Patients Rising

Being a dementia caregiver is no small task, but together, we can share tips and uplift each other. 💙 What’s one self-care ritual you swear by? Tell us in the comments, and remember—small acts of self-care make a big difference. Join our Dementia Caregivers Community to connect with others who understand. https://hubs.ly/Q02WH9L50

Dementia Caregivers Community A private, supportive community where you can connect, share, and learn alongside others who truly understand what you’re going through.

To kick off National Family Caregivers Month, we’re launching the Dementia Caregivers Community: https://hubs.ly/Q02Wzltc0

This supportive space is for caregivers to find resources, share their journey, and connect with others. Let’s celebrate the dedication of family caregivers together. Join us! https://hubs.ly/Q02WzlDr0

Having to call them is terrifying enough in the first place🙃

👻Got any of your own horror stories to share?🎃 - Tell us down in the comments👇

This week is invisible disability awareness week so this is a friendly reminder not to judge a disability by its visibility.

What makes your condition flare? Long phone calls and social functions leave me bedridden for at least 2-3 business days. Tell us in the comments below 👇

And remember whether your condition is visible or not—you are valid, we see you, and you are loved🧡✨

In many states, lawmakers are weighing the possibility of introducing a “Prescription Drug Affordability Board” (PDAB). This board, composed of 'experts' tasked with regulating drug prices, might initially appear beneficial. However, it could have significant negative implications by empowering insurance companies to deny claims and reduce coverage for essential medications on an even greater scale. It is absolutely crucial for patients to actively oppose this legislation and urge lawmakers to reconsider and halt the progression of this bill.

Is your state considering PDAB legislation? Explore our map below and stay informed about opportunities for advocacy📣

Join us on October 24th at 7:00pm (EST) for our State Town Hall, where we'll dive into crucial discussions on Charity Care (340B) Reform, the establishment of Prescription Drug Affordability Boards, and the inclusion of Safe Repair carveouts for medical devices in Right to Repair legislation.

Why Attend?
🔸Gain insights from leading healthcare policy experts and patient advocates
🔸Participate in Q&A sessions with each panel
🔸Network with like-minded individuals passionate about improving patient care
🔸Learn about concrete ways to get involved in advocacy efforts

Don’t miss this opportunity to be part of the conversation shaping the future of healthcare policy. Register now at the link below to secure your spot at this informative and empowering event🧡✨

🔸https://hubs.ly/Q02TS9TT0

The best offense is a great defense 🧼💯

Important Medicare Update‼️

For the first time ever, Medicare beneficiaries enrolled in Part D plans will enjoy two exciting new benefits designed to make their medications more affordable:

🔸A cap on out-of-pocket expenses, set at $2,000 in 2025

🔸The flexibility of the new Medicare Prescription Payment Plan (MPPP)

With the MPPP, individuals can conveniently spread out their prescription drug costs over the year without worrying about interest or fees. Beneficiaries can begin enrolling in the MPPP through their Part D plan during the Open Enrollment period from October 15 to December 7, 2024.

🗓️Mark your calendars and get excited for another Patients Rising Town Hall✨

This time we will be diving into a series of policy discussions on charity care reform, price setting schemes like Prescription Drug Affordability Boards, and Safe Repair Carveouts for Medical Devices in Right to Repair bills.

Stay tuned for more information!

Charity care is meant to be a lifeline, but it's falling short for those who rely on it most. Millions of Americans are struggling to afford healthcare, but instead of channeling savings back into helping low-income or vulnerable patients, the funds end up benefiting hospitals in wealthy areas while underserved communities are left behind. Join us in our mission to make charity care truly charitable—sign our petition today!

🔸https://hubs.ly/Q02T0tDD0

…..👀 Who? Definitely not me... 🍟🍔🙃

In ten states, unelected boards have been given the power to restrict your access to crucial medications, all in the name of cutting costs. Yes, you read that right🙃

Here at Patients Rising, we firmly believe that political appointees with no accountability should never have the final say in your healthcare decisions. Stay connected with us for updates and ways to take action🧡✨

This may not be the big update you've been hoping for on Pharmacy Benefit Managers (PBMs), but it's an exciting step in the right direction. The more these healthcare conglomerates divide, the better off we are.

I’m definitely “not” going to google every last lab value👀

Did you know that medical debt is one of the leading causes of financial stress in the US? But there's hope! Meet Dollar For - a fantastic resource that helps people crush their medical bills. Have you or someone you know struggled with medical debt?💸

If you're experiencing hardship due to medical debt, visit the link below to see if Dollar For can erase your debt today🧡✨

🔸https://hubs.ly/Q02RzgTJ0

As we approach the lame duck session of Congress, we want to take some time to educate you on what to expect, how you can be involved in passing transformative policy, and what the legislative landscape looks like. This session is a pivotal time for patient advocacy.

We’re focusing on patient-centered reforms at the federal level, including Pharmacy Benefit Manager (PBM) reform and other key policies. RSVP now: https://hubs.ly/Q02RhPPP0

Did you know that September is also Pain Awareness Month? It's time to break the silence and remove the stigma around pain management. Everyone's pain is valid, and talking about it can lead to better support and solutions. Some patients find relief from medications, some from procedures/injections, and others may find relief from less conventional options. How do you manage your pain, and what tips can you share with others? Let's start a conversation and support each other!

If you are someone who is struggling with any aspect of pain management, we encourage you to reach out to our Patient Helpline or the American Pain and Disability Foundation. Whether you're unsure of how to speak to your doctor about medications, or maybe you're having trouble with your pharmacy - they have the resources to get you the help you need. Check them out at the links below🧡✨

🔸https://hubs.ly/Q02R0zp_0
🔸https://hubs.ly/Q02R0svB0

Sometimes it just feels good to be right😎

But on the off chance your employer is giving you a hard time, whether it's due to misunderstandings about your capabilities or a lack of awareness about your rights, or if you're newly diagnosed with a condition and aren't quite sure how to ask for job accommodations that will help you perform your duties effectively, be sure to check out The Job Accommodation Network (JAN) at the link in our bio. JAN is the leading source of free, expert, and confidential guidance on workplace accommodations, offering personalized solutions and resources to ensure you can thrive in your professional environment🧡✨

🗓️Mark your calendars for Thursday evening, September 26, and join us for an engaging Patients Rising Town Hall Meeting🔔

Here's what we'll dive into:
🔸 The upcoming lame duck session of Congress

🔸The ins and outs of the negotiation process

🔸 Our strategy to champion patient-driven policies at the federal level - Such as Pharmacy Benefit Manager Reform

We'll be joined by a panel of policy experts and patients who will share their insights and experiences. Don't miss out🧡✨

🌟Register here: https://hubs.ly/Q02QwhBl0

Patients Rising’s October Town Hall Meeting will kick off a dynamic series of policy discussions and set the legislative agenda on crucial issues like charity care reform, Prescription Drug Affordability Boards, and Safe Repair Carveouts for Medical Devices in Right to Repair bills.

Register Here: https://hubs.ly/Q02Qbvlv0

🌍On , we honor the commitment of all healthcare professionals who strive every day to ensure patient safety. Their dedication is something we cherish. That priority is something we also look to uphold with groups like Safe Repair Project. There are more than 24K+ medical devices critical to a properly functioning healthcare system. So smart policymaking that “looks around the corner” for any potential threat to their integrity is key. Learn more: https://hubs.ly/Q02Q696n0