Egality Health

“To live a healthy life, is something we all deserve, we need every type of person represented in health research” 🧑🏾‍🤝‍🧑🏽

👉🏽 film launching on 5 September

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Association of Medical Research Charities, Blood Cancer UK , Crohn's & Colitis UK, Diabetes UK, MS Society UK, Parkinson's UK, Versus Arthritis, Chronically Brown, Freshrb C I C

Jersey has launched a three-year strategy to support neurodivergent individuals, aiming to create a neuro-inclusive island. This initiative covers a range of conditions including autism, ADHD, dyslexia, dyspraxia, and Tourette’s syndrome. The Government of Jersey, in partnership with Autism Jersey, is actively seeking feedback from neurodivergent individuals, their families, and advocates through an online survey and interactive workshops.



Find more information and link to the survey here:

Jersey launches strategy to create 'neuro-inclusive island' The Government of Jersey wants to hear feedback from people who will use the services.

Dr. Juhee Pahuja’s journey from blood cancer diagnosis to remission is inspiring. Now Dr. Pahuja is using her experience to educate and connect with her community. She combines her medical knowledge with her passion for Bollywood and Bhangra dance to raise awareness about blood cancer and highlight health disparities faced by ethnic minority communities.

Dr. Pahuja’s remarkable efforts have earned her a nomination for a BBC Radio London Make a Difference award.



Watch her talk about her initiative here:

Bollywood & Bhangra: London doctor talks cancer at dance class London doctor Juhee Pahuja started a dance group to get people talking about health.

Frustrated by the lack of diverse representation in health research? Discover why your involvement matters and how you can make a difference!

👉🏾Watch out for the film on 5 September!


Association of Medical Research Charities, Blood Cancer UK, Crohn's & Colitis UK, Diabetes UK, MS Society UK, Parkinson's UK, Versus Arthritis, Duke Al, Freshrb C I C

Stigma can make managing type 1 diabetes more challenging. It can lead to isolation, negatively impact mental health, and affect how individuals manage their diabetes.

We are supporting a study to explore the impact of stigma on individuals with type 1 diabetes in the UK.

By sharing your experiences in our stigma study, you can help us understand its impact and work towards reducing it.

📝 To take part, email us at [email protected]





[Tags: Caribbean and African Health Network, Kirit Mistry, South Asian Health Action, Imperial College London]

Via, the organisation managing addiction recovery services in Gloucestershire, is taking a unique approach by incorporating the lived experiences of those who have battled addiction themselves. Led by Mike Major, this initiative provides a compassionate and insightful perspective that resonates deeply with those in recovery.

The results? A more empathetic, supportive environment that helps individuals break down barriers, reduce stigma, and embark on a path to lasting change. This method is not only transforming lives but also contributing to a broader effort to reduce crime and improve community wellbeing.



Learn more about the initiative here:

Drug addiction: Via's 'unique' approach to tackle rise in addicts The number of drug and alcohol addictions in Gloucestershire has risen over the last year.

The Virtual Dementia Tour Bus in Sheffield is offering a unique and immersive experience that simulates the sensory challenges faced by those living with dementia. Participants will wear goggles, headphones, and spiky insoles to replicate distorted vision, loud noises, and sensory overload.

This exercise aims to foster empathy and deeper understanding, making communities more informed and dementia-friendly. An innovative initiative for anyone looking to better support individuals with dementia.



Read more about the initiative here:

Virtual Dementia tour bus to visit Sheffield The bus uses technology to help people experience what dementia is like.

The UK has one of the lowest breastfeeding rates globally, with many mothers stopping by week six due to a lack of support. According to Claire Tchaikowski, CEO of the Bristol-based social enterprise Human Milk, more needs to be done to help new mothers succeed in breastfeeding.

Despite 80% of UK mothers starting with the intention to breastfeed exclusively, less than half continue beyond six weeks. More resources and targeted support is essential, particularly during the postnatal period when new mothers need it most.



Read more here: https://www.bbc.co.uk/news/articles/ce9zzj8y405o

According to the North East and North Cumbria Integrated Care Board, cancer has now become the leading cause of death among women in North East England, surpassing cardiovascular disease. This statistic highlights the critical need for improved early detection and better access to cervical screenings.

With rates varying dramatically across the region, healthcare leaders emphasise the importance of ensuring that services are accessible and acceptable to all communities. Addressing these disparities is crucial to improving women's health outcomes and reducing the years spent in ill health.

Read the full article here: https://www.bbc.co.uk/news/articles/cn0l1kpxkggo

Have you ever felt judged or misunderstood because of your type 1 diabetes? This could be rooted in , and it can affect the lives of those living with diabetes. We are supporting a study to explore the impact of stigma on individuals with type 1 diabetes in the UK. We want to hear your stories and experiences.

By participating in our study, you can help us understand the challenges faced by the diabetes community and work towards tackling stigma.

Your voice matters. Share your story today and be part of the change. Email us at [email protected]



Caribbean & African Health Network - CAHN, Sahauk, Imperial College London

📢Only weeks to go!

We're bringing together experts from four sectors of the health system, to each share one idea to improve health equity. In a system where we often work in silos, collaboration can inspire innovation.

Join us as we spark a new conversation on how to achieve health equity.

📅 Thursday, 18 July
🕛 12:00-13:00 BST

Sign up now! https://www.eventbrite.com/e/egality-4-health-equity-tickets-920226481177

A recent report by the Food Foundation highlights a troubling decline in the health of UK children. The average height of five-year-olds is falling, obesity levels have risen by almost a third, and the incidence of type 2 diabetes among young people has increased by over 20%. Aggressive marketing of ultra-processed food and high levels of poverty are key drivers of this health crisis.

Health experts warn that without immediate intervention, we risk burdening a generation with avoidable health conditions and overwhelming the NHS. It's time for policymakers to prioritise children's dietary health and ensure all children have access to nutritious food.



Read more details of the study here: https://www.theguardian.com/society/article/2024/jun/19/uk-children-shorter-fatter-and-sicker-amid-poor-diet-and-poverty-report-finds

A recent study suggests an urgent need to test pregnant women for gestational diabetes before 14 weeks, instead of the current 24-28 week timeframe. The findings, published in the Lancet, reveal that earlier testing and treatment can significantly reduce pregnancy and postpartum complications for both mothers and babies.

Professor David Simmons of Western Sydney University emphasises the necessity for a major shift in how we diagnose and manage gestational diabetes. Current practices may not be sufficient to mitigate the risks associated with this condition.



Read more about the study here:
https://www.theguardian.com/lifeandstyle/article/2024/jun/20/pregnant-women-should-be-tested-for-gestational-diabetes-far-earlier-study-suggests

A recent Harvard study reveals that chronic loneliness can increase the risk of stroke by up to 56%. This research, published in eClinicalMedicine, highlights loneliness as a significant public health concern. The World Health Organisation has identified loneliness as one of the most pressing global health issues, affecting overall health, wellbeing, and development.

Researchers emphasise the importance of recognising and addressing chronic loneliness, particularly among adults aged 50 and above, to mitigate its impact on stroke risk. As loneliness becomes increasingly acknowledged as a serious health threat, it is crucial to develop interventions and support systems to combat this growing issue.



Read the full article here: https://www.theguardian.com/society/article/2024/jun/25/loneliness-can-increase-stroke-risk-by-up-to-56-finds-research

🎉 Meet our panelists! 🎉

Join us to celebrate 4 years of Egality with an engaging discussion on health equity featuring: Charlotte Augst, Jason Mellad, Mesha Moinirad, and Dr Chloë Rogers.

Each speaker will share their vision and practical steps to improve health equity.

📅 Thursday, 18 July
🕛 12:00-13:00 BST

Sign up here: 🔗 https://www.eventbrite.com/e/egality-4-health-equity-tickets-920226481177

Thousands of NHS cancer patients in England will soon have access to trials of personalised mRNA vaccines designed to target and destroy remaining cancer cells, thanks to the Cancer Vaccine Launch Pad. This groundbreaking initiative involves 30 hospitals and aims to reduce cancer recurrence.

While this trial, co-developed by BioNTech and Genentech, marks a significant step forward in cancer treatment and research, it’s essential for these clinical trials to include diverse and representative participants to ensure the findings are applicable to the wider population and to address existing health disparities. As we advance in medical research, inclusivity in clinical trials is vital for achieving equitable health outcomes.

Read more about this trial here: https://www.bbc.co.uk/news/articles/cl77qvd2krgo

Young women in West Yorkshire are highlighting a significant issue with the healthcare system regarding polycystic o***y syndrome (PCOS). Despite PCOS affecting up to 1 in 10 women in the UK, patients report facing long delays for diagnosis and inadequate support from their GPs.

Research by Verity PCOS UK shows that 60% of women struggle to get a diagnosis, and 95% have trouble accessing support. These cases shed light on a need for increased prioritisation and education in women's health within the healthcare system.



Read more about women’s experiences here: https://www.bbc.co.uk/news/articles/clwwgl98dg0o

🎉 Join us to celebrate 4 years of Egality! 🎉

Egality are on a mission to create health equity. For our 4th birthday, we're bringing together four experts from different parts of the health system for an inspiring panel discussion.

📅 Thursday, 18 July
🕛 12:00-13:00 BST

Each speaker will share one key idea to improve health equity, with a mix of blue-sky thinking and practical steps. Stay tuned to find out who our speakers are!

Don't miss out and sign up here:🔗 https://www.eventbrite.com/e/egality-4-health-equity-tickets-920226481177

A recent study by the University of Birmingham, supported by the British Heart Foundation, has uncovered alarming health disparities in heart failure outcomes. The research, analysing data from over 16,700 patients, reveals that marginalised ethnic patients are 36% more likely to die from heart failure compared to White patients. Additionally, those with atrial fibrillation from diverse backgrounds face more than double the mortality risk.

The study also highlights the critical issue of under-representation in clinical trials, with 89% of participants being White. This research underscores the urgent need for comprehensive and inclusive healthcare strategies.



Find out more about the research here: https://www.theguardian.com/society/article/2024/jun/03/minority-ethnic-heart-failure-patients-36-more-likely-to-die

We had an incredible workshop last month, bringing together partners, women from diverse ethnic backgrounds, and the LGBTQ+ community. The day was filled with video production and valuable feedback sessions on outputs. It was a fantastic step forward in promoting inclusive and culturally sensitive practices in maternity and birthing services. 🌟

Students at Hereford College of Arts are taking a stand against the dangers of va**ng through their art. Thirty-eight students created impactful pieces, with two designs selected to represent the severe health risks posed by va**ng to children. This project, backed by Herefordshire Council’s Public Health Team, aims to raise awareness amidst growing concerns about youth va**ng.

Matt Pearce, Director of Public Health for Herefordshire, emphasised the importance of such projects, acknowledging the role of va**ng as an alternative to smoking for adults but expressing concern about its impact on children. This project is a step towards raising awareness and protecting young people from va**ng-related harm.

Read more here: https://www.bbc.co.uk/news/uk-england-hereford-worcester-69034735

Healthcare professionals are raising alarms over the rise of poorly evidenced alternative treatments targeting women online. Former breast surgeon Liz O’Riordan, who faced misinformation after her own cancer diagnosis, emphasised the dangers of these treatments, which can interact with prescribed medications or obscure serious symptoms.

Similarly, Molly Fenton of Love Your Period noted the challenge of navigating credible information on social media, particularly for young girls. Diane Danzebrink, founder of Menopause Support, discussed the commercialisation of menopause and the flood of unregulated supplements.

This growing trend underscores the need for accurate information and professional medical advice to safeguard women’s health.

Read more about this here: https://www.bbc.co.uk/news/articles/cl5kpe2z489o

As part of Mental Health Awareness Week, "Threads of Resilience" art project has been unveiled across Reading. Organised by Together for Mental Wellbeing, Reading Borough Council, and Reading Voluntary Action, this year-long initiative allowed individuals receiving mental health support to express themselves through art. The project culminated in a display of artworks at various town locations, including Reading Central Library, the train station, and council offices.

Read more about the initiative here: https://www.bbc.co.uk/news/articles/cprgr7170lzo

Recent study conducted by Healthwatch Wiltshire and Wiltshire Service Users Network exposes concerns regarding deficiencies in mental healthcare provision for individuals with autism in Wiltshire. The findings reveal systemic issues, including therapy ineffectiveness, communication barriers, and a lack of tailored support.

Not focusing on meaningful action could continue existing disparities and denying individuals with autism the support and dignity they deserve.

Read more about the findings and necessary reforms here: https://www.bbc.co.uk/news/articles/cmm3d7g62vqo

The opening of a new hub for individuals living with dementia at the Parklands site in Cowes marks an important step forward in providing comprehensive support services for the Isle of Wight community. Led by Alzheimer Cafe Isle of Wight, this initiative offers a range of resources, including expert advice, training opportunities, and a welcoming environment for social interaction.

This collaborative effort, along with the Isle of Wight Council's commitment to dementia care outlined in the 2022 Dementia Strategy, exemplifies the importance of proactive measures in supporting those with medical needs.

To learn more about this initiative, click here: https://www.bbc.co.uk/news/articles/crgyvng5zdno

What's the COMbAT Fatigue study?

This study aims to bridge the gap in existing post-stroke care, whilst developing a programme to help people cope better with fatigue after stroke and mini stroke.

This will help people cope better and manage their lack of energy more effectively. We want to talk to people who have had a stroke, their loved ones and carers, healthcare professionals, and other experts to develop a programme that works for everybody!

But it doesn't exist without your input.

Your voice matters. Take part in this focus group and have your voice heard.

🔗 https://bit.ly/3Uy0Yoo



A collaboration with Caribbean & African Health Network - CAHN and Sahauk.

Get involved! We’re helping to find members of the public to get involved in an important study.

Researchers at Cardiff University are carrying out a consultation with members of the public on use of mock national data for research.

Your voice matters. Join 4 online workshops and share your thoughts! Register your interest: https://tinyurl.com/mock-data

You don’t need any specialist knowledge to take part. Each workshop is 2 hours, and you’ll receive £200 for attending all 4 workshops.

The Birth Trauma Inquiry has unveiled concerning realities within the UK's maternity care system, exposing a pattern of poor care too often accepted as “standard”. With over 1,300 women sharing harrowing experiences of neglect, medical errors, and systemic deficiencies, it's evident that immediate action is necessary to ensure the safety and well-being of mothers and babies nationwide.

The call for a comprehensive overhaul of maternity and postnatal care, including the establishment of a maternity commissioner and the assurance of safe staffing levels, underscores the urgency of addressing these longstanding issues. It’s imperative to prioritise the implementation of reforms that guarantee respectful, supportive, and equitable childbirth experiences for all.

Read more about the inquiry here: https://www.bbc.co.uk/news/articles/c4n1jv7xxpwo

New analysis by The Guardian sheds light on racial disparities in perinatal mental healthcare in England. According to NHS figures, Black mothers are over twice as likely to be hospitalised, pointing to systemic inequalities that persist within the healthcare system. This underscores the urgent need for action to address structural barriers and improve access to mental health services for all mothers.

Dr. Katie Merwick highlights factors such as socioeconomic disparities and cultural attitudes towards mental illness as contributing factors. Addressing these disparities requires a comprehensive approach, including increased community support and better training for healthcare professionals.

Read more about the findings and expert insights here:

https://www.theguardian.com/world/article/2024/may/06/black-mothers-twice-likely-white-hospitalised-perinatal-mental-illness

Recent study by QualityWatch exposes disparities in cancer diagnosis in England. Marginalised ethnic groups and young people often require more GP visits before receiving a cancer diagnosis, highlighting systemic barriers in access to timely healthcare. Dr. Liz Fisher underscores the critical role of early detection in improving outcomes for patients. Urgent action is needed to ensure equitable access to cancer care for all demographics.

As the NHS strives to diagnose more people for cancer at an early stage, addressing these disparities is essential to ensure that everyone, regardless of age, ethnicity, or socioeconomic status, receives prompt and effective cancer care.

Read more about the findings here: https://www.theguardian.com/inequality/2024/apr/24/ethnic-minorities-in-england-need-more-gp-visits-before-cancer-diagnosis