Better Together Lupus

Discussing the financial as well as the hidden costs of having a chronic illness and we’ll be exploring real ways to navigate getting support with your medical needs.

Season 3, Episode 2
In this episode of "Better Together: Sharing Our Lupus Stories," hosts Shanelle Gabriel and Dr. Micaela Bayard explore the complexities of living with lupus, featuring guests who share their personal experiences and insights.

On this episode, we celebrate the success of 2 Phenomenal Women! They are Lupus Warriors who continue their missions to support and inspire their fellow Lupus Advocates, even while facing serious health crises.

In addition, we recognize Lupus Caregivers: people who have
committed their time and energies to Lupus Patients, and to raising lupus awareness.

1 in 4 adults has two or more chronic health conditions (most commonly heart disease, stroke, cancer, type 2 diabetes, obesity and arthritis). That means a good percentage of the workforce has some sort of chronic
disease, or will develop one in the future.

On this episode, Lupus Warriors share how they took charge of their
workplace and their careers. And, we give tips on how to best manage Lupus + Worklife.

Since the revelation of the 40-year U.S. Government-conducted Tuskegee Institute Syphilis Study, Black Americans in particular have been reluctant to participate in experiments and clinical trials. So much so that it’s a regular topic of discussion in the research field and the mythology has even moved beyond medical science, into pop culture.

In this episode we get into the origins of U.S. Experimental Testing aka to some as “Tuskegee”. We take a deep dive into the reasons why Black Americans won't participate, the impact of Black people’s absence in clinical trials, and how we might turn around the generational fear and distrust.

We will take a look at the recent Netflix movie, “They Cloned Tyrone” as the most recent (pop culture) example of how “government experiment conspiracies” have become a part of Black America’s belief system.

When it comes to our health, we should all have the opportunity to access and afford quality health care!

Better Together Lupus is the home and gathering place for lupus patients to share their stories on managing the disease and living their fullest lives! Join us LIVE at 6pm ET, Tuesday, August 8th when we discuss “Pregnancy and Family Planning!"