Cystic Fibrosis Foundation - Iowa Chapter

We want to take a moment to thank Pure Wellness Chiropractic + Acupuncture for being a Purple Rose Sponsor for our Corks & Kegs event! Thank you for your continued support for our mission to end CF.

Join the Cystic Fibrosis Foundation at Corks & Kegs on September 21st at the Des Moines Heritage Center.

Tickets can be purchased here: https://events.cff.org/corksandkegsia

Thanks to people like you and our national corporate sponsors, AbbVie and Vertex, we have made incredible progress in our search for a cure for cystic fibrosis. We are confident that one day, no one will lose a loved one to CF.

Named after the pioneering CF researcher and physician, The Paul di Sant’Agnese Legacy Society is a special group of CF Foundation supporters who have made a lasting commitment with a gift in their estate plans.

Many families and friends do this by leaving a $ or % gift to the Cystic Fibrosis Foundation in a will or trust, or by naming the Foundation as a beneficiary in their IRA, 401K, DAF or life insurance policy.

Join our community of Legacy Society members today by visiting: cff.org/legacygiving

✨ Sneak Peek Alert! ✨👀

We’re excited to give you an exclusive first look at some of the incredible auction items at our upcoming 20th Annual Corks & Kegs! Shine in your best purple attire and experience an unforgettable event. We’re excited to see you there!

📅 Date: Saturday, September 21, 2024
🕑 Time: 6:00 PM - 10:00 PM
*VIP experience begins at 5:00 PM (For more details, contact Drew at [email protected])
📍 Venue: Des Moines Heritage Center
120 E 5th St, Des Moines, IA 50309

🌟 Early Bird Tickets: $100
*Available until 8/24/24 (Regular Price: $120)

Get your tickets today: https://events.cff.org/corksandkegsia

⏰ Just 2 Weeks Left for Early Bird Tickets! ⏰

Don’t miss out on your chance to snag early bird tickets for our 20th Annual Corks & Kegs! With only 2 weeks remaining to secure your spot at a special rate, now is the perfect time to grab your tickets and be part of this unforgettable event. Come celebrate with us in your best purple attire and enjoy a selection of aromatic wines, craft-brewed beers, artisanal spirits, and bites from local vendors, all while supporting the fight against CF.

📅 Date: Saturday, September 21, 2024
🕑 Time: 6:00 PM - 10:00 PM
*VIP Experience begins at 5:00 PM (For more details, contact Drew at [email protected])
📍 Venue: Des Moines Heritage Center
120 E 5th St, Des Moines, IA 50309

🌟 Early Bird Tickets: $100
*Available until 8/24/24 (Regular Price: $120)

Get your tickets today: https://events.cff.org/corksandkegsia

Stay up-to-date on the latest clinical trials as they open for enrollment and publish results. Sign up for clinical trial email alerts to be notified of all studies as they become available, or customize your alerts based on the studies that are important to you.

Sign up for email alerts here: https://apps.cff.org/trials/email-alerts/signup

We’re thrilled to spotlight Ray Poole, one of our 2024 Corks & Kegs guest speakers. In the latest CFF blog post, Ray reflects on navigating his wife Rebecca’s health challenges. What began as a struggle has transformed into a journey of uncovering unexpected positives.

Don’t miss Ray at Corks & Kegs—grab your Early Bird Tickets here: https://events.cff.org/corksandkegsia

Read his inspiring article here:

Supporting My Wife Through Unexpected Health Challenges I gained a new perspective on my wife’s kidney issues and realized the delays and complications actually brought unexpected positive outcomes, leading me to reevaluate what represents good and bad news in our journey with cystic fibrosis.

Did you know that you can ask to participate in any clinical trial you qualify for, regardless of location? Most trials offer reimbursement for expenses, including travel, lodging, and meals.

Learn more about the logistics of study participation here: https://www.cff.org/research-clinical-trials/time-travel-expenses-and-other-logistics

🎉✨ Grandparents' Day Celebration! ✨🎉

We’re excited to invite all Grampions to a Grandparents' Day Celebration on Monday, September 9 at 6pm EST / 3pm PST!

Join the foundation for an evening of fun with breakout sessions and activities!

📅 Date: September 9
🕕 Time: 6pm EST / 3pm PST
✨ Register here: https://engage.cff.org/grandparentsday

🚨 Early Bird Ticket Alert! 🚨

Don’t miss out! There are now only 23 days left to snag our early bird tickets at a discounted rate.
Come celebrate with us in your best purple attire at our 20th Annual Corks & Kegs for an evening you won’t forget! Enjoy a selection of aromatic wines, craft-brewed beers, artisanal spirits, and bites from local vendors, all while supporting the fight against CF.

📅 Date: Saturday, September 21, 2024
🕑 Time: 6:00 PM - 10:00 PM
*VIP Experience begins at 5:00 PM (For more details, contact Drew at [email protected])
📍 Venue: Des Moines Heritage Center
120 E 5th St, Des Moines, IA 50309

🌟 Early Bird Tickets: $100
*Available until 8/24/24 (Regular Price: $120)

Get your tickets today: https://events.cff.org/corksandkegsia

Did you know August is National Make-A-Will Month? It’s never too early to plan for the future. An up-to-date estate plan is crucial for managing assets and ensuring that your wishes are honored. It also provides peace of mind, knowing that your loved ones are cared for and that any charitable causes you value are supported.

By adding the Cystic Fibrosis Foundation to your estate plan, you’re not just donating – you’re helping transform lives now, tomorrow, and for generations to come.

Learn more about legacy giving or notify us of your estate plans at cff.org/legacygiving

✨ Celebrating International Friendship Day! ✨

Today, let's spread some love and gratitude to all our amazing friends around the world who make life brighter every day. Tag a friend who has been there through thick and thin, and let them know how much they mean to you!

Are you a high school, college, or graduate student aged 18 or older?

We encourage you to register to the Tomorrow’s Leaders College Program! This virtual two-week program held Tuesday and Thursday evenings at 7 p.m. ET allows students to build leadership skills, learn the story behind cystic fibrosis care, and network with others while making a difference for the CF community.

Service learning or volunteer hours may be earned for completing this course.
Don’t miss out — secure your spot by registering before July 26th! ✨

Register here: https://engage.cff.org/TLcollegeprogram?_ga=2.193327405.1656250054.1716210646-1070321985.1676663681

✨ Early Bird Ticket Sale Alert! ✨

Join us at our 20th Annual Corks & Kegs for an unforgettable evening featuring aromatic wines, craft-brewed beers, handcrafted spirits and delicious bites from local vendors all in support of finding a cure for CF! Grab your tickets now and join us in person as we celebrate our progress and unite to continue our mission.

📅 Date: Saturday, September 21st, 2024
🕑 Time: 6:00 PM-10:00 PM
*VIP Experience starts at 5PM
(Contact Drew at [email protected] for more information)
📍 Venue: Des Moines Heritage Center
120 E 5th St, Des Moines, IA 50309

🌟 Early Bird Tickets: $100
*Until 8/24/24 ($120 Regular Price)

Get your tickets today: https://events.cff.org/corksandkegsia

Happy World Emoji Day! 🎉✨

Drop your favorite emojis in the comments below and let's celebrate the joy they bring to our conversations! 🌟

We want to say thank you to Jeff & Jodi King for supporting our Corks & Kegs event as a Cure Sponsor! We are in this together and will make CF stand for Cure Found!

Join us in celebrating all we have accomplished and support our local community on Saturday, September 21st at the Des Moines Heritage Center!

More information can be found here: https://events.cff.org/corksandkegsia

We'd like to express our sincere appreciation to GreenState Credit Union for their steadfast support as a Community Sponsor at our 20th Annual Corks & Kegs!

Come celebrate our accomplishments, find inspiration to drive us forward, and bolster our local community on Saturday, September 21st at the Des Moines Heritage Center.

For further information, please visit: https://events.cff.org/corksandkegsia

Happy 4th of July! Our office will be closed on July 4th and 5th. We will return on Monday, the 8th. Enjoy the holiday and stay safe! 🎆

For the month of July, we kindly ask for your donations of toys and activity items to provide comfort to many CF patients during their treatments at care centers. You can help by buying new toys from our Amazon registry or sending them to our office at 1501 42nd Street, Suite 230, West Des Moines, IA 50266.

View our Amazon registry here: https://www.amazon.com/registries/gl/guest-view/HDMTA66PFXJI

Join us for the 20th Annual Corks & Kegs—a night filled with wines, beers, spirits, culinary delights, and an exciting live auction. This incredible event supports the CF Foundation and its mission to find a cure cystic fibrosis. Don't forget to dress in your finest purple attire!

📅 Date: Saturday, September 21st, 2024
🕑 Time: 6:00 PM
📍 Venue: The Des Moines Heritage Center, 120 E 5th St, Des Moines, IA 50309

🌟 Early Bird Tickets: $100,
*Until 8/24/24 ($120 Regular Price)

Get your tickets today: https://events.cff.org/corksandkegsia

Our office will be closed on Wednesday, June 19th, in recognition of Juneteenth. We will resume normal business hours the following day.

Learn more about the history of Juneteenth here: https://www.nytimes.com/article/juneteenth-day-celebration.html

Eileen McConville, mother of an adult with CF, shares why she gives monthly as a member of the 65 Roses Club, and how her gift makes a difference year-round.

“I wanted a way to make regular donations without challenging my budget. The 65 Roses Club makes it easy for donors to choose an amount that fits their ability to give. Even a small monthly amount adds up to make a big difference.”

We will not rest until CF stands for Cure Found. Give monthly and join the 65 Roses Club
today: https://give.cff.org/65rosesclub/donaterbref=65RD2303&donate=35&unitid=Iowa

In 2023, the Cystic Fibrosis Foundation celebrated continued achievements and milestones toward our mission of curing CF. With your support, we are transforming what it means to live with cystic fibrosis. Visit https://cff.org/AnnualReport to read our highlights throughout the year.