ALS United Connecticut

We are a few days away from our Coffee for Caregivers event at Wallingford's Panera Bread! To RSVP, email [email protected]. We can't wait to enjoy a cup (or two) of coffee with you on July 26th at 1 pm! ☕

Thank you, Mitsubishi Tanabe Pharma America, Inc., for being this year's Presenting Sponsor! We can't wait to see you at our upcoming walks. For more information or to sign up for our 2024 Walk events, click the link below.

https://ow.ly/LRfP50Sz6Er

Thank you, Hospital for Special Care, for being this year's Presenting Sponsor! We can't wait to see you at our upcoming walks. For more information or to sign up for our 2024 Walk events, click the link below.

https://ow.ly/LRfP50Sz6Er

We are a few days away from the series! On 7/15 at noon we chat about palliative care with Tracy Shamas! For more info and to sign up, email [email protected]!

Join on July 26th at 1 pm for our Coffee for Caregivers event at Wallingford's Panera Bread! To RSVP, email [email protected]. We can't wait to see you and enjoy a cup of coffee!

A heartfelt thank you to Kids For Kids, Dancing for Life, Inc for your generous donation! recognized the group “What the World Needs Now” from Seven Star School of Performing Arts and dancer Lindsey C. with the Spirit of Erin Award given in memory of Erin Brady, who passed from far too young. This award recognizes those who embody Erin’s courageous and inspirational spirit, and a donation is made to in their names. Congratulations to the award recipients, and thank you!

Join for our series! On 7/15 at noon we chat about palliative care with Tracy Shamas! For more info and to sign up, email [email protected]!

Did you know? Wheel It Forward is now in and , offering a lending library of Durable Medical Equipment for any of your needs. You can check out their inventory online, or you can always reach out to your care manager for information on CT’s Equipment Program.

https://www.wheelitforwardusa.org/

Pictured below is Elliot Sloyer of and Jacky Rose .

We hope you have a great day!

Become an ALS Research Ambassador! Northeast ALS Consortium (NEALS) is pleased to announce that applications are now being accepted for the upcoming in-person Clinical Research Learning Institute®. The program is scheduled for Oct. 20-21, 2024, in Clearwater, FL.

Individuals impacted by ALS, including people living with ALS, caregivers, and family members are encouraged to apply and NEALS will cover the cost of travel. Please share this opportunity with others.

The application deadline is July 15, 2024. https://www.surveymonkey.com/r/2024CRLI

Our July support group schedule is out! For more information, email Care Services at [email protected].

We're getting closer to our events. Don't forget to sign up and/or register your team at https://alsunitedct.org/get-involved/walk-als/!

The National Academy of Sciences report "Living with ALS" was released today, highlighting important considerations for care and research. appreciates everyone's involvement and looks forward to future collaborative efforts. To read the article, click below:

https://ow.ly/t5Xi50SlJAS

Such an amazing event!! Thank you, , Skrewball Whiskey, Stonebridge Restaurant, and all those who came out to help us !! :)

encourages our community to register for the Tuesday, June 18 National Academy of Sciences to learn about their groundbreaking report on the future of . Register now by clicking below:

https://ow.ly/J4F650Sk27a

Happy Father's Day from your friends at !!

Join us TOMORROW at Stonebridge Restaurant in Milford as we enjoy Skrewball Whiskey and raise money for !

It was such an amazing day at Dunkin' Park on Sunday! It was a picture-perfect day to honor the Iron Horse on and celebrate all the heroes in the fight against with the Hartford Yard Goats! Check out a few amazing photos...and come back here later for even more photos! ⚾️

Our June 2024 Support Groups calendar is out! For more information on our Support Groups contact us at [email protected].

Please join us as we wish Jacky Rose, Executive Director, a very HAPPY BIRTHDAY!! 🎂🥳🎉

On Sunday, Ron will be the Honorary of the Game for the Hartford Yard Goats during at Dunkin' Park! He will be escorted onto the field with his wife Karen and grandchildren Sarah, Kayla, Eli and Maddox. Come out to the ballpark and join us as we celebrate all the heroes in the fight against !

Join the fight against by coming out to Stonebridge Restaurant on June 6th at 5:30! Details below!

Skrewball Whiskey

thanks for passing the bipartisan FAA Reauthorization Bill, which includes important provisions to improve accessibility in . This legislation includes many changes that patients, caregivers, and other air travel passengers with disabilities have advocated for many years. The Reauthorization Bill is evidence of the possible progress when advocates unite across a common purpose.

To learn more about CT Advocacy, click below!

https://alsunitedct.org/advocacy/become-an-advocate/

Do you have your Big Y World Class Market community bag yet? Stop by Big Y in Milford from now until the end of May. For every bag sold, will get $1!

With May being , our friends at Big Y World Class Market in are stepping up! For each community bag purchased, $1 will go to ! Stop by today and get your bag!

is excited to participate in the Accelerating Medicines Partnership® Amyotrophic Lateral Sclerosis (AMP® ALS) program, along with the Foundation for the National Institutes of Health, NIH’s National Institute of Neurological Disorders and Stroke (NINDS), and industry and non-profit partners to accelerate progress in research. Our objectives are clear: expedite and enable discovery and development of diagnostic tools, biomarkers, and new treatments.

Learn more about , the largest public-private partnership of its kind to combat this devastating disease:

https://fnih.org/press-release/the-foundation-for-the-national-institutes-of-health-announces-the-launch-of-a-public-private-partnership-to-accelerate-als-diagnosis-and-treatment/

The Foundation for the National Institutes of Health Announces the Launch of a Public-Private Partnership to Accelerate ALS Diagnosis and Treatment | FNIH • The Accelerating Medicines Partnership® in Amyotrophic Lateral Sclerosis (AMP® ALS) will create the largest open data platform for ALS research • Partnership will enable discovery and development of diagnostic tools, biomarkers, and better treatments   NORTH BETHESDA, Md., May 21, 2024—Th...

We're a little over 3 WEEKS OUT until at Dunkin' Park! Get your tickets now and join and the Hartford Yard Goats on June 2nd for an amazing day at the ballpark. Click below to get your tickets TODAY!

bit.ly/lgdyardgoats

Earlier this morning, joined WTNH News 8's to talk and preview the 5K Walk/Run! Thank you Ava and Lisa for joining Jacky to talk all about your event in memory of Dan. Check out the video below!

https://ow.ly/SEeP50RIX8L

Dan the Man 5K ALS Run & Walk Dan the Man 5K ALS Run & Walk

Donate today and help our pALS and their caregivers!
https://ow.ly/b1an50QmE0J