Miracle for Mikeal’s DIPG

Screaming HAPPY BIRTHDAY to my bestie, my love, out baby! Miss Independent!!! Happy 22nd birthday!! Mikeal’s baby sister! Mikealya have a great evening baby and stay safe please

This year has been trying, big things coming next year for Miracles for Miracle for Mikeal’s DIPG.

I can say for sure grief is hard and kudos to the moms that are able to dive in to their foundations stay focused.

It’s been difficult.

We have relocated and are ready for our fresh start. 💜Mikeal will be forever in our hearts and on our mind so saying “fresh start “ does not mean with out her💜

I really miss all out Facebook peeps
Just wanted and pop in and wish everybody a happy new year!🎆 🎊

Be safe out there!

💔Dana was the first person I followed in the DIPG community she was so beautiful and fought with such grace. Prayers to her family 🪽

Dana passed away 4 years ago. She was 19 years old. Dana was pregnant with her daughter Aries when she was diagnosed with DIPG. She fought with grace and tenacity, never missing a moment to let the people around her know how much she loved them. You are missed and loved to eternity, Dana. ❤️
Lenore Scatton

Thank you Go Gold For Childhood Cancer for sharing the stories of these fighters. We are resharing Karters story from your page please follow baby boys story.

Im so ready for breaking news , there is a cure for DIPG

Karter has been fighting DIPG since July. He turned 6 in September and has been going strong in his fight! On December 1st Karter will be undergoing pre testing in order to be fully enrolled into the Sonalasense trial. If all is well from the pretesting then Karter will get his treatment on December 14th!
💫Sending all our thoughts for Karter to be able to qualify!🌟
🎗
What is the clinical trial Sonalasense??
🎗
“DIPG using 'sonodynamic therapy' or SDT. The clinical trial (NCT05123534) is assessing the safety of using focused ultrasound to activate a drug (SONALA-001 a proprietary intravenous formulation of aminolaevulinic acid ALA), administered to the patient. This readily crosses the blood brain barrier and collects preferentially in the tumor tissue, as it is metabolically more active.
On delivery of MRI guided focused ultrasound to the tumor, light is produced within the brain which instantly triggers targeted killing of glioma cells by creating reactive oxygen species. It’s developed by SonALAsense who are the first company in the world to advance SDT into clinical trials. It's non-invasive and crucially leaves normal brain tissue intact.”

Karters Cancer Crusade

💔 Devastating

Remembering the beautiful Trinity My’Kel Parrish on her 4th angelversary. The week of October 15th, 2018, was the last normal week for the family of baby Trinity. That next week she began experiencing what was thought to be a stomach bug, she was throwing up & unable to keep food down, she was also struggling with her balance. Trinity was taken to the ER where a CT scan was suggested. 3 year old Trinity was shockingly diagnosed with DIPG brain cancer, after a tumor was found on her brain stem. Trinity also underwent surgery on October 31st to try to relieve the pressure off of Trinity’s brain as a result of the tumor. Trinity never woke up from this. She gained her wings just one month later after diagnosis on November 20th, 2018, never haven woke up from her coma. Trinity’s story has broken my heart since the moment I heard it, these babies deserve better. No 3 year old should be lost due to brain cancer!!!! Always remembered baby girl. 🦋💜Always loved 🦋💜

Sharing, Samones Aunty that was gifted to her not by blood but by love needs some help. She was there every single day for Miracle for Mikeal’s DIPG journey.

Now she’s fighting a similar battle.

Hey guys, so remember last week when I was telling you about my sister/bestie. How she was diagnosed with an illness l that has symptoms very close to DIPG.
Krystle Irby is now raising awareness on how  Polymyositis is affecting her.😔

I’ve watched my younger beautiful friend go from running, jumping and dancing and moving at her own fast pace. Only to be diagnosed with a monstersious illness . It’s affecting her mobility, her ability to swallow and even her ability to breathe. Her falls are heart breaking, talking to her and learning that she’s becoming weaker is devastating.🥹

She showed me a list and with her permission I am sharing it with my facebook friends. I haven’t been able to find foundations that help with this illness. ❤️

My friend is a fiancé, she is a mom of two beautiful girls, she is also a remote employee.💕💕

However this is a very expensive illness and it takes a village sometimes. 👀

There are moments where it is impossible for her to even get out of her office chair. Moments where she falls and cannot get up at all. ☹️

She is fighting a serious battle, she is a warrior!!!💪🏽

There are tools that can help make her days easier. 🦼

I still don’t have her go fund me but if you can find it in your heart to send her something off her wish list it’s below ♥️or if you would like to get her anything that’s not listed you can inbox her directly or inbox me. ✉️📦🎁📪

With all my heart I cannot wait until she’s better. She doesn’t deserve this she is someone that would bend over backwards to help another.💜

https://www.amazon.com/hz/wishlist/ls/8XQSQT5W1FRH?ref_=wl_share

polymyositis - Google Search

Michael and I attended the ChadTough Defeat DIPG Dream Big Gala last night . An amazing event I hope to never miss.
It’s always a pleasure to see Jenny Mosier and Mark.

Your foundations contribution to finding the cure for DIPG is nothing less than remarkable. As always your Gala was beautifully put together. I laughed, I cried, a lot. I learned that we really are getting close to a cure.

I cannot help but to wish that cure was available to my daughter.

It was nice to hear Dr. Michael Dunn, discuss the advances in research for the cure for DIPG. And heart breaking to hear about his own daughters fight with DIPG. Look him up!

ChadTough Defeat DIPG Foundation
has contributed so much to science. I urge you to hop over to their page and make a donation, large or small it goes towards finding a cure.

Thanks for having us!

ps. also bumped into some DIPG families that we know.Im not exactly a social butterfly but it was so nice to see them 💛

💜 We love ‘Em!

💜💜

Twenty-two years ago, a bright light was born. Mikeal, you should be here celebrating your hopes and dreams and all your many accomplishments. Happy birthday in heaven to an incredible young woman 💜

Today our girl would be 22, never in a million years would I ever for a moment have thought I would not crown her for her birthday.

Since she turned one she’s always been crowned 💕 Each year her tiarrra getting bigger and better. She was our princess 💜 Tendayi made sure you got your crown💜

I never thought I would miss hearing her raspy voice singing happy birthday to herself today is her day 10-10-00.

Nothing in this world would have ever made me think I would be heartbroken today of all days.

The day I became a mom, my biggest goal in life was reached even at 19… I wanted to be what I never officially had.(don’t get me wrong I’ve have had some beautiful women help raise me and I love them dearly)

Today, my heart hurts, but I can smile and say that I am very blessed for every single moment that I got to hug , kiss, raise , praise, love, and cherish you Mikeal Samone Richardson as my daughter. We grew together we learned together. She was my first true everything 💜.

Today we celebrate you, your life and your legacy.

If you can, please change your profile pic to Mikeal for me💜 , or post simply a purple heart and her name. Celebrate her life with us💜👑

I understand some of you have angels of your own and cannot .
Mickey Rich
Miracle for Mikeal’s DIPG

Reading this I understand we lost 5 beautiful children to DIPG in 48 hours or less??

There children are our future! This is such a Tremendous loss!!

Where is the cure? We should not be saying good bye forever to our babies.

It's a hard NO for me!! This isn't acceptable !!

We are absolutely heart broken to hear Dahlia has gained her wings.
We watched this baby with the beautiful eyes and the most adorable voice fight DIPG so gracefully.

She laid down her sword 6/10/22 and now she is her moms sweet angel.

This is so so so unfair. We need a cure!!!

Sleep in peace baby! Your mommy said get your rest baby.

Please keep her mommy Teena Grissom and her brothers in your prayers today.

Day 12 (back tracking)

I highly recommend doing the superhero sprint!!! You can do it virtually if you are not in the DMV💛

We will be there!

ChadTough Defeat DIPG Superhero Sprint & 6K The ChadTough Defeat DIPG Superhero Sprint & 6K is on Sunday May 29, 2022. It includes the following events: Virtual Runner with Shirt, Virtual Runner with No Shirt, 6K Run/Walk, and Kids 1K or Tot Sprint.

Em(ILY) was the most humble, genuine, sweet young ladies that we have ever met. But she was also a tough cookie and she gave DIPG a real fight! It is with very heavy hearts that we announce Emily has left her earthly body and gone to heaven where she can be free of pain!

This is not fair!! Where is the cure? The children are waiting.

Please keep her family in your prayers.

Emily's Army 💜We love you 💜

Sleep in sweet peace baby girl!

Emily Helene Hood
2/14/02 - 2/28/22

Last evening at 6:35 pm our beautiful baby girl made her way to heaven. She was at home surrounded by family. The Office was playing on tv, her favorite Spotify channel Love coffee, Love Jesus was playing “Well Done” in the background. We imagined how exciting it was for her to finally see the face of Jesus as she was escorted into his presence, to WALK and raise her hands in praise and to speak again!!!

Our hearts are shattered and we hurt beyond imagination but we know her body is healed now and when we meet her again in heaven it’ll be the biggest and best family reunion you could ever imagine. Every day from here is one day closer to seeing her again.

“Well done my good and faithful one.
Welcome to the place where you belong.”

Wishing Jace Ward - a Happy Birthday in heaven! Jace was truly an inspiration. Gone far too soon🥺💛

We lost her on this day, two years ago
and every since this day it's been hard it hasn't changed...

hard to accept her not being here
hard to believe I have to go on without her
hard to wake up
hard to go to sleep
hard to breath
hard to not cry

Mikeal Samone Richardson is literally my every other thought. But the thoughts of her not being here are pushed out immediately, like I just cannot accept life without her.

I know I have no choice, and I know this is why waking up to a new day is so hard for me, it feels like I lose her every single day. I know it's because I have been holding on to her being here.

I know she's with me, but I want to hug her, hear her , touch her, I miss my daughter more than anyone will ever understand.

Thank you for all of your inboxes and text. Today, I'm going to take a mental break.

We will continue to honor her through her legacy foundation 💜

Today at 4:50pm heaven gained a new angel, and I lost the best friend I’ve ever had, my first born. Mikeal won her battle, on her terms. She had enough and she took her last breath so peacefully today. She was not in any pain. She was surrounded by her family.

I saw my daughter right after she passed away very clear on the opposite side of the room from her body, she smiled her big and said “I’m ok mommy”.

I know she’s ran through heaven’s gates singing, dancing, and smiling because she could be herself again.

DIPG has another thing coming! Because I’m dedicating my life to fighting this beast.

We humbly ask for help to provide her one last celebration!  Her end of life celebration 💛

Cash Ap: $Inikabu

PayPal: https://www.paypal.me/miracle4mikeal

Go fund me link :

https://www.gofundme.com/f/6zj5zhs?utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&rcid=f599df502ba74c1e82ea513d0ae5fced

A Few After.....

A few minutes after her birth.....
I could hear her announcing scream.
I couldn't believe she was finally here,
The realization of my dream.

A few hours after her birth.....
I held her so close to my chest.
Somehow that little girl let me see,
A special love that never left.

A few days after her birth.....
I held her tiny little hand.
I told her there would be lots of things
That I would help her to understand.

A few weeks after her birth.....
She had that sparkle in her eyes,
And when she showed me that little smile,
I thought that I would surely die.

A few months after her birth.....
She was just beginning to learn.
She didn't like me to go away,
And she cried until I returned.

A few years after her birth......
I still couldn't believe she was mine.
We talked and laughed and went for walks.
We had so many special times..

A few after.....

A few minutes after her death.....
I didn't know I needed to scream.
I thought that she was still safe and here...
I didn't know the truth of my dream.

A few hours after her death.....
I felt a strangeness within my chest.
Something was wrong that I couldn't see.
God! I didn't know that she had left.

A few days after her death.....
I held her cold and lifeless hand.
There were just so very many things
That I could not fully understand.

A few weeks after her death.....
That sparkle stolen from my eyes,
No longer to see her beautiful smile.
I never, ever thought that she would die.

A few months after her death.....
There was so much I needed to learn.
I was confused when she went away,
And I still waited for her return.

A few years after her death.....
I still wish that she could be mine,
To talk and laugh and go for walks.
I miss those special moments in time.

A few after.....

A few minutes after MY death......
Once again I will hear her scream,
"Hey Mom, it's me, I'm over here,
And Mom, this time it's not a dream."

A few hours after MY death.......
I'll hold her close again to my chest.
She’ll look at me and say... "Now see?",
It doesn't seem so long since I left."

A few days after MY death.....
She will gently take me by the hand,
And show me all the glorious things,
And help me to understand.

A few weeks after MY death.....
I'll see that sparkle in her eyes.
Once again she'll warm me with her smile,
And say... "You see, Mom, I didn't die".

A few months after MY death.......
Together we'll have so much to learn.
We'll never have to go away,
Or long for each other's return.

A few years after MY death.....
Forever she will always be mine.
We'll talk and laugh and go for long walks,
Because we'll have nothing...... but time.

Missing you so much it hurts😔💔

💜Yesterday Miracle for Mikeal's Legacy Foundation donated 12 ducks and several wrist bands to the The Hospital for Sick Children

This cuts deep, this beautiful young lady was a good friend our daughter's. They bonded due to the monster they both fought so gracefully.

She fought DIPG with the bravest most humble heart.

Thank you Elijah Bartee for the awareness you spread with all of your well spoken speeches . You will be missed💛

We send our deepest condolences to her family may she sleep in peace. 💔

We lost our beautiful daughter Anjalie this morning at 109am, surrounded by family & friends. She fought this horrible cancer for over 3 years. She was the most loving, giving, amazing human being in the world, so selfless. God has called a beautiful angel home today. Please pray for our family at this time & Anjalie’s soul. Funeral announcements later today.