Frontotemporal Lobar Degeneration Association

https://www.psp.org/ineedsupport/resources/books

CurePSP - Books on PSP Over the years, we have accumulated a collection of books that tell the story of PSP from various points of view. These books allow readers to see through the eyes of patients and caregivers, understand the journey they are on, and help explain the effects of PSP to the children in their family. Ple...

https://www.kimberlywilliams-paisley.com/home-book/

Home – Book | Kimberly Williams-Paisley What People Are Saying About Where the Light Gets In“Kimberly Williams-Paisley has written a book that is both heartbreaking and essential. I loved it for all the love it contained but also for the wealth of practical information. The Williams family went down a hard road with dementia, and we can...

https://www.medicalnewstoday.com/articles/vigorous-exercise-lower-dementia-alzheimers-related-deaths

Dementia: Could exercise help prevent Alzheimer's related deaths? A new study found that participating in vigorous physical activity was linked to lower dementia mortality rate compared to moderate physical activity.

https://www.cbsnews.com/miami/video/what-is-frontotemporal-dementia-and-what-causes-it/

What is frontotemporal dementia and what causes it? Jennifer Braisted from the Alzheimer's Association explains what frontotemporal dementia is and what causes it.

https://www.news-medical.net/?tag=/Frontotemporal-Dementia

Frontotemporal Dementia News, Research A new major study by the University of Eastern Finland, the University of Oulu and Neurocenter Finland explored early-onset dementia in the working-age population in Finland.

https://www.nytimes.com/2023/02/16/well/mind/bruce-willis-frontotemporal-dementia-aphasia.html

Bruce Willis Has Frontotemporal Dementia, His Family Announces (Published 2023) FTD is the most common cause of dementia for people under 60.

Woman claims Alzheimer’s symptoms were reversed after five years | CNN In “The Last Alzheimer’s Patient,” CNN chief medical correspondent follows Alzheimer’s patient Cici Zerbe who says her symptoms have been reversed after participating in Dr. Dean Ornish’s clinical trial on the effects of intensive lifestyle changes on the progression of mild cognitive impa...

https://www.usnews.com/news/health-news/articles/2024-07-26/shingles-vaccine-could-lower-dementia-risk

Shingles Vaccine Could Lower Dementia Risk US News is a recognized leader in college, grad school, hospital, mutual fund, and car rankings. Track elected officials, research health conditions, and find news you can use in politics, business, health, and education.

Unusual eating habit could be early warning sign of dementia, say experts - NewsBreak Frontotemporal dementia (FTD) is a rare form of dementia that affects the frontal and temporal lobes of the brain. It can cause a range of unusual symptoms, including obsessive eating habits

Saw this on LinkedIn

https://youtu.be/sNNw8l0wg0I

ROBIN’S WISH Trailer NEW (2020) Robin Williams Documentary Watch FREE FULL MOVIES in exclusive 👉🏼 https://bit.ly/3woTiHZWatch the trailer for Robin's Wish, the powerful true story of actor/comedian Robin Williams' ...

https://www.acsh.org/news/2024/04/02/impact-ultra-processed-foods-brain-17748

The Impact of Ultra-Processed Foods on the Brain Discovering the truth about the impact of ultra-processed foods on our brains can be like navigating a maze of conflicting information. In a recent article published by The Wall Street Journal, the spotlight was once again cast on this controversial topic.

https://www.huffpost.com/entry/wendy-williams-diagnosed-frontotemporal-dementia-and-apahasia_n_65d77a91e4b0e4346d51b41c

Wendy Williams Diagnosed With Frontotemporal Dementia And Aphasia The former talk show host’s team announced she was diagnosed after undergoing several medical tests.

https://thebetterbrainblueprint.com/

The Better Brain Blueprint – Learn how to help prevent dementia, improve cognition and enhance your mood from the world’s leading experts. In this groundbreaking documentary series, NYT bestselling author Austin Perlmutter, MD, along with leading brain health experts, reveal the secrets to achieving optimal brain function, protecting your brain, and keeping it sharp at any age.

https://click.mail.theaftd.org/?qs=8fbaec245f23f3a7fac6120b62424bdcf18204e90934ab6b00a82b3b9d3a1ac26bee785b20fce6ef0d708640fcda836f1739f774282fadea331deafd69d50376

AFTD 2024 Education Conference. AFTD's 2024 Education Conference is coming to the Hyatt R.

https://www.readersdigest.ca/health/dementia-breakthroughs-offer-new-hope/

Dementia Breakthroughs Offer New Hope New treatments and tests for dementia are finally here, after decades of disappointments.

https://www.pennmedicine.org/news/news-releases/2023/december/new-treatment-reverses-alzheimers-disease-signs-improves-memory-function

New Treatment Reverses Alzheimer’s Disease Signs - Penn Medicine By generally improving neuronal and cellular health, experts can mitigate or delay disease progression

https://youtu.be/AVst-5FKLwE?si=rJgUAvSZ46LRDfrE

Mindscape: Decision-making and Dementia with Paul E. Schulz, MD When is a person with dementia capable of making informed decisions? Watch this conversation with Paul E. Schulz, MD, professor of Neurology and director of ...

https://mayocl.in/41g4Iy1

Paradoxical Lucidity (LEAD)-RECRUITMENT Paradoxical Lucidity (LEAD)-RECRUITMENT

https://www.sandiegouniontribune.com/caregiver/news-for-caregivers/story/2023-11-21/is-it-alzheimers-disease-or-frontotemporal-dementia-causes-are-vastly-different

Is it Alzheimer's or frontotemporal dementia? Causes are vastly different. The lesser-known form, linked to a genetic mutation, has an earlier onset and a different caregiving timeline

https://amp.marca.com/en/lifestyle/celebrities/2023/08/16/64dd10cce2704ea1b58b456f.html

Robin Williams' widow reveals what truly killed the comedian: 'Depression didn't kill Robin' It's been 9 years since Robin Williams left this plane, the comedian became a legend while he was still alive but his passing was unexpected as it was traumatic. His wife,...

https://www.foxnews.com/entertainment/bruce-willis-daughters-speak-heartbreaking-update-health.amp

Bruce Willis' daughters speak out after heartbreaking update on his health Bruce Willis' daughters Scout and Tallulah are applauding their stepmother, Emma Heming Willis, for supporting their father and speaking out about frontotemporal dementia.

https://m.youtube.com/watch?v=QH5rHANgyY8

Bruce Willis’ wife, Emma, gives health update: ‘Hard to know’ if he’s aware of his condition In a TODAY exclusive, Bruce Willis's wife, Emma, shares an update on his battle with frontotemporal dementia and opens up about how she explains it to their ...

https://www.abc.net.au/news/2023-09-26/bruce-willis-wife-speaks-about-husband-dementia/102900482

Bruce Willis's wife says 'it's hard to know' if he is aware of his dementia Emma Heming Willis says dementia "is a family disease" that has ripple effects for the person diagnosed and their loved ones.

Robin Williams took his own life because he was diagnosed with Lewy Body Dementia. Bruce Willis just learned that his illness is Frontotemporal Dementia (FTD) and Lewy Body Dementia.

One of the hardest things to process is the slow change in the one you love. Becoming a completely different person.

Everything changes. Just so you know...😢 It’s called the long goodbye. Rapidly shrinking brain is how a doctor described it. As the patient's brain slowly dies, they change physically and eventually forget who their loved ones are and become less themselves. Patients can eventually become bedridden, unable to move and unable to eat or drink or talk to their loved ones. There will be people who will scroll by this message because Dementia or Alzheimer's has not touched them. They may not know what it's like to have a loved one who has fought or is fighting a battle against Dementia or Alzheimer's.

I lost a brother and a sister to Dementia. It’s an ugly disease and we’re finally seeing people talk about it. Robin Williams’s widow and Bruce Willis’s wife have been very forthcoming in sharing information. It is greatly appreciated in the FTD community because all these years, no one wanted to share.

https://www.cnbc.com/2023/07/06/fda-approves-alzheimers-drug-leqembi-from-eisai-biogen.html

FDA approves Alzheimer’s drug Leqembi, paving way for broader Medicare coverage Leqembi slowed cognitive decline in a clinical trial, but the treatment is expensive and carries serious risks of brain swelling and bleeding.

https://apple.news/AkQe49xP0SJO3jQqojkRrMA

Bruce Willis' Condition Worsens as Family Announces “Painful” Dementia Diagnosis — The Hollywood Reporter After confirming that the veteran movie star had been diagnosed with aphasia, his family now says they've received "a clear diagnosis" of frontotemporal dementia, known as FTD.