Sterling's Epilepsy & HH Brain Tumor Storm
Follow along Sterlings storm as his fights catastrophic epilepsy and rare HH brain tumor ⚡️🌈 Hi! I am Macy, a 28 year old mom to 3. Onfi - 10mg 2x day = 2pills.
Hurricane Sterling is my 7 year old epilepsy warrior and a patient at Cleveland Clinic. Diagnosed in Feb 2020 just before covid lock down, at 6 years old, our worlds have been completely turned up side down. I never expected how detrimental this disease would be to my marriage, my friendships, my job, my mental health, my other kids, and my poor helpless son. We lost everything to our names in 20
🐣
We haven’t been here in awhile 🙈
Sterling's Epilepsy & HH Brain Tumor Storm was admitted to Toledo Childrens Hospital today. We are doing some testing and checking in on his brain. He has had some very rough days at school lately. Fingers crossed for a calm few days here and that everything is going well in his noggin. 🤞
Twin day 👯
Sterling's Epilepsy & HH Brain Tumor Storm
A year 🫶
So proud of Sterling's Epilepsy & HH Brain Tumor Storm! He had a great first day of 😃4th grade 🫶
Hi Friends! We have a surgery date! Sorry I have been so quiet, but things have been pretty rough for us. Sterling is suffering from severe seizures, behavioral problems, and regression. It is chaos, struggle, and heart break 24/7. Sterling's Epilepsy & HH Brain Tumor Storms brain surgery to remove a rare HH brain tumor deep in his brain, is Tuesday, Oct. 4th. We will be headed to Cleveland Clinic & the Ronald Mcdobald house, Wednesday Sept. 28th. He will have week long testing, specialist doctor appointments, and imaging done to prepare for his upcoming surgery. He will be having Live MRI robotic assisted laser surgery to remove this very rare tumor at Cleveland Clinc. This surgery is pretty scary for us, due to the complexity and rarity of the tumor.
Thank y’all for all the continued support and prayers. We would have never been able to make it this far without everything y’all have done for us. We are so so thankful. I promise to keep y’all updated every step of this storm we are weathering.🌈
Cards of encouragement/ Get well cards can be sent to:
Sterlings Epilepsy Storm
5517 Douglas are. Apt. 4
Toledo, Ohio 43613
Donation links:
https://www.facebook.com/donate/871960327126728/?fundraiser_source=external_url
PayPal- [email protected]
Zelle- [email protected]
Cash app- $macycourville
Venmo- Macy-Courville-1
Amazon wishlist link:
https://www.amazon.com/hz/wishlist/ls/11AK8GK36V135?ref_=wl_share
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