Down Syndrome Advocates in Action Nebraska - DSAA

Do you have questions about guardianship? You might want to consider attending this zoom meeting tomorrow night with Molly Blazek with Blazek law group.

Welcome! You are invited to join a webinar: Questions About Guardianship for Nebraska Families. After registering, you will receive a confirmation email about joining the webinar. Are you feeling overwhelmed by the complexities of guardianship in Nebraska? Join us for an enlightening and supportive workshop designed to clarify the guardianship process and empower you with the knowledge you need. During this workshop, we will walk you through the fundamental aspects of guardia...

Husker Heroes Registration is Open! Sign up at https://onecoalition.weebly.com/husker-heroes.html

This looks like a fun dance class

Tomorrow Night! Rose Cat Coffee, 5600 South 48th. 6:30-7:15 come to the Listening Session to share what is working well for your child at LPS.

This is huge for our community. This will open the door to Medicaid to many families who were previously denied due to parent income. To qualify your child needs to meet institutional level of care. What does that mean? - An institutional level of care is when an individual has substantial limitations in EACH of these three areas:
Conceptual Skills (language, reading, money, time, number concepts, and self-direction), and
Social Skills (interpersonal skills, social responsibility, self-esteem, gullibility, wariness, social problem-solving, and the ability to follow laws and rules and to avoid being victimized), and
Practical Skills (activities of daily living, personal care, job skills, healthcare, mobility, and the capacity for independent living).
Do you wish your child could get more speech, OT or PT than what school is providing? This can help cover outside therapies. If you have not yet applied for the waitlist, you will want to apply for this!

Important update for individuals receiving services through the Katie Beckett Program –
Children who meet the Intermediate Care Facility Level of Care or Nursing Facility Level of Care will be eligible for Medicaid.

This expansion allows the child to be able to access Medicaid services, without requiring participation in a Home and Community-Based Services (HCBS) Waiver.

More information can be found at: https://dhhs.ne.gov/DD%20Documents/Katie%20Beckett%20Program%20Info%20Sheet.pdf.

See more updates for Eliminating the DD Waitlist at: https://dhhs.ne.gov/Pages/DD-Wait-List.aspx

Who is thinking about back to school? Here is an all about me link that you can personalize in Canva. TThese are great to give to all of your child's teachers. If you don't use Canva, you can simply email us 2-3 bullet points per box, a vision statement and a photo, and we will make it for you and email you the completed design. Send your info and or any questions to [email protected]
https://www.canva.com/design/DAGLTzKk4zc/Orb8IgmWoCoqaWh-Lnv0zg/edit?utm_content=DAGLTzKk4zc&utm_campaign=designshare&utm_medium=link2&utm_source=sharebutton

Less than a week away from the last summer ONE Coalition Swim party on July 23rd. Register to attend here.
https://onecoalition.weebly.com/swim-party.html

Do you have questions about the family support waiver. This might help.

Join our Family Support Waiver Technical Support Sessions! Meet our team, get your questions answered, and receive guidance tailored to your needs. Register now https://wkf.ms/3XLWBcM or visit the Nebraska DHHS Division of Developmental Disabilities website.
Sessions are 30 minutes long and scheduled at your preferred time. Whether you're new to the process or familiar with DD services, we're here to help you navigate applications and understand waivers. Sign up today to ensure you have the information you need for your family's care journey!

There are still spots open for this Free Bike Camp in Omaha. August 5-10 put on by Adventure For All. This is an amazing camp! Check it out!
https://adventureforall.us21.list-manage.com/subscribe?u=36940a9d39cfc495629bb9c5d&id=9f27b8779b&fbclid=IwZXh0bgNhZW0CMTAAAR0f4MWB4yPEjEDu7pis2OcMu3pfxBzOn3aG_C555NNIw9b7NFGdh-Fm8mc_aem_uJz-ZobcNcf0xWso8KSgxg

Adventure For All Adventure For All Email Forms

On July 30th the Olmstead Advisory Committee will be having their quarterly meeting from 9:00-1:00 and it is a public meting. There will be an opportunity for public comment! I would encourage people to attend and provide comments on what we need to do to provide better Home & Community Services so people with disabilities can live successfully in society. This is the link for DHHS Olmstead Page https://dhhs.ne.gov/Pages/Olmstead.aspx there is the link for zoom and the agenda. I hope you will attend!

Olmstead Plan ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Nebraska's Olmstead Plan is a roadmap to a strong state where we can all live and work in our communities. The Olmstead Vision is “People with disabilities ...

Research opportunity!

This is always such a fun dance. If you can make it work in your schedule, I definitely recommend it.

Who is ready to Dance the Night Away? The Journey of Hope Annual Dance is Wednesday July 10. 6-8pm!!!

Research Alert

Families of children 5-18 years of age with Down syndrome are needed for a research study on energy expenditure and weight-related behaviors in youth with Down syndrome.

Click the link to learn more and determine if you are eligible:

Down Syndrome Energy Expenditure and Weight-Related Behaviors Research Study Thank you for your interest in this research study! If you are interested in participating, please answer the questions below to help us determine your child’s eligibility for this study. If eligible, you can enter your name and contact information, and a member of the research team will contact y...

If you are on the waitlist and have a child under age 21, please make sure the state can get ahold of you. Update your contact information.

Individuals on the DD Waitlist and families, we would greatly appreciate you reviewing your contact information in AccessNebraska. This is a huge help to ensure everyone receives important communications as the Division of Developmental Disabilities moves toward eliminating the DD waitlist.

To update your information, please visit: https://dhhs.ne.gov/pages/accessnebraska.aspx

For other updates on the Elimination of the DD Waitlist, please visit: https://dhhs.ne.gov/Pages/DD-Wait-List.aspx

Advocacy alert. For everyone on a waiver or soon to be on the family support waiver, the assessment tool is changing. You need to stay up to date to understand what this will mean for your loved one.

Here is an important stakeholder event regarding ending the waitlist and new criteria for qualifying for Nebraska waivers.

Welcome! You are invited to join a meeting: DD Stakeholder Event - Assessment Tool Overview. After registering, you will receive a confirmation email about joining the meeting. Welcome! You are invited to join a meeting: DD Stakeholder Event - Assessment Tool Overview. After registering, you will receive a confirmation email about joining the meeting.

New dance opportunity

💚 NEW CLASS ALERT: ALL STAR CLUB 💚

All Star Club is a dance class for children of all ages with special needs.

This inclusive class is open to students with Down Syndrome, Autism and other cognitive or physical disabilities. This class encourages strength, coordination, and friendship building! We believe that everyone deserves to feel like an All Star! ✨

This class will be taught by Miss Emily Nolte. Miss Emily has a sister with Down Syndrome and a nephew with Prader-Willi Syndrome. She has a degree in Nursing and passionately believes all children deserve the same opportunities and experiences! Miss Emily is so excited to share her love of dance with ALL! 💚

Please email the dance studio attention to Miss Emily Nolte with questions and/or for more information ⬇️

📧 [email protected] 📧

Join the organizations of ONE Coalition for the 2024 Sensory Friendly Swim nights. This year will be a little different in that one of the nights (July 23rd) will be held at the UNI Place Pool Register at https://onecoalition.weebly.com/swim-party.html

Thank You Lincoln Community Foundation and West Gate Bank!

We've got BIG news for Down Syndrome Advocates in Action Nebraska - DSAA - you're the winner of our 12 pm Small but Mighty Prize drawing! You'll receive a $500 boost thanks to Presenting Sponsor, West Gate Bank.

This is a nice beginning opportunity to start the conversation about affordable housing for our loved ones:
hi all,
wanted to let you know about a big housing advocates meeting this Thursday, in case you are interested. The Arc of Lincoln is working with NeighborWorks to create an Inclusive, independent living option for p/w/d.
The contractor who built all the Sheltering Tree complex in metro area will be presenting. We meet again at noon today at The Hub to create a task force to move this along.

Please see below from Civic Nebraska:
Good morning, housing advocates!

I hope to see you at our upcoming housing advocates workshop this Thursday, May 30th, Affordable for Whom? Hear from Local Housing Developers on What it Takes to Build Affordable Housing. We'll gather over a shared meal and presentation from Hoppe Development and NeighborWorks Lincoln, where we'll learn about how they develop affordable housing and what factors impact unit affordability, including construction costs, public financing tools, and more!

WHEN: Thursday, May 30th, 5:30 - 7:00 PM
WHERE: Eiseley Branch Library (1530 Superior St, Lincoln, NE 68521)
Dinner will be provided, and children are welcome to attend!

Sign-up to let us know you're coming so we can provide enough food at https://bit.ly/Affordable4WhomMay30.

As part of the workshop, we'll have a Q&A session, where Jake with Hoppe Development and Charlie with NeighborWorks Lincoln. Please email me your questions so they can prepare ahead of Thursday. :

RSVP for Affordable for Whom? Hear from Lincoln Housing Developers on What it Takes to Build Affordable Housing Join Lincoln Housing Advocates to connect with fellow Lincolnites over a shared meal and a presentation from Hoppe Development and NeighborWorks Lincoln, where we'll learn about how they develop affordable housing and what factors impact unit affordability, including construction costs, public finan...

Just 2 weeks left to submit a photo.

Each year, we celebrate 500+ individuals with Down syndrome with a video presentation in the heart of Times Square to kick off our New York City Buddy Walk®. 🏙️ 𝗧𝗵𝗲 𝗱𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝘁𝗼 𝘀𝘂𝗯𝗺𝗶𝘁 𝗮 𝗽𝗵𝗼𝘁𝗼 𝗶𝘀 𝗧𝘂𝗲𝘀𝗱𝗮𝘆, 𝗝𝘂𝗻𝗲 𝟰𝘁𝗵 𝗮𝘁 𝟭𝟭:𝟱𝟵 𝗣𝗠 𝗘𝗧!

Submit yours today at ndss.org/nyc-buddy-walk-tsv.

We hope you will consider us during Give to Lincoln Day!
https://givetolincoln.com/nonprofits/dsaa

Do you want to register for Homers Heroes? Time is running out!

This one is too good not to share again. Happy Mother’s Day to our Nebraska Down syndrome community.

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