Cystic Fibrosis Foundation - Louisiana Chapter, New Orleans

Last week, Camryn participated in Teen Advocacy Day and shared their personal story about life with CF and the impact of infections with members of Congress. We’re incredibly proud of her for representing the CF community.

Meet Northshore's Finest Honoree, Rae Dawson!

Congratulations Rae!

Rae is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Rae is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Rae by donating or buying tickets under her name for our finale celebration on September 27th at Benedict's in Mandeville.

Get tickets here: https://finest.cff.org/northshore/raedawsonrealtor


Berkshire Hathaway HomeServices United Properties Metairie

Meet Northshore's Finest Honoree, Kori Palestina!

Congratulations Kori!

Kori is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Kori is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Kori by donating or buying tickets under her name for our finale celebration on September 27th at Benedict's in Mandeville.

Get tickets here: https://finest.cff.org/northshore/koripalestina

Because of the thick, sticky mucus in their lungs, people with cystic fibrosis face a higher risk for infections, and many rely on antibiotics as part of their regular care. This can lead to infections that are resistant to antibiotics.

Today, teens nationwide will participate in the Foundation’s 16th annual Teen Advocacy Day to share personal stories about life with CF and the impact of infection. They’re asking their members of Congress to ensure the PASTEUR Act passes this year. This legislation will incentivize the development of highly innovative antibiotics to fight deadly infections, bringing effective options into the hands of those patients who need them most.

The time is now. Help to amplify their impact by urging your members of Congress to advance the PASTEUR Act: https://act.cff.org/fDhMb4O

Teens from across the country will share their personal stories with Congress to pass the PASTEUR Act during Teen Advocacy Day June 27. Because of the thick, sticky mucus in their lungs, people with cystic fibrosis face a higher risk for infections, and many rely on antibiotics as part of their regular care. Over time, this can lead to infections that are resistant to antibiotics.

The PASTEUR Act seeks to address antibiotic resistance by creating a new post-approval payment model to incentivize the development of highly innovative antibiotics to fight deadly infections. This would bring effective options into the hands of those patients who need them most.

Show your support by sending a message to your members of Congress urging them to pass the PASTEUR Act: https://act.cff.org/ACAJl1p

El 27 de junio, jóvenes de todo el país compartirán sus historias personales en el Congreso para aprobar la Ley PASTEUR durante el Día de la Defensa Juvenil. Debido a la mucosidad espesa y pegajosa en los pulmones, las personas con fibrosis quística enfrentan un mayor riesgo de contraer infecciones, y muchas de ellas dependen de antibióticos como parte de su cuidado habitual. Con el tiempo, esto puede provocar infecciones resistentes a los antibióticos.

La Ley PASTEUR intenta abordar la resistencia a los antibióticos mediante la creación de un nuevo modelo de pago posterior a la autorización para incentivar el desarrollo de antibióticos altamente innovadores, con el fin de combatir las infecciones mortales. Esto aportaría opciones eficaces para aquellos pacientes que más los necesitan.

Demuestre su apoyo enviando un mensaje a los miembros del Congreso alentándolos a que aprueben la Ley PASTEUR.

Meet Northshore's Finest Honoree, Dr. Peter Lu!

Congratulations Dr. Lu!

Dr. Lu is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Dr. Lu is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Dr. Lu by donating or buying tickets under his name for our finale celebration on September 27th at Benedict's in Mandeville.

Get tickets here: https://finest.cff.org/northshore/peterylu

The Fertility Institute

Thank you to all who gave feedback on this year’s walk through our survey or by reaching out personally. We’ve heard you loud and clear – Great Strides New Orleans is a great time, but we are ready to take the fun up a notch or two! We still have a way to go to reach our fundraising goal for 2024, but we know you can do it. Your summer fundraising will earn us all exciting additions for Great Strides 2025!

We are currently at $65K!

Raise $70K by Labor Day to get snoballs!
Raise $80K by Labor Day to get a giant bubble station and snoballs!
Raise $90K by Labor day to get a brass band, bubble station, and snoballs!

Make a donation here: https://fightcf.cff.org/site/Donation2?idb=440318981&df_id=3282&3282.donation=form1&FR_ID=10455&mfc_pref=T&PROXY_ID=10455&PROXY_TYPE=21

Questions? Contact Senior Development Director, Sarina Mohan at [email protected]

Meet Northshore's Finest Honoree, Carli Messina!

Congratulations Carli!

Carli is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Carli is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Carli by donating or buying tickets under her name for our finale celebration on September 27th at Benedict's in Mandeville.

Get tickets here: https://finest.cff.org/northshore/CarliMessinaSTPSO

We’re incredibly proud of Camryn for representing the Louisiana community at the ’s 16th annual Teen Advocacy Day.

Camryn, 14 years old, is from Lecompte, LA, and will enter Rapides High School as a freshman this year. While this marks her debut as a CF Teen Advocate, she has been actively fundraising and raising awareness since the age of five. Her motivation stems from her younger sister, eight-year-old Carrigan, who battles cystic fibrosis. Camryn is enthusiastic about encouraging others to join the fight against this disease.

Camryn is sharing their personal CF story and the impact of infection with to put a face and a name to this disease and highlight the urgent need for new and effective antibiotics.

Speaker Mike Johnson

Owning My Story In my pursuit of authenticity, I’ve realized that proudly sharing my story — both as a gay man and as a person with CF — is an affirmation of my self-worth.

Meet Northshore's Finest Honoree, Jena Pendarvis!

Congratulations Jena!

Jena is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Jena is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Jena by donating or buying tickets under her name for our finale celebration on September 27th at Benedict's in Mandeville.

Get tickets here: https://finest.cff.org/northshore/jenapendarvis

Jena Smith Pendarvis

Meet Northshore's Finest Honoree, Katie Nettles!

Congratulations Katie!

Katie is being recognized by the Cystic Fibrosis Foundation as a 2024 Northshore's Finest Honoree. In receiving this distinction, Katie is one of a select group of professionals being recognized for their leadership, professional successes and philanthropic spirit. Together, honorees join the fight to treat and ultimately CURE cystic fibrosis, a life-threatening genetic disease. Scan the code to support Katie by donating or buying tickets under her name for our finale celebration on September 27th at Benedict's in Mandeville.

Buy tickets here: https://finest.cff.org/northshore/Member/MyPage/7142780/Katie-Nettles

We have made real progress toward our mission to cure cystic fibrosis and provide all people with CF the opportunity to lead long, fulfilling lives. Thanks to generous volunteers like you, the Foundation raised nearly $90 million in 2023. Visit cff.org/AnnualReport to read more of our highlights throughout the year.

cff.org/AnnualReport

Mark your calendar for our passion fundraising workshop, tonight at 8 p.m. ET! Whether you’re just getting started with passion fundraising or want to take your special event fundraising to the next level, you’re invited to this virtual workshop to network, learn, and connect with other CF Foundation volunteers.

Register now: https://cff.zoom.us/meeting/register/tJ0rf-mvrjkiEtJYlPUCrtdtdyUkQeevSXrY

According to 2023 Patient Registry data, the median predicted age of survival for people with cystic fibrosis born between 2019-2023 is 61.

While we are proud of this continued improvement, we recognize that this longer lifespan does not represent the experience of everyone with CF. We’re working harder than ever to develop transformative treatments for all people with CF and support high-quality, specialized care across our CF care center network.

You have helped us achieve this milestone — but there is much more to do. We will never settle for less than curing CF.

We’re partnering with community members and care providers to research, recognize, and effectively treat the mental health needs of people with CF and their families. In 2023, we funded $7.6 million in mental health research projects and awards, and established a working group to identify, prioritize, and support new mental health research in CF. Visit cff.org/AnnualReport to read more of our highlights throughout the year.

cff.org/AnnualReport

How can you turn your passion or hobby into a successful fundraising event? Join us June 18 at 8 p.m. ET for our 60-minute passion fundraising workshop to hear from Foundation volunteers who will share where they found inspiration to create their event, how they empowered their friends and family to get involved, and how you can easily replicate their fundraising strategies. You will also participate in breakout groups, and network with other members of the CF community.

Link: https://cff.zoom.us/meeting/register/tJ0rf-mvrjkiEtJYlPUCrtdtdyUkQeevSXrY

We are dedicated to supporting people with CF on every step of their journeys, from diagnosis to personal milestones. In 2023, the Foundation supported 47 projects related to advanced lung disease and lung transplantation. Visit cff.org/AnnualReport to read more of our highlights throughout the year.

cff.org/AnnualReport

Ready to take your special event fundraising to the next level so you can make the biggest impact for those with cystic fibrosis?

You’re invited to join us June 18 at 8 p.m. ET for a passion fundraising workshop! During this 60-minute virtual workshop, you’ll hear from other Foundation volunteers about where they found inspiration to create their event, how they empowered their friends and family to get involved, and how you can easily replicate their fundraising strategies. You will also have the opportunity to participate in breakout groups and network with other members of the CF community.

We’re saving a seat just for you. RSVP now:
https://cff.zoom.us/meeting/register/tJ0rf-mvrjkiEtJYlPUCrtdtdyUkQeevSXrY

Curing cystic fibrosis is a community effort. By enhancing your fundraising skills, you can help advance our research and make an impact for everyone living with CF.

Join us to connect with other CF Foundation volunteers June 18 at 8 p.m. ET at our passion fundraising workshop. During this hour-long webinar, you will hear tips for hosting successful events, participate in breakout groups, and network with others in the CF community.

Register to join us: https://on.cff.org/3yY0IIi

Eileen McConville, mother of an adult with CF, shares why she gives monthly as a member of the 65 Roses Club, and how her gift makes a difference year-round.

“I wanted a way to make regular donations without challenging my budget. The 65 Roses Club makes it easy for donors to choose an amount that fits their ability to give. Even a small monthly amount adds up to make a big difference.”

We will not rest until CF stands for Cure Found. Give monthly and join the 65 Roses Club today:

https://give.cff.org/65rosesclub/donate?rbref=65RD2303&donate=35&unitid=Louisiana%20-%20New%20Orleans

To help improve quality of life, we are investing in studies to learn more about how cystic fibrosis affects the whole body and in therapies with the potential to help ease symptoms. In 2023, we supported studies to develop new GI treatments, better understand CF nutrition, and evaluate how CF affects pregnancy. Visit cff.org/AnnualReport to read more of our highlights throughout the year.

cff.org/AnnualReport

Everyone with cystic fibrosis deserves access to timely diagnosis and high-quality care. To make that possible, we’re taking steps to address known health care gaps. In 2023, the Foundation provided Health Equity Team Science Awards and continued advocating for essential health programs that expand and protect coverage for people with CF. Visit cff.org/AnnualReport to read more of our highlights throughout the year.

cff.org/AnnualReport