Tri-State Bleeding Disorder Foundation

Today is the day! Join us at Mt Echo Patk for our 7th Annual Unite Walk. Registration starts at 9 am, the walk starts at 10 am!

Tomorrow, Saturday, July 20th is Brynn's Blood Drive. It's not too late to sign up to donate! Use the link below to sign up today!

Join TSBDF in supporting Brynn’s Birthday Blood Drive on Saturday, July 20th! You can use the QR code below to sign up to donate blood or donate $5 in honor of Brynn’s 5th birthday!

Lindsay Schulte, Brynn’s mom shares the following:
Brynn has received roughly 1000 infusions of Corifact (Factor XIII medication) to date. She receives infusions of Corifact (human derived plasma from blood donations) every other day. 1000 selfless blood donors have saved her life along with so many others in our community, with various conditions. Her path is unknown and this is a lifelong need for her.
I invite all to participate in this life saving mission. If donating blood is not your thing, or you simply can’t, but want to support this cause, we warmly welcome you to donate $5 for Brynn’s 5th birthday.
Donations will go directly to TSBDF.
Venmo: Brynn’s Birthday Bloodrive -Schulte

Join TSBDF in supporting Brynn’s Birthday Blood Drive on Saturday, July 20th! You can use the QR code below to sign up to donate blood or donate $5 in honor of Brynn’s 5th birthday!

Lindsay Schulte, Brynn’s mom shares the following:
Brynn has received roughly 1000 infusions of Corifact (Factor XIII medication) to date. She receives infusions of Corifact (human derived plasma from blood donations) every other day. 1000 selfless blood donors have saved her life along with so many others in our community, with various conditions. Her path is unknown and this is a lifelong need for her.
I invite all to participate in this life saving mission. If donating blood is not your thing, or you simply can’t, but want to support this cause, we warmly welcome you to donate $5 for Brynn’s 5th birthday.
Donations will go directly to TSBDF.
Venmo: Brynn’s Birthday Bloodrive -Schulte

Registration ends this Friday, June 14th for our Family Education Day at Kings Island on Saturday, June 22nd. Use the link below to register today!

TSBDF Family Education Day at Kings Island Join us for TSBDF Family Education Day at Kings Island.

Family Education Day at Kings Island

Join us Saturday, June 22nd for education and fun!
Registration will take place at 11:30 a.m. Education and lunch will follow from Noon until 2 p.m. You are free to enjoy the park the rest of the day.
Tickets include parking, entrance into the park, lunch and an all day drink wristband. This event is for bleeding disorder patients and their immediate family members living in the same household. Childcare will not be available for this event.

TSBDF Family Education Day at Kings Island Join us for TSBDF Family Education Day at Kings Island.

Have you registered yet for our 2024 Unite for Bleeding Disorders Walk taking place Saturday, August 17th Mt. Echo Park?

Registration is now open. Click below to register today!
https://www.uniteforbleedingdisorders.org/index.cfm?fuseaction=donorDrive.event&eventID=943

The walk starts at 10 am and ends at noon
Check in will take place from 9-10 am
The after party will include LaRosa's pizza and Graeter's ice cream plus a face painter for the kids!
You MUST be registered and have raised $25 by July 19th in order to be guaranteed a walk t-shirt.

2024 UNITE WALK (Cincinnati, OH) I'm supporting National Hemophilia Foundation!

Thanks to our hardworking volunteers who handed out jelly beans and cheered on runners at the TSBDF Pork n’ Beans station on the Flying Pig full marathon route. It was an early morning ! We truly appreciate our community’s support to help us raise funds and awareness!

Thank you to everyone who came out to the TSBDF World Hemophilia Day program sponsored by Sanofi!

Special thanks to Cincinnati Children's - Duke Energy Convention Center - First Financial Bank and Radisson Hotel Covington for Lighting Up Red for World Hemophilia Day!

Check out our final interview with Fox 19 in honor of World Hemophilia Day! Thank you to CJ Bolls for joining TSBDF to tell his story and represent the bleeding disorder community. Be sure to wear red today in honor of those living with Hemophilia!

Today is World Hemophilia Day On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event this year is “Equitable access for all: recognizing all bleeding disorders”. Tri-State Bleeding Disorder Foundation (TSBDF), is a nonprofit organization with an...

World Hemophilia Day Program, Saturday, April 20th
Join us for education and fun at The Columns at Findlay Market!
The 2024 One Family program is a celebration of the bond that comes from living with hemophilia: young and old, near and far, where we are now and where we want to be. Join us for hands-on activities like:
• Personal time capsule kits
• Selfie stations and DIY photo frames
• Wish ribbons for the global community
• Space to share your story and voice

This event is sponsored by Sanofi!

This event is for Hemophilia patients and their immediate family members living in the same household.

Registration begins at 11:45 am,
lunch and education will begin at noon.
Parking will be free but there will be a short walk to the facility.

Click below to register today!

TSBDF World Hemophilia Day Program Join us for education and fun for World Hemophilia Day!

Thank you to Jen and Jackson Loving for representing the bleeding disorder community on Fox 19 today. They did a great job of telling their story and bringing awareness about Hemophilia and bleeding disorders to our general community!

Local High School Freshman with Hemophilia A Tri-State Bleeding Disorder Foundation (TSBDF), is a nonprofit organization with an over 40-year history of providing support, programs, and services to the bleeding disorder community of Greater Cincinnati, Northern Kentucky, and Southeast Indiana. The focus of support for the entire family is a dr...

In honor of World Hemophilia Day our own Lynn Yaeger and Michele Bunke were interviewed on Fox 19 about living with Hemophilia B. Check out the interview below and be sure to watch Jen and Jackson Loving on tomorrow's show!

How Hemophilia B affects a local Mother & Daughter Tri-State Bleeding Disorder Foundation (TSBDF), is a nonprofit organization with an over 40-year history of providing support, programs, and services to the bleeding disorder community of Greater Cincinnati, Northern Kentucky, and Southeast Indiana. We improve the quality of life for children, adult...

Next Wednesday, April 17th is World Hemophilia Day! TSBDF will be featured with a series of interviews on Fox 19 in the 8 am hour. Monday, 4/15, Lynn Yaeger and her mom Michele Bunke will tell their stories of women living with Hemophilia B and Lynn will talk about raising her young son who has severe B. Tuesday, 4/16, Jen and Jackson Loving will speak about Jackson's journey of living with severe Hemophilia A. Wednesday 4/17, CJ Bolls will talk about living with severe Hemophilia B and Helen will join him to talk about TSBDF and how we support the bleeding disorder community.
Also, in honor of World Hemophilia Day the Duke Energy sign will light up red for the day. The First National Bank building downtown, The Radisson Hotel in Covington and the Resource Center at Cincinnati Children's will all light up red too! Lastly, don't miss out on The Front Porch Project. Spots are filling quickly! The Front Porch Project is open to all bleeding disorder patients. Click below to sign up today!

www.signupgenius.com

Thanks to everyone who attended the Education Day at the Pickleball Lodge sponsored by Octapharma! This was a joint program with SWOHF.
Scott Daniels spoke to attendees about how getting and staying fit doesn’t have to be difficult and gave some great tips on how to get started. This was followed by a quick pickleball clinic and then game time! A great time was had by all!
We look forward to partnering again soon with our Dayton friends!!

There are only a few more days to register for the event this Sunday at The Pickleball Lodge. This event is a collaboration with our friends from the Dayton chapter!
Click on the link below to register today!

TSBDF & SWOHF Education and Pickleball Program Join us for education and fun at the Pickleball Lodge!

TSBDF World Hemophilia Day Program
Saturday, April 20th

Join us for education and fun at The Columns at Findlay Market!
The 2024 One Family program is a celebration of the bond that comes from living with hemophilia: young and old, near and far, where we are now and where we want to be. Join us for hands-on activities like:
• Personal time capsule kits
• Selfie stations and DIY photo frames
• Wish ribbons for the global community
• Space to share your story and voice

This event is sponsored by Sanofi!

This event is for Hemophilia patients and their immediate family members living in the same household.

Registration begins at 11:45 am, lunch and education will begin at noon.

Parking will be free but there will be a short walk to the facility.

TSBDF World Hemophilia Day Program Join us for education and fun for World Hemophilia Day!

2024 TSBDF Front Porch Project

The TSBDF Front Porch Project will take place again this April! Our amazing photographer, Teresa will come to your house and take photos of your family wearing red in honor of World Hemophilia Day (April 17th). We have times available April 17th, 19th, and 21st. Please make sure to sign up for the appropriate day for the area in which you live! Email [email protected] if you'd like to participate but the day for your area doesn't work for you.

www.signupgenius.com

Join us for education and fun at the Pickleball Lodge on Sunday, April 7th! Hear from Scott Daniels, Physical Therapist on how to safely stay active with a bleeding disorder, enjoy lunch and then participate in a Pickleball clinic with a Pickleball pro. All paddles and balls will be provided!

This event is sponsored by Octapharma!

This event is for all bleeding disorder patients and their immediate family members living in the same household. Pickleball is for ages 10 and up, childcare will be available for those under 10 and those not wanting to play. All children playing Pickleball must be supervised by their parent/guardian at all times.

Registration begins at 11:45 am,
Lunch and education will begin at Noon.
Pickleball will take place from 1-3 p.m.

Please wear appropriate clothing and shoes if you plan to participate in the Pickleball Clinic.
TSBDF and SWOHF are not responsible for any injuries that take place during the Pickleball Clinic and games. Attendees play at their own risk.

TSBDF & SWOHF Education and Pickleball Program Join us for education and fun at the Pickleball Lodge!

The Village of Batavia has also declared March as Bleeding Disorders Awareness Month thanks to advocate Jen Loving!

Aftab Pureval, mayor of the City of Cincinnati has declared March as Bleeding Disorder Awareness Month in the state of Ohio!
Thank you to Jen Loving for submitting the request to help bring awareness about bleeding disorders to the general community.

The Ohio Bleeding Disorder Council is conducting an ACCESS Survey for Ohio patients to help the policy and advocacy efforts in Ohio for Statehouse Day.
Please use the QR code or link below to take the survey!

https://form.jotform.com/240534763146052

We spent the past few days in Washington DC advocating for the bleeding disorder community during Bleeding Disorders Awareness Month!
We had a great group from Ohio who visited our Ohio Representatives and Senators. We asked them to support the HELP Copays Act (H.R. 830, S. 1375) and sign on to the letter to HHS to enforce current EHB regulations that require plans to cover drugs that treat all disease states.

Registration is now open for Ohio Statehouse Day on Tuesday, April 9th! Use the link below to register today!

March is Bleeding Disorders Awareness Month! There are between 30,000 and 33,000 people living with Hemophilia in the U.S. The most common bleeding disorder is von Willebrand Disease, affecting approximately 1 in 100 people.
Start the conversation and wear red to raise awareness for bleeding disorders in our community!

The Family Education Conference is under way. Patients and families have their first session learning about new therapies from Dr. Cristina Tarango.

You are invited to learn more about Hemgenix, Gene Therapy for Hemophilia B. Get answers to your questions on this live, national webinar sponsored by CSL Behring on Wednesday, February 28th from 7:30-8:30 p.m. You must register in advance @ www.genetherapyevents.com

• Hear from a doctor who has administered HEMGENIX
• Learn about new efficacy and safety data
• Ask questions during the LIVE Q&A session