Liv For a Cure

33 days until race day! This year we asked our local girls running club to design our t-shirts and the submissions are AMAZING!! Make sure to sign up in time to guarantee you get your hands on one of these awesome tees for the race. 💜 Register here: https://livforacure.org/events

We are excited to announce registration is open for our Second Annual Louis’ Loop, a Liv for a Cure 5K Run/Walk on Saturday, June 1 in Park Ridge! This 5K aims to raise awareness and funds for those living with rare forms of cystic fibrosis like our dear Louis and Liv. Come out and join the fun! You can register by visiting livforacure.org/events or directly here: https://tinyurl.com/Louis-Loop-Registration

Cystic fibrosis (CF) is a genetic disease that affects approximately 70,000 children and adults worldwide.

CF causes thick, sticky mucus to build up in the lungs and other organs, leading to a variety of health problems, including:

- Repeated lung infections
- Difficulty breathing
- Digestive problems
- Liver disease
- Diabetes

Gene therapy offers the potential to cure CF by correcting the underlying genetic defect and benefiting the 10% of those with CF who are not eligible for life saving medications.

On this Giving Tuesday, we are asking you to donate to the Liv for a Cure Foundation to support our efforts to develop gene therapy for CF.

Your donation will help us fund the research that is needed to bring this life-saving treatment to CF patients who have waited far too long for their chance at a cure.

Every donation, no matter how big or small, makes a difference.

Go to livforacure.org to donate 💜 We will not be doing a FB fundraiser as they take a percent of your donations and we want to make every dollar you donate count!

Thank you for your generosity.

Together, we can make CF stand for Cure Found.

Research Into Genetic Therapies To treat cystic fibrosis, scientists are exploring ways to use gene editing, which would correct mutations in the CFTR gene, or gene therapy, which would provide a correct copy of the CFTR gene to cells. First, they must find a way to deliver the treatment to the right cells.

The race may be over, but there’s still time to donate! Head to our website and select the “Donate Now” button to make a one time (or even monthly) donation: https://livforacure.org

We would like to close out CF Awareness month with a sincere thank you to our sponsors of Louis’ Loop. We appreciate you all for joining our fight against CF and helping us fund research in the hopes CF will one day stand for Cure Found.

There’s still time to join us Saturday! Please consider participating, donating, or helping us get the word out about our event! Go to link in bio to learn more 💜


The Nanny Tax Company Beautifully New Nick Fallico Northside Wellness Center Corboy & Demetrio Peggy Safer Marisue Lacher

Sponsorship opportunities are still available for our upcoming 5K!

"Wealth isn't always measured in dollar signs. We each have time, talent, and creativity, all of which can be powerful forces for positive change. Share your blessings in whatever form they come and to whatever level you have been blessed."

Join us in making a difference at our upcoming 5K benefiting those with rare forms of Cystic Fibrosis (CF). Here’s how:

🔹 Sponsorship: Gain exposure, showcase your commitment, and empower those fighting CF.
🔹 In-kind Donations: Contribute products or services to enhance our event experience.
🔹 Volunteering: Dedicate your tand skills to support the cause.

To learn more about sponsorship opportunities and/or how to donate or get involved, visit the events page on our website or DM . Let's run toward a world without CF! 💜

This is Livvy and Louis. Although they are 22 years apart, they still have one thing in common; they both have cystic fibrosis. CF has come a LONG way since Livvy was born and many new treatments (including CF modulators) have been developed. Unfortunately, both Livvy and Louis cannot benefit from the new medications since their mutations are less common, and science hasn't found the "silver bullet" they need...at least not yet! On June 3rd we are hosting an inaugural 5k event in Park Ridge. Please consider joining us or making a donation. Every dollar counts in helping us find a cure and a better quality of life for those children and young adults who suffer from CF.
Invest in research, buyback life.

May is Cystic Fibrosis Awareness month. Please consider taking the time this month to learn more about CF, educate others, donate or plan on participating in local CF events like our upcoming 5K! 💜

We are excited to announce that on Saturday, June 3 we will be hosting our 1st Annual Louis’ Loop, a Liv for a Cure 5K Run/Walk in Park Ridge! This 5K Aims to raise awareness and funds for those living with rare forms of cystic fibrosis. Come out and join the fun! Register here: https://livforacure.org/events