Choice Research Lab

Je suis ravie de vous présenter la version française du site web du Labo de recherche sur la prise de décision. En tant que professeure dans une université canadienne bilingue , il est important de partager nos recherches en français et en anglais. Pour en savoir plus, cliquez ici :

The Choice Research Lab Dr. Karine Toupin April

ICYMI: We developed a case study paper about our approach to knowledge translation where youth participated in research about . A knowledge broker with lived experience of was involved to support and translation. Check it out on our website: https://buff.ly/3RzcTzD

If you visiting a healthcare provider, you can consider using the ASK - SHARE - KNOW questions

1 - What are my options?
2 - What are the possible benefits and harms of those options?
3 - How likely are each of those benefits and harms to happen to me? What will happen if I do nothing?

Learn more by reading this paper: https://buff.ly/410ABcG

What is decision coaching? A decision coach provides patients with non directive support to help prepare them to communicate their decision to others involved in the decision. You can learn more by visiting this OttawaHospital Research Institute website.

Decision Coaching - Patient Decision Aids - Ottawa Hospital Research Institute A decision coach is a trained health care provider who is non-directive and provides support that aims to develop patients'/persons' skills in:

We developed a list of shared decision making resources that can help health care care providers and patients learn more about the process, available patient decision aids, decision coaching, and more! You can access these resources on our website here. https://buff.ly/3YgvEul

We have a new plain language summary on our website for our paper “Engaging young people with juvenile idiopathic arthritis in shared decision-making research”. Super proud that patient partners are the main authors of this paper. Check it out today:

Plain language summaries ffffff

Excited to be part of to in Ottawa with Natasha Trehan and Take a Pain Check. What are you doing to learn more about ?

I wrote a blog post for Take a Pain Check Foundation “Shared Decision Making: A Future Without Limits”. I explain how my personal experiences with asthma sparked my interest in shared decision making and my career as a researcher. Learn more by reading this blog post:

Shared Decision Making: A Future Without Limits For the past 20 years, I have immersed myself in the research field involving young people with arthritis and their families. I am also a patient myself, living with asthma since I was born. When I decided to write this blog post, I wondered what would be most interesting and valuable for young peop...

Last month, we spoke at the Canadian Rheumatology Association annual meeting about . View the infographics co-developed w/ Canadian Arthritis Patient Alliance . Patient perspectives reflect > 25 responses from people w/ arthritis. Thank you for your feedback! https://buff.ly/3YgvEul

We ran an informal survey with Canadian Arthritis Patient Alliance Take a Pain Check and asked people with arthritis their views about decision making with health care providers and shared decision making. This graphic highlights what they said - feel free to share your thoughts about what you see from your perspective (this includes everyone like patients, health care providers, researchers, etc)!

Thank you to the people who shared their perspectives about (SDM). We want to learn more from people with for our presentation at the Canadian Rheumatology Association meeting. What do you want health care professionals (HCP’s) to do to support SDM at your next appointment? What tips or suggestions would you give HCP’s? You can also share your thoughts privately by completing this short survey:

Q and A about shared decision making Medical Board members from Take a Pain Check - Dr. Elizabeth Stringer, Laurie Proulx (Canadian Arthritis Patient Alliance), Dr. Toupin-April (Choice Research Lab) as well as Natasha, will be presenting at the Canadian Rheumatology Association (CRA) annual meeting about shared decision making (SDM).....

Thank you to the people with arthritis who shared their perspectives about (SDM). Continuing our conversation, we want to hear from people with to get their perspectives for our presentation at the Canadian Rheumatology Association meeting. Please identify a word or two that describes your thoughts about SDM - what does SDM mean to you? You can also share your thoughts privately by completing this short survey: https://buff.ly/3QJ48mY Canadian Arthritis Patient Alliance Take a Pain Check

Q and A about shared decision making Medical Board members from Take a Pain Check - Dr. Elizabeth Stringer, Laurie Proulx (Canadian Arthritis Patient Alliance), Dr. Toupin-April (Choice Research Lab) as well as Natasha, will be presenting at the Canadian Rheumatology Association (CRA) annual meeting about shared decision making (SDM).....

5 week online Meditation sessions
Tuesdays - Jan 24th - Feb 21st
10-10:45 am AT (Atlantic Canada)
9-9:45 am ET (Ontario)
Cost: $15 (unable to offer refunds)

To register email Mark at [email protected]
( Limited seats )

Welcome! You are invited to join a webinar: Arthritis Talks: Tax Credits, Health Benefits and Financial Wellness. After registering, you will receive a confirmation email about joining the webinar. Many people with arthritis face barriers to their financial security. While some manage well with little to no additional support, others may require additional financial support to manage their disease and their other financial priorities. Assistive devices, medication and therapy are added expense...

Miss our newsletter? Come check it out on our website to learn what we're up to and how to get involved. Subscribing is easy by scrolling down to the bottom of our news page! https://buff.ly/3ms2bNB

Patient partners on our research team have impacted our team’s approach to . We made changes to how we disseminate information about our work to patients and the public. For example, we developed a website with plain language summaries of research. Check it out on our website today! https://buff.ly/3RzcTzD

We work with arthritis community groups, like Take a Pain Check, Cassie & Friends, and Canadian Arthritis Patient Alliance - they offer evidence-based resources, educational programming, and podcasts to keep youth and families informed of managing . Follow or like them today to stay in the know! Canadian Arthritis Patient Alliance Cassie and Friends Society for Juvenile Arthritis and Rheumatic Diseases Take a Pain Check Links to their website can be found on our lab's website - https://buff.ly/3z6RG9v

Sometimes we need to reflect on our origin stories or why we started working in health care. I reflected on why I work with patients and communities in my role as a health researcher in this blog post I wrote for Take a Pain Check -

Patient Engagement in Research When I was a teenager going to the respirology clinic for my asthma, I was aware there was research being done. I participated in a few research projects as a participant. I thought it was important to do research and to ask patients’ opinions of their own condition to help improve health services...

Patient partners on our research team compiled resources about . Clinical Trials Ontario has a glossary & other resources. Mood Disorders Society of Canada has training about research & lived experience training. Do you have any other resources to share? (links in bio)

Clinical Trial Terms Glossary - Clinical Trials Ontario This glossary provides definitions of terms related to clinical trials. We worked with our College of Lived Experience to develop this glossary.

Interested in joining TAPC as an Adult Ambassador? Here are some of the responsibilities you will have as an ambassador:

- Learn about TAPC and more about rheumatic diseases
- Brainstorm and execute plans that contribute to the growth of Take a Pain Check
- Help with fundraising activities and contribute ideas on how to fundraise
- Establish a presence of TAPC within the community
- Create blog posts and short stories to empower and educate others will be published on our Patreon.
- Follow and promote Take a Pain Check’s social media platforms by:
- Hosting 1 Joint Chat Rheum Event

To apply, click the link in our bio and join the TAPC community!

This is a shout out to Dr Andrea Furlan, a physician, scientist and professor of Medicine in Toronto who has developed a wide range of videos for people living in pain. There are videos about diagnosing pain, types of chronic pain, and preventing and treating pain - check out her Youtube channel to learn more.

Dr. Andrea Furlan - YouTube I am a physician, scientist and professor of Medicine in Toronto, Ontario, Canada. 2022 Toronto's Top Doctor in Pain Management https://streetsoftoronto.com/...

Based on input from patient partners on our team, we set up a presence on social media and we have expanded our presence to Facebook too. Please consider following or liking our page to stay up to date on what we're doing together. https://buff.ly/3XcL97m

There is a lot of great work going in the pain community in Canada that includes patient organizations, research teams/networks, & more. Check out the work of these organizations/teams to find resources about pain management. Please tag other organizations, individuals, or groups - I’m sure I missed many of you! Pain Canada Chronic Pain Network Canadian Arthritis Patient Alliance Take a Pain Check

Chronic pain can impact every aspect of one's life. It helps to have at least one person in your life who understands. Reach out to People in Pain Network and ask about peer support groups available to you.

Today marks the beginning of . Did you know chronic pain was only recently recognized by as a disease in its own right? Let’s and advocate for improved care for all people with pain.

It's not too late to register for the first national pain conference for and by people living with chronic pain. Our board members Therese Lane and Linda Wilhelm will be speaking at the conference about chronic pain and equity and the Canadian Pain Taskforce. Register today and connect with the pain community! https://buff.ly/3sPAnGc

Patient partners have impacted our team’s approach to - without their input, we would not be on social media. We’re on Twitter, Facebook and most importantly Instagram because that’s where youth with get their information!

Patient partners on our research team have impacted our team’s approach to . Patient partners are authors on research publications, including poster & oral conference presentations & manuscripts. They actively contributed to the design & conduct of health research and are recognized for their efforts/expertise. This short video developed by explains what is typically involved in publishing a paper.

How do I publish a paper? For publication teams including patient partners Patient and public partners play important roles in the design and conduct of research, and are increasingly more involved in the publication process, includ...

ICYMI: Check out the documentary with patient partners involved in the Choice Research Lab & Naomi Abrahams which was produced by Natasha. Working with patient partners has positively impacted the research and patient partners have experienced benefits too (see this short clip https://buff.ly/3D8LLBK ). Thanks for the shout out to the Choice Research Lab! Check out the full documentary here:
https://buff.ly/3FAJvGj