Association for Glycogen Storage Disease

Thats a wrap !!!!!!!!

Thanks for such a successful 2024 Conference, we had a great time in Minneapolis and hope you did too ! See you next year in Denver !

Our team is currently working through the video footage to see if it is usable and something we can share. We hope to have something to share with you soon. Stay tuned for more information on our videos.

Lastly, if you attended the 2024 Conference and have not yet completed our survey, please do as this helps us better our future conferences. Thank you!

CONFERENCE SURVEY FOR ATTENDEES :
https://docs.google.com/forms/d/1bLNEnbgfrF0En_LA6upTZITAxg7rV9LGxe-noFhDgIc/viewform?edit_requested=true

Last day of talks. Thanks for a great 2024 conference , what a success !!

Great second day !!!

Good Morning!

We’re getting started soon!

We’re almost ready to begin!

All 210 of you traveling to Minneapolis for the conference this weekend, we wish you safe travels, and we are so excited to see you all SOON!

Should you have any questions, or need anything on your travels, feel free to send us a facebook message as its going to be likely the best way of getting ahold of us while we are "mobile"

See you there!! - AGSD Board

If you flying into Minneapolis for the 2024 AGSD Conference don't forget to schedule your shuttle pick up with the hotel THIS WEEK !

With the 2024 AGSD Conference just around the corner we wanted to make sure to share some reminders! If you are flying in please be sure to make your shuttle reservations THIS WEEK for your airport pick up !

We are almost 2 weeks away from the 2024 AGSD conference in Minneapolis MN. We hope you are as excited as we are! We have 203 registered so far! Just a reminder that after June 14th Registration rates increase so if you plan on joining us register now! https://agsdus.org/event-5528667

Happy Friday ! If you haven't already don't forget to order your shirts for the conference by the 9th (to have them arrive before the conference )! Aside from our conference shirt we have other great AGSD / Minneapolis shirts and sweatshirts available for all ages!

I spoke to the vendor today and all shirts that were ordered prior to June 4th are getting shipped out this coming Tuesday on 2 day shipping, so I would expect to see them come in late next week.

https://agsdus.itemorder.com/shop/home/

Woah can we make to 200!!!! Last day to book hotel under our group rate is Today and registration is still open!! See comments for links !!

The Hotel group rate has been extended until THIS FRIDAY this 31st. Book now under our discounted rate. https://www.hilton.com/en/book/reservation/rooms/?ctyhocn=MSPBWHF&arrivalDate=2024-06-24&departureDate=2024-07-01&groupCode=93K&room1NumAdults=1&cid=OM%2CWW%2CHILTONLINK%2CEN%2CDirectLink

Friendly reminder : Deadline to book hotel under our group rate is May 25th!
Conference is June 28th - 30th
https://www.hilton.com/en/book/reservation/rooms/?ctyhocn=MSPBWHF&arrivalDate=2024-06-24&departureDate=2024-07-01&groupCode=93K&room1NumAdults=1&cid=OM%2CWW%2CHILTONLINK%2CEN%2CDirectLink

Send us photos of your to be shown at the 2024 AGSD Conference in Minneapolis MN June 28-30

Happy Saturday . Just a reminder that we be taking our traditional group photo Saturday June 29th. Order your shirts by June 9th to ensure delivery prior to the conference ! We will have a couple of shirts for sale at the conference but not many so be sure to order yours today! https://agsdus.itemorder.com/shop/home/

For our Saturday evening event during the conference in Minneapolis we will be bussing people to the nearby Mall of America and will have tickets for any registrant who would like to go to the Nickelodeon Universe (located in the MOA)! There are over 27 rides for all ages, and even a Paw Patrol land for the little ones! We feel this will be a great experience to interact with others in the GSD community AND have some fun! CHECK IT OUT!

https://youtu.be/bYeReblGPj4?si=PA_k0969DQ-JXrlw

Happy Friday !
Just a reminder , If you plan on attending the conference this June don't wait to get your Conference shirt. Official Conference T-shirts and other Minneapolis 2024 Swag is available now for purchase. Order by June 9th ! https://agsdus.itemorder.com/shop/home/

Just a reminder that WE WILL HAVE A KIDS' ROOM this year at the conference in Minneapolis, available all day Saturday so you can enjoy the conference and have an opportunity to listen to our speakers and ask your questions! The kids' room will have activities and things to do for the older kids, and there are plenty of staff that will be there for the little ones as well. Take a look at some cute faces from last year's kids' room!

The 2024 Conference is getting close! 😎Just wanted to make you aware of some upcoming deadlines. If you are a current AGSD member and experiencing
extreme financial hardship, financial assistance is
available through an application process. Please see the registration link below to learn more. Hotel link listed below as well . If you have any questions please feel free to reach out to [email protected]

Its here ! Conference shirts are NOW AVAILABLE for purchase! Big thanks to all of our great sponsors! We are excited to announce we have two patient advocacy groups that will be at the 2024 Conference in Minneapolis MN : Sophie’s Hope Foundation - Curegsd1b and The GSD3 Foundation .

Place your order by June 9th to guarantee delivery prior to the conference! While there are a variety of options for sale, the Purple shirt is the official conference shirt and would love to have as many people wearing one as possible when we take our group photo Saturday during the conference.

https://agsdus.itemorder.com/shop/home/

We have some great vendors and patient advocacy groups lined up for our 2024 AGSD Conference and yet, we want to make sure we do not miss any great opportunities for vendors within our community! So if you know a vendor who would be interested, or if you are a patient advocacy group and want to be represented at our 2024 AGSD Conference -- please email us at [email protected] Once we have all our vendors' names confirmed, we will be finalizing our conference shirts with their logos and should have them ready to order SOON!

Excited to announce some of our speakers for the 2024 AGSD Conference taking place this June 28th - June 30th in Minneapolis MN ! Registration and Hotel info in the comments below !

Happy Friday!
Get excited!!!! Here are some of our speaker topics for the 2024 AGSD conference (June 28th - 30th). With half of our topics being general topics for all GSD types and the other half being specific topics for types 0,1A,1B,II,III,IV,V,VI,VII, IX & XI we think there will be something for everyone! With over 120 registrants we hope you are as excited about this event as we are!

Haven't registered yet, no problem, there is still time!
Check out links in comments below !

Questions? Feel free to email us at [email protected]

https://www.genethon.com/genethon-evaluates-a-new-therapeutic-approach-for-glycogen-storage-disease-iii/

Genethon evaluates a new therapeutic approach for glycogen storage disease III Genethon evaluates a new therapeutic approach for glycogen storage disease III In a study published in the « The Journal of Clinical Investigation » on November 28, Jérémy Rouillon, a research engineer at Genethon and Antoine Gardin, a pediatrician and PhD student at Généthon, in the Immunology and Liver Diseases team led by Giuseppe Ronzitti, have designed an innovative...