Bleeding Disorders Alliance IL

Registrar aqui! https://secure.qgiv.com/for/zwpagq/event/vcutdscesmdc/?mc_cid=c9c629820c&mc_eid=2067e3cd87

BDAI Community! Severe weather can come on in an instant, what are some of the best ways you prepare? Bleeding disorders are here, rain or shine, and we want to make sure our community is prepared for emergency situations. Let's help eachother out by sharing our tips in the comments, and be on the lookout for some of these in your email soon!

Same Brookfield Woods location for our UNITE Walk, new date: October 5th!
Get ready for seeing your community, bringing awareness to bleeding disorders and reflecting on our amazing Bleeding Disorders Alliance.

Don’t miss out, register your team TODAY! https://www.uniteforbleedingdisorders.org/index.cfm?fuseaction=register.start&eventID=953

got questions? Connect with one of BDAI's new team members, Kelsey Cunningham, at [email protected] or 402-979-6980

Coming soon: information about applying for a Bradley Krueger Scholarship! Stay tuned!

Get those walking shoes ready! The Unite for Bleeding Disorders Walk will be Saturday, 5 October! Lace up and start funding raising! If you haven't registered yet, here's the place:

2024 UNITE WALK (Brookfield, IL) I'm supporting National Hemophilia Foundation!

Join us on Friday, July 12, when BDAI and Novo Nordisk present Vivir Con Un Trastorno de Sangrado: Conviértase en Su Mejor Defensor / Living With a Bleeding Disorder: Become Your Best Advocate - in both English and Spanish! Register now!

Events — Bleeding Disorders Alliance Illinois Jun 28 HOLA PLÁTICA: Salud bucal integral: comprender la importancia de la salud bucal Friday, June 28, 2024 6:00 PM 8:00 PM Mama Luigi’s (map) Google Calendar ICS CLICK HERE to register. View Event → Jul 12 English and Spanish! Vivir Con Un Trastorno de Sangrado: Conviértase en Su Mejor Defen...

#1 - Register your team. - CHECK
#2 - Make a list of everyone you know with their email addresses (or phone numbers if you'll text). - CHECK
#3 - Write a kick-a$$ letter or make a kick-a$$ video about why raising money through the United for Bleeding Disorders walk is so important to you and your family. - CHECK
Next...
#4 - Send the letter/video! Be sure to bcc (blind copy) everyone so you're not spewing out everyone's contact info. Take note of the date you do this (you'll do it again in a few weeks). When people make a donation, highlight their name on your list so that you don't email them again (if you ask for a donation after they've given, you're spamming!).

https://www.uniteforbleedingdisorders.org/index.cfm?fuseaction=donorDrive.event&eventID=953

Takeda: HOLA PLÁTICA: Salud bucal integral: comprender la importancia de la salud bucal, 28 Junio.

Registrar aqui! https://secure.qgiv.com/for/zwpagq/event/takedaholaplticasaludbucalintegralcomprenderlaimportanciadelasaludbucal/

1. Register your team. Check!
2. Make a list of names and emails of everyone you know. Check!

TIP #3: Write a kick-a$$ letter or make a kick-a$$ video to help your peeps understand why donating to the walk is so important. Include a quick-fact like many people, especially women, remain undiagnosed and suffer needlessly because they are unaware of the signs of a bleeding disorder. Say what it's like when you get a bleed. Talk about how money raised will help BDAI provide education to help people with bleeding disorders avoid debilitating complications and live longer, more active, and healthier lives and conduct advocacy initiatives at local and national levels to help ensure access to medical care and equitable insurance for all. Just get started!

Important announcement about camp: We are very sad to announce that due to unforeseen circumstances, Camp Warren Jyrch will not be able to run this summer. HOWEVER, there are other opportunities available to BDAI families. Please visit here for more information: https://www.bdai.org/camp

We're in search of a new executive director. If you would like to learn more, please visit

Work at BDAI — Bleeding Disorders Alliance Illinois We’re in search of anExecutive DirectorBleeding Disorders Alliance Illinois, 210 South Desplaines Street, Chicago, IL 60661 Full time exempt | Benefits | HybridFrom $85,000 a year, commensurate with experience, plus potential bonuses Bleeding Disorders Alliance Illinois (BDAI) is a 501c3 organiz...

Good morning! It's another gorgeous day to think about the walk! Now that you've registered your team (and if you haven't, you can do so any time now), open up a Word or Excel (or any writing or spreadsheet) doc and make a list of the names and emails of everyone you know. I like to make columns for different groups of people (e.g., family, work, neighbors, friends from whatever activity). Don't be afraid to add people. You never know who will donate. We've seen large donations from people who were not particularly close to the person who asked, but they gave simply because they were asked to give! So...
1. Register your team.
2. Make a list of names and emails of everyone you know.
Stay tuned for more!

2024 UNITE WALK (Brookfield, IL) I'm supporting National Hemophilia Foundation!

It's a gorgeous day to go for a walk! It's also a gorgeous day to start fundraising for BDAI's Unite for Bleeding Disorders Walk! Not sure how to get started? No worries! We're going to "walk" you through it (couldn't resist).

First step: register your team. If you don't have a full team yet, that's okay, just get started. Go to https://www.uniteforbleedingdisorders.org/index.cfm?fuseaction=donorDrive.event&eventID=953 to register your team. That's it!

Stay tuned for more steps as we walk together to raise money to help the bleeding disorders community!

2024 UNITE WALK (Brookfield, IL) I'm supporting National Hemophilia Foundation!

This just in! Sanofi is leading a session for hemo A on Wednesday 12 June at Francesca's in Oak Lawn. RSVP to Lily at [email protected]. Seriously, this JUST came in, so hop on it!

We're sorry for any inconvenience, but the Bradley Krueger Scholarship Workshop scheduled for 6 June has been cancelled. If you have any questions about applying for the scholarship, please contact Lily ([email protected]).

Calling everyone with severe hemophilia A! BDAI is partnering with BioMarin for an evening learning about ROCTAVIAN, a one-time gene therapy used for the treatment of adults with severe hemophilia A who do not have antibodies to the virus AAV5. Join us Monday, June 17, 630-830p, at White Chocolate Grill in Naperville to learn more. Reserve your spot now - just email Lily at lschwartz-bdai.org!

BDAI's 75th anniversary celebration gala - what a night!! Check out these stats:
- It was our first gala in 5 years, and we had 130 attendees.
- Our silent auction raised 91.9% of value.
- The live auction raised 103.56% of value.
- We raised 27.04% more than the last gala!
Many thanks to the gala committee and all those who supported BDAI for this very special evening!!

Gala book tribute ad deadline has been EXTENDED THROUGH TOMORROW!
Don't miss your chance to say congrats/thanks/miss you/whatever! Remember, you don't have to be attending the gala (other chapters, I'm looking at you!) to submit a tribute - we'll email you the book! Questions? Email [email protected].
https://secure.qgiv.com/for/bdaigalatribute/

Can't make it to the gala? The next best thing is expressing your congratulations to BDAI or anyone in the community you wish to honor with a TRIBUTE! Prices range from $25 to $100. Act fast - the gala book goes to print soon! Questions? Contact [email protected].
https://secure.qgiv.com/for/bdaigalatribute/

We're so sorry, but Springfield Legislative Days, originally scheduled for May 8-9, has been cancelled. Keep those talking points handy, though - you never know when you'll use them. Thank you for understanding.

To show your thanks and appreciation, follow this link to purchase a tribute: https://www.bdai.org/75th-anniversary-gala

On World Hemophilia Day, we encourage our Illinois community to join us for Springfield Legislative Days. This is an exciting opportunity to help shape policy and impact our community. Keeping with this year's theme, equitable access for all and recognizing all bleeding disorders, join us as we meet with our representatives in Springfield.
Register now: https://secure.qgiv.com/for/zwpagq/event/894689/

Tomorrow, April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day! Thank you to Sanofi for sponsoring this event.

Thank you to those who have registered!

Important notes: Parking for this event will be validated.

We encourage you to show your support by wearing your RED sweaters, shirts, ties, scarves, shoes, hats etc.!

The registration is closed as this event is now at capacity. If your plans change and you or a member of your party are no longer able to attend, please contact Lily at [email protected].

When: April 17th, 2024

Time: 6:00 PM (CST) - 8:00 PM (CST)

Where: The Royal Sonesta Chicago Downtown

Address: 71 East Wacker Drive Chicago, IL, 60601

Get your ticket today!
Register now for the 75th Anniversary Diamond Jubilee Gala by following this link: https://secure.qgiv.com/for/zwpagq/event/bdai75thanniversarydiamondjubileegala/

Follow this link to make your reservation: https://www.marriott.com/event-reservations/reservation-link.mi?app=resvlink&id=1707314640033&key=GRP
OR
Call the Marriott at 630.986.4100 & be sure to state that you are part of the BDAI Diamond Jubilee Gala

We hope to see you there!

75th Anniversary Diamond Jubilee Gala!

When: Saturday, May 4 at 6:00 pm
Where: Chicago Marriott Southwest
Address: 1200 Burr Ridge Parkway, Burr Ridge, IL 60527

To register, please click this link: https://secure.qgiv.com/for/zwpagq/event/bdai75thanniversarydiamondjubileegala/