difference in the lives of those affected by SBS! 🥂

📚 We’re excited to share our new educational series from SBSF! This series is designed specifically for individuals living with Short Bowel Syndrome (SBS) and focuses on the different types of surgical resections and commonly used surgeries in SBS. 🏥
Swipe left to get a glimpse of our first topic: “Small Bowel Surgical Procedures: Visualizing the Connection - Surgical Resection and Its Impact on Short Bowel Syndrome”. 🩺
Stay tuned for more topics in this series and remember, we’re here to support each other in every step of our SBS journey! 💪



If you have an idea to submit for the future on a topic you would like to see, send me a message! We are always looking for new collaborators! Next educational piece like this will be on "Managing Short Bowel Syndrome in the Professional Environment"

Are you on a journey with Short Bowel Syndrome (SBS) or other Intestinal Failure Conditions? You’re not alone!

Join our Short Bowel Foundation Adult Support - a thriving community of over 1550 members just like you. This is a place to connect, share experiences, and learn from others who truly understand your journey.

Our group is moderated by a dedicated team of 4 admins who ensure a safe and supportive environment for all members. To join us, we kindly ask that you answer the entry questions and review the group rules. This helps us maintain the integrity of our community.

We believe in the power of shared experiences and mutual support. So, come and be a part of our vibrant community of incredible adults living with SBS and other Intestinal Failure Conditions. We can’t wait to welcome you!

Are you a part of our Short Bowel Syndrome Foundation Families Group? If not and are interested click on the link and request to join our community of parents, caregivers, and individuals living with SBS and other Intestinal Failure Conditions.

Short Bowel Awareness Momth begins today. So what is SHort Bowel Syndromd.

www.shortbowelfoundation.org

Today marks the first day of Short Bowel Syndome Awarness Month!

If anyone is interested they are still taking people to join the study! See the pic below for details. Thank you!

Happy 12th Anniversary to the Short Bowel Syndrome Foundation, Inc. We thank you for everyone’s continued support over the years!

New SBS patient study opportunity. Head to the link below listed for more info!