Jack's Angels Foundation

https://www.einpresswire.com/article/739867088/neglected-diseases-warrior-moms-for-kids-with-dipg-childhood-brain-cancer-share-the-truth-on-story-walking-radio-hour
Marcelo Ortigao Paul Miller Wendy Fachon Dean Fachon

Neglected Diseases: Warrior Moms For Kids with DIPG/Childhood Brain Cancer Share The Truth on Story Walking Radio Hour The corporate domination of nearly every aspect of American Life has a devastating impact with the diagnosis of a child with cancer.

This anonymously written piece is saving me right now

"Last Floor Action(10:17:47 AM): DEBATE - Pursuant to the provisions of H. Res. 1370, the Committee of the Whole proceeded with 10 minutes of debate on the Ogles amendment No. 78." https://live.house.gov/
I saw the last person speak to oppose this. (Chellie Pingree of ME) It's removing funding for investments to help assuage the severe results of climate change. They're also removing funding for the Environmental Protection Agency.

I think it's really important to us to watch and listen, to Members on both sides, to see how they make their cases and arguments over issues that affect us so directly, and our next generations so profoundly. BTW--Chellie Pingree of Maine! Bravo. I wish more would hear you.

live.house.gov, U.S. House of Representatives Your dashboard for legislative activity. Watch the U.S. House of Representatives live and follow all the action on any device.

Neil's story... amazing! Congratulations Wendy Fachon and Dean Fachon

DIPG: Eternal Hope Versus Terminal Corruption by Dean Fachon | Natural Awakenings Greater Boston - Rhode Island Dean Fachon wrote DIPG: Eternal Hope Versus Terminal Corruption to illustrate the challenges and roadblocks to finding treatment for DIPG (Diffuse Intrinsic Pontine Glioma), a rare form of brain cancer, and to guide those who may find themselves i...

I need to give the biggest shout out, of all DIPG orgs, to The Cure Starts Now. Their singleness of purpose has brought unprecedented collaboration between previously siloed industries together, mid-process in research, in order to achieve their goal of saving lives, of conquering the worst of the worst, DIPG. If we can crack the code of this monster, people, we can do anything.
The Cure Starts Now was the first of its kind and continues to lead in research excellence and research investment integrity. They do not compromise their methods and the results are unparalleled, showing progress and new, inspiring and embraced rather than shunned clues forward to crack the code. Keith Desserich and Brooke Baumgardner Desserich have done more to support DIPG children, DIPG families, DIPG organizations, and DIPG advocates like yours truly than any other. When the chips are down, The Cure Starts Now is there and doesn't waiver over personality or styles of leadership issues. The mission is crystal clear and so is the organization that supports it. Here's Elena, the overlighting angel of this organization...

This just in! 2024 US Senate DIPG Pediatric Brain Cancer Awareness Resolution

2024 US Senate DIPG Pediatric Brain Cancer Awareness Resolution – Jack’s Angels Foundation WASHINGTON, DC – In an effort to raise awareness about pediatric brain cancer, encourage research on diffuse intrinsic pontine glioma (DIPG) tumors and other pediatric cancers, and honor patients and families who have faced this disease, the U.S. Senate passed a bipartisan resolution (S.Res. 691) ...

What is DIPG and why is the National DIPG Awareness Resolution Important, and where does it come from?

dipgadvocacy.org

Thank you Sandra Brown for this amazing feat in South Carolina!!

In honor of her amazing nephew...Thank you Jenn Jennifer Sessler!! She got it DONE...

This is a testament of people's caring...that there are artists who take the time to memorialize these amazing children and give their work to give comfort and love to the families who have lost them makes my heart sing. Thank you Childhood Cancer Community

Day 7 of Brain Tumor Awareness Month.

The indigenous populations in my state of California and across the country are working hard through legislation to raise awareness for the missing people who grow in number--either murdered or trafficked. This is an unacceptable reality.

Missing and Murdered Indigenous People Crisis | Indian Affairs Secure .gov websites use HTTPS A lock () or https:// means you’ve safely connected to the .gov website. Share sensitive information only on official, secure websites.

Yes, it's mental health awareness month... and in this vein I can say from personal experience that my mental health would be a lot better knowing that our government was stepping up where capitalism could care less about investing in cures for children.
NEWSFLASH: IT'S BRAIN TUMOR AWARENESS MONTH. BRAIN CANCER IS THE LEADING CAUSE of disease related deaths in children in the United States and we parents shoulder the burden of raising this awareness, and money to fund finding actual solutions for these children. They've been suffering and dying in obscurity for decades because, "the numbers aren't great enough for investors." Yes, in the wealthiest country in the world.

Send a message to your Member of Congress that we need their help in raising awareness to this well-obscured reality. Awareness and yes, sometimes a little healthy shame is a catalyst to speed a cure. https://hosted-page.civiclick.com/?campaign_ref=5277

D I P G A W A R E N E S S R E S O L U T I O N E X P O S E D

D A R E in 2024…

https://hosted-page.civiclick.com/?campaign_ref=5277
Short link: bit.ly/dare-2024

ASK that the needs of the people are represented by our government.
ACKNOWLEDGE that special interests are currently represented.
UNDERSTAND that the sovereignty of the individual citizen has been sold to corporate power in a long series of legal manipulations including the Citizens United ruling.
INSIST that we prioritize medical assistance and research into cures for our nation’s children, and for those who need it most.

INSIST that our House of Representatives reexamine a 1990s House rule in light of the urgent medical needs of our children. The rule against ‘commemorative’ days was a rule against wasting time on the House floor for matters which do not serve the immediate needs of our citizens. For 8 years, the unknown to most and unspoken rule has ensured that, despite the efforts of bereaved parents and families of the afflicted, and 3200 more deaths from DIPG alone, the facts about childhood cancer would remain obscured. The needs of the people remain obscured amid the demands of political power and corporate greed; many of our laws are now loopholed to allow for this siphoning of power. We must begin to actively reject this trend if we wish to see our nation’s ideals to be honored and followed, if we ever expect to have sovereignty as citizens. It is up to US. Our choices matter. You matter. Together, we can accomplish anything. Let’s begin by having our House of Representatives acknowledge the urgent, unmet medical needs of children with cancer. Awareness accelerates a cure. This is our .

Thank you.

White Paper: Modernizing Pediatric Clinical Trials for the 21st Century Cures Act

Marcelo Ortigao's Story | The Portrait Project by Mural Health DIPG is the deadliest of all pediatric tumors/cancers and robs patients of every essential motor function, including locomotion, speech, and breathing, while maintaining cognitive functions. The devastating effects of DIPG often prevent patients from qualifying for or being included in clinical tria...

Part II: "DIPG is not a rare disease. It's a neglected disease."

Marcelo Ortigao's Story | The Portrait Project by Mural Health If you haven’t already, I encourage you to read Part I of my story here, for important context on my late daughter Juliana, and her grueling experience in a pediatric clinical trial for DIPG.

https://pcrf-kids.org/2023/09/22/national-cancer-institute-highlights-advances-in-pediatric-cancer-research/

Advances in Pediatric Cancer Research - Pediatric Cancer Research Foundation The National Cancer Institute released a roundup of blog articles highlighting exciting developments in pediatric cancer research from the past year. Learn more on our blog!

They're back, under the wing of the Cancer Moonshot! The 2nd Annual White House Childhood Cancer Forum...

RIP to our beloved California Senator, Dianne Feinstein. It's a sad day for California, but a proud moment for public servants--especially women advocating for underserved children...

In case you missed it, the PNOC Patient/Family Informational Webinar is now available!

PNOC DIPG / DMG Patient Family Informational Webinar, Sept 27, 2023 The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium with centers within the United States, Europe, Asia and Australia. We a...

https://jacksangelsfoundation.com/?p=7560

Historic Inaugural Childhood Cancer Prevention Symposium, Washington, DC, October 25 and 26, 2023 – Jack’s Angels Foundation Historic Scientific Meeting to Focus on the Prevention of Childhood Cancer as Incidence Rates Continue to Rise Dramatically

Live on TogiNet.com right now! This evening we will have the podcast available by link...

IT'S LIVE! Listen to PREP4Gold's Jonathan Agin, Teen Cancer America's Simon Davies, and Andrew McDonough B+ Foundation's Joe McDonough share insight into this amazing, much needed first time event!!!

Coming Sept 27! Register here: https://us02web.zoom.us/webinar/register/1016951665062/WN_XSHpaoRYTrqhmS_cnAipXw

Truly bittersweet. I remember 8 years ago discovering that little Michael Mosier passed away, 2 weeks after inspiring one of the biggest and best teams for the Race for Hope, in 2015. I was devastated that he died on my birthday. The 2nd introduction to the resolution began the designation of May 17 on the resolution, to support the amazing DIPG across the map effort with so many states making proclamations on that day because of the work of the Michael Mosier Defeat DIPG Foundation. You must also know that Debbie Dingell co-led the original resolution in 2016 in support of Chad Carr and the Carr family; we are indebted to the ChadTough Defeat DIPG Foundation for their continued influence in this arena and also for their unparalleled efforts in research development.
And then of course there is The Cure Starts Now, who has led the effort to find a cure since the late 2000s and which has set the barre for us all. Little Clare Ronnebaum has inspired David Joyce (R-OH-14) to lead with this resolution since 2017.
And to all who have joined the movement and taken it in your own directions, all for the better, all for getting closer to finding a cure: Thank you. This movement is for our entire community, of our entire community, for all of the children have inspired our efforts to advocate for this resolution and to use it as a platform for education, compassion, and change.

A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day – Jack’s Angels Foundation May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day....

Please share in the childhood brain cancer groups! We have 8 days to get Members of Congress to sign the Dear Colleague Letter..

DEADLINE for signatures March 22, Dear Colleague letter for FY24 language for targeted funding of DIPG/Childhood Brain Cancer – Jack’s Angels Foundation We have a unique opportunity to support targeted funding for DIPG and Pediatric Brain Cancer in the FY24 Funding Bill. While the DIPG/Pediatric Brain Cancer Awareness Resolutions will be re-introduced this year as a supportive measure and an ongoing campaign for greater awareness of the urgent, unme...