Canadian PBC Society

Check out this video to learn more about the benefits of participating in clinical trials.

Nadege Gunn, MD - The Real Deal about clinical trials: You are not the Proverbial Guinea Pig. * Includes information on trials, regulations, the need to participate and benefits to patients who do enroll. Also includes a panel discussion with 3 patie...

https://www.cbc.ca/listen/live-radio/1-56-st-johns-morning-show/clip/16079903-a-maddox-cove-woman-turned-social-media-help

A Maddox Cove woman has turned to social media to help her find a lifesaving liver doner match | St John's Morning Show | Live Radio | CBC Listen The Morning Show's Katherine Crummey sat down with Janet Hong to discuss her journey, and her next steps, after being diagnosed with Primary Biliary Cholangitis thirty years ago. It's a disease which attacks the liver, and has left Janet requiring a liver transplant. She has turned to social media t...

Many of you know our friend Janet who was diagnosed with PBC almost 30 years ago. Now she is awaiting transplant. Please send positive energy her way.

A Maddox Cove woman has turned to social media to help her find a lifesaving liver doner match | St John's Morning Show | Live Radio | CBC Listen The Morning Show's Katherine Crummey sat down with Janet Hong to discuss her journey, and her next steps, after being diagnosed with Primary Biliary Cholangitis thirty years ago. It's a disease which attacks the liver, and has left Janet requiring a liver transplant. She has turned to social media t...

Important Information for PBC Patients Regarding OCALIVA (OCA) European Medicines Agency (EMA) Ruling

Obeticholic Acid in Europe, USA and Canada Learn more

Congratulations to the EMPOWER team on this tremendous success and their commitment to programs that help patients live well with PBC. Registration is now closed for this program.

Beyond treatment: online wellness program ‘a game-changer,’ say patients People living with chronic health conditions learn self-care habits like breathing, meditation and mindful movement in the 12-week online EMPOWER program — and they say it’s “a game-changer” for improving their wellness.

Another great video to learn more about PBC itch.

Marlyn Mayo, MD - Managing PBC Itch - Let's Start From Scratch * Talks about PBC itch, tips to deal with it.*Explanation of current treatments and new ones currently in trials

Learn more about PBC from worldwide experts!

John Vierling , MD - Diagnosis and Treatment of PBC 2024 PBCers Conference Phoenix AZ *Review key diagnostic criteria for PBC - emphasizing newer roles for PBC-specific Anti-Nuclear Antibodies (ANAS) gp210 and sp100*Discuss the role of biopsy...

Today a new treatment for PBC was approved in the USA. Hoping Canada will soon follow. For people living with primary biliary cholangitis (PBC), the symptoms they experience can have a debilitating impact on everyday life. Carol, who is an advocate for PBC, shares her perspective on unmet needs and progress for the community. Read more: bit.ly/3RleBqk

Canadian PBC society at - the European Liver Congress! Attended by over 7,000 from around the world. Canadian PBC Society was well represented in research posters, interviews and panels. We are thrilled that patient voices are now considered more than ever. Normalizing blood work, treating symptoms, assessing risk and improving the patient/specialist discussion were all highlighted.

Last chance to sign up for this wonderful program. Participants have given this program rave reviews including benefits in fatigue, stress and feeling more energized! Registration closes May 31st. Don't miss out - register now: https://empower-program.com/pbc/

Wonderful evening in Moncton with Dr Meaghan O’Brien. Happy to get together with old friends and meet new friends.

Great turnout for our PBC dinner meeting in Halifax. Thanks to our special guest speaker Dr Magnus McLeod!

Last night in Ottawa wonderful panel of experts answered questions in a nuanced and thorough manner. Greatly appreciated by all who attended! Thank you Drs Gotleib, Tan, Moini and Onofrio.

Join us for a special PBC dinner/speaker meeting in Ottawa. Bring a friend. Tickets complimentary, registration required.

Register now! Learn more

Join us in Halifax for a PBC Dinner Speaker Meeting on May 14th 6:30pm Bring a guest. Tickets complimentary. Registration required.

Register now! Learn more

Don't miss this opportunity you and a guest to join us for a PBC Dinner/Speaker meeting. Have all your PBC questions answered and meet others with PBC. Tickets complimentary, registration required.

Register now! Learn more

Happy International
Did you know 9/10 people diagnosed with are . Share if you support a friend, mother, daughter, sister, grandmother or partner with - Primary Biliary Cholangitis is a rare autoimmune liver disease. Its main symptoms are & and it often goes undiagnosed for years.

PBC is a rare autoimmune liver disease. Help spread awareness for all 300 million people worldwide living with a rare disease. Spread the word to help raise awareness and learn more about PBC: www.pbc-society.ca

Come one, come all!

Join us on Feb. 29th for CORD’s March on Hill!

Let’s show government that our lives matter!

📢 Attention Rare Disease Community:
On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our (which calls on decision-makers to released promised funding for rare disease treatments), we are organizing a march on Parliament Hill.

The goal is to make some noise and let leaders in Ottawa know that they need to release promised funding for rare disease treatments without delay!!

If you’re in the Ottawa area (or planning to travel) and would like to join us for our march on Parliament Hill, here are the details:
📣 When: February 29th, 10:15-11:00am
📣 Where: Centennial Flame outside Parliament (111 Wellington Street)
📣 Logistics: We are meeting at the Marriott Hotel (100 Kent Street) leaving at
10:15am and walking together to the Centennial Flame outside of Parliament, directly in front of the Peace Tower / Centre Block. If you have mobility challenges or can’t make it to the hotel for 10:15, please meet us directly at the Centennial Flame.
📣 Who can join? Anyone and everyone! Tell your friends and members of your community.

The more of us there are, the more noise we’ll make! Parliamentarians will be joining us as well and media, so we are hoping for coverage in the media and statements in the House of Commons on Thursday.

We hope to see you there! If you can’t make it out to the march, but want to help, please follow the conversation on social media ( ) and amplify our message by liking and retweeting posts from the Canadian Organization for Rare Disorders (X.com , Facebook ) and – importantly – sharing our “take action” campaign through www.fightforourlives.ca

Let's unite as a community and show Canadian governments that our lives matter!

If you are planning to be in the Miami FL area in April consider this one day PBC educational meeting with Dr. Cynthia Levy

Patient Education Day: Advances in Hepatobiliary Disease 2024 - University of Miami Division of CME - Continuing Education (CE) University of Miami Division of CME, Patient Education Day: Advances in Hepatobiliary Disease 2024, 4/13/2024 8:30:00 AM - 4/13/2024 2:00:00 PM, The Patient Education Day of the conference will be dedicated to patients and patient advocates. Expert physicians, healthcare providers, pati...

Great news another treatment option getting closer to reaching PBC patients. Shows the importance of participating in clinical trials that ensure treatments are safe and effective.

Breakthrough in managing liver-related autoimmune disease At UHN, we strive to deliver Compassionate Care & Caring. Learn more about the services and supports that are available to you throughout your journey.

There are lots more Ask the Doctors questions & answers. For PBC clinical trials information see link in comments.

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For even more information on following a healthy diet for PBC see our PBC nutrition page: https://pbc-society.ca/pbc-nutrition/

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UDCA, URSO, ursodeoxycholic acid, is supplied/made by more than 100 companies and comes in various forms and doses. Check with your specialist and talk to your pharmacist if you have questions.

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Are all your health issues related to your PBC? Learn more from PBC experts who answer your PBC questions.

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Did you know on our website we have over 50 PBC patient questions answered by PBC experts. See the full answers to this question and many more!

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Did you know PBC itch may be adding to your fatigue. Talk to your PBC specialist - you have options!

PBC & Me - PBC itch Learn more about PBC itch - which is distinct from a rash or allergic reaction. This video will help you understand PBC itch its affects, treatment and dail...

ATTENTION: Canadian PBC Patients
1. Register by February 29 ($80 US)
2. Apply for a travel scholarship. ($350 US) from PBCers org and get an additional ($100 CAD) from the Canadian PBC Society
3. Receive scholarships at the conference.

Learn more Register now

Excellent news! Always wonderful to have more treatment options for PBC patients. Hoping Health Canada application will soon follow.

CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from…...