MND Scotland

The financial impact of can be overwhelming. We provide assistance to help you and your loved ones 💙

Our experienced team can:

📌 provide confidential advice and support to navigate the benefit system.
📌 provide advice or support moving from employment to benefits.
📌 help you claim the benefits and financial support you’re entitled to.

We also offer a variety of grants to support both individuals diagnosed with MND and their carers.

Get in touch to find out how our team can support you and your family:

🔹[email protected]
🔹0141 332 3903
🔹www.mndscotland.org.uk

Looking for a simple way to contribute to a future without MND? 💙

We are the only charity in Scotland providing direct support to everyone affected by an MND diagnosis. We never take the incredible generosity of our supporters for granted.

There are many ways that you can help contribute to our vision of a future without MND and for those affected by MND. One way to help our cause is by leaving a gift in your Will.

Whether this is a monetary gift, a special gift, or a residuary gift, all we ask is once you’ve considered those close to you, please consider including a gift in your Will to support MND Scotland.

If you want to make a Will or update one you already have and would like to include MND Scotland, please visit our website to find out how you can leave a legacy for free:

https://bit.ly/3YGSYVY

We understand that tonight’s episode of Coronation Street may have been a difficult watch for anyone affected by MND. We’re here to support everyone impacted by an MND diagnosis in Scotland.

Anyone that needs support can get in touch with our team via [email protected] or call 0141 332 3903.

Tonight’s episode of Coronation Street may be a difficult watch for people affected by motor neuron disease (MND) as it’s Paul Foreman’s final episode.

The portrayal of a character with MND has raised awareness of the impact of this brutal disease but we appreciate it will be a challenging watch for some people.

For those able to watch, tune in to STV from 8pm.

We are @ Grub Café, Aberdeen Science Centre today for our first in a series of LEARN events taking place across Scotland. It's great to see so many people come along - we hope you find it worthwhile and look forward to taking part in discussions around MND research 💙

And that's a wrap! 🥳 From the team at MND Scotland, thank you so much to everyone who came along to the first in-person Fun Run in over 5 years today! It was lovely to meet so many of you - we really appreciate all of your support 💙 The weather was on our side, and we hope you all enjoyed it as much as we did. Please keep an eye out for photos from today's event over the next few days!

The MND Scotland Fun Run is finally here! 🤸🕺🚶 Whether you’re running, walking or cheering, your participation helps make a difference to those affected by motor neuron disease 💙 Get ready for an amazing day filled with energy, community spirit.

We look forward to seeing some of you soon and please feel free to tag MND Scotland on any photos you take from today’s event!

Let’s make it a day we won’t forget! 😍

❗ Just 1 day to go until the MND Scotland Fun Run - we can’t wait to get the MND community back together in person! 😍

We are overwhelmed with the response we’ve received. Thank you to everyone who has signed-up!

Here’s a few reminders for those joining us tomorrow:
👉 Time: the site opens at 10am, warm-up is at 10.45 and race starts at 11am - please go directly to the registration desk on arrival
👉Location: Lochore Meadows Country Park, Fife
👉Route: The 5k route will take in the old Pit head, woodland terrain and along the shorefront of the loch
👉Facilities: Toilet facilities are available within the Willie Clarke Centre (ladies, gents and accessible changing rooms available)
👉Food and Drink: food and refreshments will be available to purchase from Flame Fresh Pizza. Food is also available in the Willie Clarke Centre including breakfast rolls and lunches. A small tuck shop will be available on the day.

Thank you all and see you tomorrow! 💙

On , we acknowledge and reflect on our progress and our achievements over the last 43 years in helping for people affected by MND - which have all been made possible thanks to the ongoing support and contribution from the MND community, and working with our partners around the globe to search for treatments and a cure for MND . Thank you all 💙

Connect and Contribute 🧠

We want those with lived experience of motor neuron disease to help guide research, which is why we have organised LEARN events across Scotland to provide an opportunity for researchers and people affected by MND to come together and get to know one another 💙

There’s still time to book your free place. Please see below for LEARN event near you and book your free place via the link provided:

📍Aberdeen: 09 Sep 2024, 2pm, Grub café, Aberdeen Science Centre, 179 Constitution Street, Aberdeen AB24 5TU - https://bit.ly/3MtfxpX

📍Edinburgh: 26 Sep 2024, 2pm, Bonnie and Wild Marketplace, St James’ Quarter Level 4, St James Cres, Edinburgh EH1 3AD - https://bit.ly/3X9I8qs

📍Glasgow: 03 October 2024, 2pm, The Social Hub café, 15 Candleriggs, Glasgow, G1 1TQ - https://bit.ly/3X564uT

📍Dundee: 24 October 2024, 2pm, Dundee Science Centre café, 14 Greenmarket, Dundee DD1 4QB - https://bit.ly/3M79aYT

For more information or to book your free place, please visit the MND Scotland website:

https://bit.ly/3yHsuJc

Motor neuron disease ( ) can have a huge financial impact on people living with the illness and their loved ones 💙

We can help ease the pressure you may be under and with the ones you love.

Whether you want to access benefits advice or find out more about our grants, get in touch to find out how our team can support you and your family:

🔹[email protected]
🔹0141 332 3903
🔹www.mndscotland.org.uk

The excitement is building as we are just one week away from our annual Fun Run event! 🤩

So many of you have signed-up already and we are looking forward for you to join us on this memorable, fun day for all the family.

🔷 Saturday 7 September 2024
🔷Site opens at 10am, warm-up is at 10.45 and race starts at 11am
🔷Lochore Meadows Country Park, Fife

If you haven’t signed-up yet – don’t worry! – you can still register before 6 September. Be quick though, as spaces are limited!

Registration is open and will be available until Friday, 6 September, 9am, so please sign-up now to avoid disappointment. Tickets cost £10 each for adults, £5 for children aged 5-17 years and free for children under 5 years. Free places are provided to those with MND and a companion 💙 MND Scotland t-shirts are also available to purchase.

More information and details on how to register are available via the link below 👇

https://bit.ly/4fO9GZr

If you would like to help out on the day as a volunteer, please contact our fundraising team more details:

☎️ 0141 332 3903 📨 [email protected]

Update on LEARN Glasgow event - change of venue

Thank you to everyone who has signed up to our LEARN Glasgow event in October. We are excited that so many people are interested in learning about MND research, sharing their thoughts and getting to know MND researchers and others affected by MND in Glasgow.

Due to the popularity of the event, we have decided not to hold it at the MND Scotland office and are moving to a larger venue nearby.

The event will now be held in The Social Hub café, 15 Candleriggs, Glasgow, G1 1TQ.

The Social Hub is less than a minute away from the MND Scotland office, so parking and transport information remains the same. Updated accessibility information can be found on the event web page. The event will still take place on Thursday, 03 October 2024 between 14:00 and 17:00.

For more information, or if you would like to register, please visit:

https://mndscotland.org.uk/events/mnd-scotland-learn-glasgow/

We look forward to seeing you on 3rd October!

🏃 There's only a few days left to apply for a place at the 𝗧𝗖𝗦 𝗟𝗼𝗻𝗱𝗼𝗻 𝗠𝗮𝗿𝗮𝘁𝗵𝗼𝗻 and represent MND Scotland 💙

If you are passionate about making a difference, ready to tackle 26.2 miles on 27 April 2025, and help for people affected by MND 💙 then we want to hear from you!

Complete the short survey below and tell us why you are the perfect fit to represent MND Scotland at this iconic event. The closing date is 𝟯𝟭 𝗔𝘂𝗴𝘂𝘀𝘁, and entrants will be notified on 𝟭𝟲 𝗦𝗲𝗽𝘁𝗲𝗺𝗯𝗲𝗿 with the outcome.

https://www.surveymonkey.com/r/SJ8CTSM

𝗚𝗼𝗼𝗱 𝗹𝘂𝗰𝗸! 🤞

⛳ A huge thank you to Matty Smith and everyone involved in organising the recent MF19 golf day in support of friend, Mark Ferguson and to help raise funds for MND Scotland 💙

Mark is 44, and was diagnosed with MND in 2023. We were fortunate enough to meet Mark and his lovely family earlier this year where he spoke about living with MND and the support he has received from MND Scotland (watch Mark's story here:
https://bit.ly/4fZBme7).

It was great to see everyone come together for the golf fundraiser in support Mark and MND Scotland, and we would like to say thanks to Matty, Mark and everyone involved in making it such a special day 🏌️

💙

Being affected by can bring many emotional challenges. Our free counselling service offers 12 one-to-one sessions with qualified therapists 💙

Make connections and share experiences in a safe place. Reach out and find support today.

Get in touch to find out how our team can support you and your family:

🔹[email protected]
🔹0141 332 3903
🔹www.mndscotland.org.uk

🧗 Feel on top of the world on Saturday 15 March 2025 by taking on an exciting abseil challenge for MND Scotland! 🧗

Taking place at the iconic Falkirk Wheel, abseil 100ft off the world’s first, and only, rotating boat lift, enjoying spectacular views from the top of the wheel and an adrenaline rush as you abseil down.

Tick this incredible adrenaline rush off your bucket list ✔️ while raising funds to help make time count for those affected by motor neuron disease in Scotland 💙

No experience necessary - expert guidance will be provided throughout.

It's a challenge not to be missed!

Find out more on our website:

https://mndscotland.org.uk/events/falkirk-wheel-absail/

Meet the minds behind the research 🤝

Thank you to everyone who has signed-up for one of our upcoming LEARN events.

We are looking forward to meeting you all and hearing from those with lived experience of motor neuron disease 💙 those how are living with the condition or are/have been carers or loved ones of someone with the condition - this will help ensure we fund the best MND research 📈

There’s still time to book your free place. Please see below for a LEARN event near you and book your place via the link provided:

📍 Aberdeen: 09 Sep 2024, 2pm, Grub café, Aberdeen Science Centre, 179 Constitution Street, Aberdeen AB24 5TU - https://bit.ly/3MtfxpX

📍Edinburgh: 26 Sep 2024, 2pm, Bonnie and Wild Marketplace, St James’ Quarter Level 4, St James Cres, Edinburgh EH1 3AD - https://bit.ly/3X9I8qs

📍Glasgow: 03 October 2024, 2pm, 6th Floor, Merchant Exchange, 20 Bell St, Glasgow, G1 1LG - https://bit.ly/3X564uT

📍Dundee: 24 October 2024, 2pm, Dundee Science Centre café, 14 Greenmarket, Dundee DD1 4QB - https://bit.ly/3M79aYT

For more information or to book your free place, please visit the MND Scotland website:

https://bit.ly/3yHsuJc

✈️ We'd like to say GOOD LUCK to Joanne, Gail Wilson and Sarah-Jane from Gas Certification Company Ltd. who will take a big leap and sky dive from 15,000ft today in support of MND Scotland 💙

MND Scotland is a charity close to their hearts 💙 and we are so fortunate to have their support in helping for people affected by MND.

They are asking friends, family, colleagues and customers to help them reach their fundraising target 🎯 - and we've also been told if they reach over £1500, Managing Director, Andy McNabb will take part in an Ice Bucket Challenge! 😎 🌊

Good luck team 💪 and thank you for supporting MND Scotland.

To read more about their story, or if you would like to donate, please visit the link below 👇
https://bit.ly/4cCUWtC

⏰ The countdown is on for MND Scotland’s Fun Run! 🤩

We want people of all ages and abilities from across Scotland to join in for a full day filled with fun, community spirit, and camaraderie – with the aim of for people affected by motor neuron disease.

🔷 Saturday 7 September 2024
🔷Site opens at 10am, warm-up is at 10.45 and race starts at 11am
🔷Lochore Meadows Country Park, Fife

Let’s run together and make a difference

Registration is open and will be available until Friday, 6 September, 9am, so please sign-up now to avoid disappointment. Tickets cost £10 each for adults, £5 for children aged 5-17 years and free for children under 5 years. Free places are provided to those with MND and a companion 💙 MND Scotland t-shirts are also available to purchase.

More information and details on how to register are available via the link below 👇

https://bit.ly/4fO9GZr

If you would like to help out on the day as a volunteer, please contact our fundraising team more details:
☎️ 0141 332 3903 📨 [email protected]

Wishing the best of luck to those taking part in Ride the North today 🚴and supporting MND Scotland 💙 As you pedal through the beautiful Aberdeenshire landscape, please know your incredible efforts are making a real difference to for people affected by MND. We hope you have a great day! 🌞

We’re excited to share that we’ve teamed up with Allied Mobility to provide complimentary WAVs (wheelchair accessible vehicles) for transport to and from our holiday lodges in St Andrews and Oban 🌄

We understand it can be challenging for families affected by motor neuron disease (MND) to find accessible holiday accommodation, and we want to make it as easy as possible to make memories with your loved ones with a break away 💙

WAVs are available on all new bookings to our holiday lodges, and Allied Mobility will drop off and pick up the vehicle 🚗 so you can enjoy it for the duration of your stay.

We're thrilled to be working in partnership with Allied Mobility and continue to for those affected by MND.

To find out more details, please visit our website: https://bit.ly/471fBqm

Discover the progress of MND Research 📈

Our first LEARN event in Aberdeen is fast-approaching and we invite those who haven’t booked your free place yet to do so as soon as possible.

The MND Scotland Lived Experience and Researcher Network (LEARN) has a series of local events across Scotland to build relationships between researchers and people affected by, or interested in, motor neuron disease and allow them to share knowledge and experiences 💙

📍 Aberdeen: 09 Sep 2024, 2pm, Grub café, Aberdeen Science Centre, 179 Constitution Street, Aberdeen AB24 5TU - https://bit.ly/3MtfxpX

📍Edinburgh: 26 Sep 2024, 2pm, Bonnie and Wild Marketplace, St James’ Quarter Level 4, St James Cres, Edinburgh EH1 3AD - https://bit.ly/3X9I8qs

📍Glasgow: 03 October 2024, 2pm, 6th Floor, Merchant Exchange, 20 Bell St, Glasgow, G1 1LG - https://bit.ly/3X564uT

📍Dundee: 24 October 2024, 2pm, Dundee Science Centre café, 14 Greenmarket, Dundee DD1 4QB - https://bit.ly/3M79aYT

For more information or to book your free place, please visit the MND Scotland website:

https://bit.ly/3yHsuJc

Everyone at MND Scotland is deeply saddened to hear that Euan MacDonald, founder of the Euan MacDonald Centre for MND Research, has sadly died. Our deepest condolences are with Euan’s family and friends at this difficult time.

Euan was just 29 years old when he was diagnosed with MND in 2003. Following his diagnosis, Euan and his father, Donald MacDonald CBE, committed to doing whatever they could to ensure MND research was brought to the forefront of everyone’s mind.

MND Scotland has worked closely with Euan and Donald since the inception of the centre and has funded research projects based there, including the innovative MND-SMART trial, which is the largest-ever clinical MND drug trial in the UK.

We thank Euan for everything he did to support the work of MND Scotland and for his contributions to the MND community through his efforts to raise awareness, improve accessibility for all and help drive our shared vision of world without MND. His legacy will live on through the incredible work he has done.

A message from Professor Siddharthan Chandran, Director of the Euan MacDonald Centre 21 Aug 2024: On behalf of the Euan MacDonald Centre, it is with immense sorrow that I am sharing the sad news that Euan MacDonald died today.

‼ 𝗥𝗲𝗺𝗶𝗻𝗱𝗲𝗿: 𝗧𝗖𝗦 𝗟𝗼𝗻𝗱𝗼𝗻 𝗠𝗮𝗿𝗮𝘁𝗵𝗼𝗻 𝘀𝘂𝗿𝘃𝗲𝘆 ‼

Hey friends! This is a friendly reminder that you have until 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆, 𝟯𝟭 𝗔𝘂𝗴𝘂𝘀𝘁 to complete our survey and tell us why you would like to represent MND Scotland at the iconic, world-famous event and have the opportunity to secure a place.

This is a unique opportunity for someone who is passionate about making a difference and ready to tackle the TCS London Marathon by taking on 26.2 miles on 27 April 2025 and for people affected by MND 💙

If this sounds like you, then we want to hear from you!

https://www.surveymonkey.com/r/SJ8CTSM

Entrants will be notified on 16 September with the outcome.

𝗚𝗼𝗼𝗱 𝗹𝘂𝗰𝗸! 🤞

𝙃𝙚𝙡𝙥 #𝙢𝙖𝙠𝙚𝙩𝙞𝙢𝙚𝙘𝙤𝙪𝙣𝙩 𝙗𝙮 𝙜𝙞𝙫𝙞𝙣𝙜 𝙩𝙝𝙚 𝙜𝙞𝙛𝙩 𝙤𝙛 𝙝𝙤𝙥𝙚.

Every year, people leave a gift in their Will to MND Scotland. For some, it’s a way to say 'thank you' for the support they or a loved one received from MND Scotland during their journey with MND 💙 For others, it’s a way to help future generations and ensure MND doesn’t have the final say.

If you want to make a Will or update one you already have and would like to include MND Scotland, please visit our website to find out how you can leave a legacy for free:

https://bit.ly/4cvMQTN

Looking for support? Our free counselling service offers people affected with access to 12 free one-to-one counselling sessions 💙

Led by a qualified therapist, these sessions could help you understand and manage the difficult feelings you may be experiencing right now.

Get in touch to find out how our team can support you and your family:

🔹[email protected]
🔹0141 332 3903
🔹www.mndscotland.org.uk