HD Reach

We are seeking sponsors for the Drive Hope Home Golf Tournament! If you have anyone in mind please share the brochure on our website or send them our way. We are looking forward to our best year yet in a new location at 12 Oaks in Holly Springs, NC!
*Please also note we have a special opportunity to honor loved ones with an In Honor / Memory Sign at the Clubhouse. Come team up together to make a lasting impact. 💙⛳️🏌️‍♀️
https://buff.ly/3VqZFs1

CHARLOTTE! WEDNESDAY! We have a *NEW* location, Divine Barrel Brewing has been kind enough to offer us a private room! Erika and Olivia are so excited to see y’all and we have a special guest joining, Mike Brooks! Mike is from Safe Asset Financial and is here to provide insight on how to secure your financial future and share how he plans to support the HD community. Erika Eiger is a member of our Family Advisory Board and will be coordinating the CLT Meet Up. Don’t forget to register so you get a reminder, of course we always welcome walk-ins. Come get some free pizza 🍕 and free community 🫶🏼 Let's Reach for Hope together!

https://buff.ly/3z4kcLf
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Linktree: Link everything you are Linktree makes room for all of you. Get everything you create, curate and share, wherever it’s scattered online, and put it back together again in one place – your Linktree – where it can be discovered with ease.

Calling all gamers impacted by HD - Join us today on June 19th at 7pm EDT. Our Game Over HD program is open to those 18yrs and up, from the US/Canada to join. We use an app called Element to stay connected. With end to end encryption, all of our conversations are safe and secure. Come game with us! All platforms welcome, any games we play together are always cross compatible. We meet on the first Friday and third Wednesday of each month at 7pm EDT.

Please join us as we continue our important work in walking beside real families with services and programs that provide support, education, connection, information and access to care throughout North Carolina. Can you help us reach our goal of $25,000 by June 30? Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you. 💙 https://buff.ly/3yLLbLK

Excited to introduce Jess Clark, our valued Family Advisory Board member! The FAB collaborates with us to shape our programs and amplify community voices. https://buff.ly/3Xhk3hy

Join us at the HD Educational Community Support Group next Saturday, June 22nd from 11am-12pm ET. This group provides an opportunity for people who are living with and impacted by HD to learn from presenters and share experiences together. The Teams link is below for you to connect to or dial in. Hope to see you there!

https://buff.ly/4bUusUY

It’s important that in everything we do, in every event we host, that we always remember the reason we are here. The reason we advocate, support, and have community is all due to our . We hope by collecting and featuring these stories, that we can continue to inspire and remind everyone why their support is needed. Please submit your HD Hero by either clicking the link below, visiting our Linktree, or checking out the HD101 section of our website.
https://buff.ly/4cdFPHw

Due to unforeseen circumstances we must cancel the Eastern NC Meetup scheduled for this Saturday. Thank you for understanding and we hope to see you next month on July 20th!

Winston-Salem! Will we see you TONIGHT for a Meet Up with our care navigator, Brandi and Robert, Clinical Research Coordinator at Atrium WFBMC? 💙 https://buff.ly/4bNTsNy

TONIGHT! Our HD Book Club will discuss the first half of the book, "Dancing With Elephants."
If you haven't read it yet but you are interested in joining, please do! We would love to have you so you can come feel out the vibes of book club.
📚📚📚 Any questions please reach out to Erika at [email protected] https://buff.ly/3ytFGkx

TONIGHT! WILMINGTON!! We have a *NEW* location and a new facilitator!! Susan Cosby is a member of our Family Advisory Board and is a clinical pharmacist in Wilmington, NC. She has recently retired from New Hanover Regional Medical Center. Susan has been a part of the HD community her whole life. Susan grew up with HD affecting several members of her mother’s family. Her mother was diagnosed with HD when Susan was 40 years old and passed away in 2023. Susan is passionate about ensuring people with HD can get care where they are and not have to travel extreme distances to find experts in HD. Susan joined the HD Support Group in Wilmington in 2019 and has helped to ensure the support group stayed in touch over the years. She has recently assumed the role of Support Group Facilitator in Wilmington. Susan lives in Wilmington, NC with her husband, Gregg, and has two children, Tyler and Ashley.

https://buff.ly/3R3L5Ff

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Please join us as we continue our important work in walking beside real families with services and programs that provide support, education, connection, information and access to care throughout North Carolina. Can you help us reach our goal of $25,000 by June 30? Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you. 💙 https://buff.ly/4cjpT6H

WINSTON-SALEM - Robert Ward, Clinical Research Coordinator at the Movement Disorders Clinic, Atrium Health Wake Forest Baptist Medical Center will join us to provide insight getting involved in research and how he can support the HD community. Robert is a dedicated Clinical Research Coordinator at the Movement Disorders Clinic, Atrium Health Wake Forest Baptist Medical Center. With a diverse background spanning EMS, laboratory research, and now clinical research, Robert brings a unique perspective to his work. Currently involved in the Enroll-HD study, Robert is passionate about advancing our understanding of Huntington's disease.

Let's socialize, learn, and connect with others in the HD community. Please register if you can so we know to bring enough pizza, however walk-ins are always welcome.

WILMINGTON & WINSTON SALEM- see you next week! https://buff.ly/3KryTe1 * What is a Meet Up? * This is a casual environment for those impacted by HD to meet, socialize, and build community. 💙💜 For questions, contact Erika at [email protected].

We are excited to introduce our lineup for our HD Book Club for the remainder of the year! Each book is split into half so that we can cover it in 2 consecutive meetings. Next week will be our first meeting on "Dancing With Elephants" where we talk about Chapters1-15. The next meeting in July, we will cover the remainder. Want to find out more? 📚📚📚 Any questions please reach out to Erika at [email protected] https://buff.ly/3UVnLL7

HD Reach is expanding support across NC- coming to a town near you! Check out this summary of our Meet-Up events for the month of June. We can’t wait to see you! https://buff.ly/3QXdRaP

Registration is now OPEN! Join us for a round of golf to support Huntington's Disease on the 4th of November at 12 Oaks in Holly Springs. https://buff.ly/3X5rsAO

Please join us as we continue our important work in walking beside real families providing support, education, connection, information and access to care throughout NC. Thank you for considering a gift to HD Reach. 💙 https://buff.ly/4bFNyy6

Please join us as we continue our important work in walking beside real families with services and programs that provide support, education, connection, information and access to care throughout North Carolina. Can you help us reach our goal of $25,000 by June 30? Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you. 💙 https://buff.ly/3w4HCz1

Check out this summary of Virtual Events happening this month! For more information, checkout https://buff.ly/4dRYaeC

Enjoying our time connecting and learning at Convention in Spokane, WA! 🩵💙

Let's shine a light and come together to wrap up HD Awareness Month! We hope raise awareness about Huntington's disease and share quick facts about HD to provide valuable insights into what it's like living with HD.
https://buff.ly/3QqIFAx

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HD Reach works to improve the care and quality of life for those affected by Huntington’s disease (HD). is a time to shine a light on the HD community. This month, HD Reach will highlight their ongoing efforts to provide connections to medical providers, care management, family support and education. Learn more: hdreach.org

The team is traveling to the convention in Spokane WA!! Will we see you there?? Come find us for a bracelet! 🎉💙

Want to enjoy the life you are living, even as you face major life challenges?
Is your mind succumbing to age? Is your body failing you? Can you ever find joy, peace,
or fulfillment in these challenging conditions? The answer is a resounding YES.
Join us in 2 weeks for our HD Book Club where we talk about the book, "Dancing With Elephants."
Author Jarem Sawatsky saw the countless guides out there for those caring for the ill
and healing the curable, but when he was diagnosed with Huntington’s Disease he
found there was nothing for those living with an incurable illness. He quit his job as a
professor and devoted his life to exploring the possibilities of living with chronic
conditions. Now he’s bringing his findings and insights to you in this empowering
mindfulness guide.
📚📚📚 Any questions please reach out to Erika at [email protected] https://buff.ly/3VguwJ2

Please join us as we continue our important work in walking beside real families with services and programs that provide support, education, connection, information and access to care throughout North Carolina. Can you help us reach our goal of $25,000 by June 30? Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you. 💙 https://buff.ly/3WbbPab

: Let's shine a light and come together to raise awareness for Huntington's disease during the month of May! Sharing quick facts about HD can provide valuable insights into what it's like living with HD.
https://buff.ly/3UEmEAr

In honor of HD Awareness month, let's do a special promotion! Buy any item from the HD Reach Storefront until June 30th, and you will have a chance to win an awesome prize!! There are many items available including tshirts, long sleeve ts, sweatshirts, and more! https://buff.ly/3UuiwC4

It’s important that in everything we do, in every event we host, that we always remember the reason we are here. The reason we advocate, support, and have community is all due to our . We hope by collecting and featuring these stories, that we can continue to inspire and remind everyone why their support is needed. Please submit your HD Hero by either clicking the link below, visiting our Linktree, or checking out the HD101 section of our website.
https://buff.ly/3QrxyqO