The ALS Association Wisconsin

researchers are working tirelessly in the search for new treatments and a cure. Our Research Matters e-newsletter includes the latest updates every month.

Subscribe now: https://bit.ly/RM-Subscribe

While some ALS researchers are searching for a cure, others are finding ways to improve care and quality of life for people living with the disease today.

Learn about five of these projects:
https://bit.ly/49cEShD

Some people with have difficulty chewing and swallowing. In these cases, a feeding tube can supplement or replace eating foods through the mouth. Read more: https://bit.ly/ALSNutrition

The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered.

Our team understands ALS, FTD, and related disorders can impact an entire family even when just one person is diagnosed. However, we also recognize the unique challenges and situations that arise from familial or genetic diseases. We have designed this exclusive event to recognize and address these topics for people living with or at risk for a familial and/or genetic form of FTD/ALS. You will have the chance to hear from genetic counselors, neurologists, and social workers on the genetics of FTD and ALS and have the chance to ask your questions in real-time.

To view the conference agenda, make a gift, or learn about sponsorship opportunities, lease visit our website at https://www.pennftdcenter.org/familial-conference. If you have any questions, please reach out to us at [email protected].

Beating ALS is a team effort, and The ALS Association has partnered with the Milwaukee Admirals to raise awareness and needed funds as we are Stickin’ it to ALS to find a cure.
Tickets are going fast! Get yours before they sell out here: bit.ly/StickinItToALS

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📅 Saturday, February 24
📍 Panther Arena (400 W. Kilbourn Ave, Milwaukee)
🍴 3:30 PM - ALS Private Party/Pre-Game Festivities (Live Music, Food & Beverages, Admirals PlayZone)
🏒 6:00 PM - Milwaukee Admirals Game
🎸 Post Game - Complimentary Jackson Dean Concert

ALS Night with the Admirals - Stickin' it to ALS! ALS Night with the Admirals - Stickin' it to ALS! Date & Time Saturday, February 24, 2024 3:30 - 8:30pm Location WI United States Purchase Tickets Image Beating ALS is a team effort, and The ALS Association has partnered with the Milwaukee Admirals to raise awareness and needed funds as we are Stick...

Most people living with will consider a feeding tube at some point in their journey. It is common for patients to be hesitant about it, but often, once they see the benefits of tube feeding, they regret not making the decision sooner. Have questions about feeding tubes? Find answers in our latest blog post: http://bit.ly/FeedingTubeALS

Whether denying claims outright or delaying approval when time is of the essence, Medicare Advantage insurance companies are putting their policyholders in danger.

Learn more about the challenges often faced by people with and their families when navigating insurance denials, and find resources to help:
https://bit.ly/3SoIeGL

It's . On average, 40-50% of people living with have an increased metabolism, in which case increasing calorie intake through a feeding tube may be necessary to meet nutritional needs.

Celebrating 10 Years of Impact with the !

Can you believe it's been a decade since the Ice Bucket Challenge took the world by storm?

In 2014, the Ice Bucket Challenge became a global sensation, raising awareness of ALS and funding vital research. Millions took the plunge and thanks to your freezing feats and generous contributions, the ALS community has witnessed significant strides in research, patient care, and advocacy.

Did you take the challenge or witness the icy adventures of friends and family? Share your favorite Ice Bucket Challenge moments and memories in the comments!

Learn more about ALS, donate, or get involved: als.org/ibc

68% of ALS caregivers said they spent more than 30 hours per week providing care to their loved one. ALS Care Connection is a simple online tool that helps organize friends and family to help take on some daily tasks to make caregivers' lives easier.

Discover how ALS Care Connection can help you!
https://bit.ly/CCALS

WALK WEBSITES ARE OPEN! 🎉

It's time to register for you local Walk to Defeat ALS! 2024 websites are now open for registration! Find your Walk here: https://bit.ly/3SHhS4r

Beating ALS is a team effort, and we thank Milwaukee Admirals for your partnership. There are many ways for you to become involved as a sponsor of our events and you can pick the level that best suits your company’s or foundation’s philanthropic interests, increase brand awareness and visibility, as well as demonstrate your commitment to the ALS community.

Click the link below for details regarding sponsorship opportunities or to get your ticket packages to the game! Don’t be left out of the Celly-bration!
bit.ly/StickinItToALS

Palliative care maximizes physical and emotional comfort at all stages of a disease, and can be used at the same time as other treatments. Learn more about palliative care for people living with ALS in an upcoming webinar presented by Dr. Ambereen Mehta from Johns Hopkins Medicine: https://bit.ly/palliative-carewebinar

Visit als.org/research to dive into the latest ALS research findings, learn about ongoing studies, and discover how your involvement can impact the search for a cure.

Looking for ALS advice and information whenever and wherever you need it? My ALS Journey™ is an interactive tool designed to help guide you to resources. By sharing your specific symptoms as you go, you will be able to stay informed and prepare for conversations with your care team. Get started: alsjourney.org

Congress is back in session deciding on the future of research right NOW. Take action to urge your lawmakers to : https://bit.ly/als-research

This winter, the fight to end ALS continues! Use your creativity to help support the ALS community. Get started: https://bit.ly/defeat-als-yourway

You've got mail! 📫
Our e-newsletter could be landing in your inbox! Sign up today for our monthly updates: http://bit.ly/ALSnewsletter

Join us for a pre-game party with live music, food and drinks, a special commemorative item and more, followed by the game where the Admirals will dominate on the ice against the Chicago Wolves. Get your packages before they sell out!

bit.ly/StickinItToALS

“This Creative Pursuits class was an opportunity to challenge my thinking! It gave me something to look forward to and learn something new.” - Anonymous

Learn more: bit.ly/Creative-Pursuits
Sign up for a class: bit.ly/Register-Creative

Never Surrender Inc will host an ALS Light of Hope Panel with leading ALS Neurologists on Saturday, February 10, 2024, from 1:00 – 2:30 pm in the Cobalt Room at the Black Bear Casino Resort. Esteemed panelists Merit Cudkowicz, MD, MSC (Massachusetts General Hospital,) Amber Erickson, MD (Essentia Health,) and David Walk, MD (University of Minnesota) will discuss the current and future state of ALS research and will take questions from the audience. Kent Hrbek, former MN Twin and long-time advocate for ALS research, will moderate this event. This free event is open to the public and may be attended in-person or via webstream. Registration is required and made be at this link: http://tiny.cc/lightofhope

Receiving a diagnosis of can be overwhelming. But you are not alone. Find resources and help: https://bit.ly/ALSNewlyDiagnosed

Multidisciplinary care brings together a team of healthcare professionals so people with can receive care from all their providers during a single clinic visit. Find an ALS clinic near you: http://bit.ly/ALSCenters

“How do I live with this disease?”

This is a common question people ask after being diagnosed with . We have resources to help. Learn more: https://bit.ly/NavigatingALS

Your stories mobilize lawmakers to pass legislation to . Share yours today: https://bit.ly/Your-ALS-Story

Depending on where you live, cold weather is likely something you have to deal with during the winter months. While lower temperatures can present special challenges for people living with , it doesn’t mean they can’t enjoy the season. https://bit.ly/Tips-Cold