European Lung Foundation

The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

21/09/2024

that singing can be a great way to manage symptoms of ?

Getting involved in a Singing for Lung Health programme is an enjoyable way to tackle feelings of isolation and improve social participation.

There are many other ways that the condition can be managed. Learn more at the link in our bio.

20/09/2024

September is awareness month!

Find out more about pulmonary fibrosis on our website: https://europeanlung.org/en/information-hub/lung-conditions/pulmonary-fibrosis/

Join us as we advocate for people with pulmonary fibrosis through education and raising awareness. ELF offers many opportunities for people living with pulmonary fibrosis through joining our Patient Advisory Group (PAG) or sharing their experience at events and conferences or supporting our ongoing campaigns. Contact us to learn more.

19/09/2024

Registration for the conference is now open!

📌26 October 2024

Join us to learn more about from the experts and those affected by the condition. This event will cover topics including the impact of cough and current and future treatments for chronic cough.

Visit the event page to find out more and register for free here: https://europeanlung.org/en/get-involved/events/chronic-cough-patient-conference-2024/

Photos from European Lung Foundation's post 18/09/2024

Every year at the ERS Congress, there is the opportunity to take part in a 5km run or 2.5km walk and raise money for the Healthy Lungs for Life campaign!

Photos from this year’s Event at Congress are now available to download. If you decide to share any of our photos on social media, please tag us

All photos can be found on our website: www.europeanlung.org/en/get-involved/events/take-the-active-option-at-congress-2024/

18/09/2024

At ELF, we aspire to make the voices of people living with lung conditions heard.

Join us for this year's annual stakeholder event on 16 October. Together we will discuss our achievements of the last year and look ahead to any key strategic activities and priorities for the next financial year.

Findings from the event will feed into the ELF budget and strategy for 2025/26 to ensure your vision is our vision.

Find out more: https://europeanlung.org/en/get-involved/events/annual-stakeholder-meeting-2024/

16/09/2024

Last week at the , we had the honour of announcing Walter Klepetko as the winner of this year’s in recognition of his work improving access to lung transplants around the world.

Through establishing Europe’s most successful EU-wide transplant programme, Dr Klepetko has improved the lives of many people living with .

Read more about his outstanding work here: https://europeanlung.org/en/news/

16/09/2024

A key role of a patient representative is improving awareness of your condition. This can involve posting on social media, writing a blog about your journey, or simply talking to others. There is a way for everyone to get involved!

Our European Patient Ambassador Programme ( ) training modules explore opportunities for patient involvement, including ‘working with the media’.

Find out more here: https://europeanlung.org/en/get-involved/european-patient-ambassador-programme-epap/

13/09/2024

Recently at the , we released our 2023/2024 annual report.

Over the past year, we have been very busy working to improve for all. Some highlights include establishing our Patient Advisory Group (PAG) and the development of the .

Find out more about our achievements here: https://europeanlung.org/en/about-us/about-elf/

11/09/2024

We had a great time at the 2024 in Vienna.

Thank you for joining us! We will be sharing more highlights from the Congress and the new research presented here in the coming weeks.

Sign up to our newsletter to keep up to date: https://europeanlung.org/en/news/

11/09/2024

It has been a fantastic week for Healthy Lungs for Life in Vienna, with activities held every day to raise awareness of the importance of lung health. European Respiratory Society

Over the weekend, more than 500 people joined us to get a free lung function test in the Prater Wien before the team travelled to local schools! This year we wanted to get young people excited and engaged in conversations about their lung health.

We will be sharing a report about all our activities in the coming days – but for now – thank you to everyone who supported and shared the campaign. From visiting the Prater or speaking to the team in the World Village, to joining us for our annual event on Tuesday!

See you next year

Learn more about our Healthy Lungs for Life campaign at: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/

Home 11/09/2024

Thank you to Clean Air Fund for supporting our Healthy Lungs for Life activities at , including this morning's workshop on 'Lung health in childhood'.

This support helps us to increase awareness of the importance of good lung health and the impact of air pollution. Learn more about their work and impact:

Home A philanthropic foundation tackling global air pollution. We work with governments, funders, businesses and campaigners to deliver clean air.

11/09/2024

It is our final morning in Vienna, and the last day of 2024!

Today we have the “Lung health in childhood: a public health approach to preventing lung disease before it starts” workshop. Ed Powell, Chair of the will be joined by Monika Gappa, ERS President, to talk about what more needs to be done to place childhood lung health higher on the public health agenda! European Respiratory Society

Learn more: https://live.ersnet.org/programme/session/92727

10/09/2024

We have been visiting schools in Vienna this week as part of our Healthy Lungs for Life for Schools campaign. European Respiratory Society

This initiative aims to get young people excited about their lungs at school. We have developed, a series of resources for schools. They are available for different age groups and are in line with the needs set out in the curriculum.

All the resources are free to use and you can access them via our website: https://europeanlung.org/en/healthy-lungs-for-life-for-schools/

09/09/2024

Following and the launch of in Vienna, Dr Maria Neira - Director of Public Health, Environment and Social Determinants of Health at the World Health Organization (WHO) - talks about ensuring patients feel empowered and informed on risk factors that impact our lungs!

European Respiratory Society

09/09/2024

We joined with ERN-LUNG - European Reference Network for rare respiratory diseases today to put a spotlight on . Taking place in the World Village at the , patients and professionals discussed the transplant journey and the changes patients want to see in the future.


ELF Chair, Dimitris Kontopidis opened the session, which formed part of our on-going activities on transplantation. Highlights included hearing personal experiences from Natalia Maeva and Stefano Pavanello, giving their perspectives after receiving lung transplants themselves.


We also launched our new booklet sharing the patient perspective on transplantation during the session; it is also free to download online: https://europeanlung.org/en/information-hub/living-with-a-lung-condition/lung-transplant/ #:~:text=Lung%20Transplantation%3A%20the%20patient%20perspective%C2%A0

If you want to learn more about our activities on transplantation, including the ELF Chair's Campaign, that aims to improve access to transplantation across countries, visit the link above.

09/09/2024

Good morning from in Vienna!

Our Monday session highlights from the ELF patient track include “Metabolic changes in chronic lung disease” and “The future of lung transplantation for cystic fibrosis.”

Explore the full list of our recommended sessions here: https://europeanlung.org/en/get-involved/events/ers-congress-2024/

And don’t forget to join us in our patient community space where today we will be talking about transplantation and EU Projects, and follow us on Twitter for live updates!

08/09/2024

Walter Klepetko, physician and researcher, has received this year's ELF Award to recognise his dedication to ensuring access to lung transplants for all.

Learn more: https://europeanlung.org/en/news-and-blog/life-saving-lung-transplants-walter-klepetko-receives-the-elf-award-for-establishing-eu-wide-training-programme/

08/09/2024

The provides a great opportunity to collaborate with others on a mission to improve lung health, such as members from our Patient Organisation Network and healthcare professionals.

If you are joining us in Vienna, make sure to find the team in the patient community space, World Village! We have sessions every day at 3pm, with coffee and refreshments.

It is always exciting to catch up in-person, and we are excited to see what the rest of the ERS Congress has to offer!

08/09/2024

Good morning from the Messe Wien in Vienna. We have another busy day ahead at

Check out our 'top picks' from the programme here: https://europeanlung.org/en/news-and-blog/ers-congress-2024-patient-track/

Photos from European Lung Foundation's post 07/09/2024

Wow, what a day! Already at we have given over 300 lung function tests at our event and hosted Patient Organisation Networking Day with more than 80 participants in the room!

There is still lots of opportunities to get involved, so join us again tomorrow for more coverage of our time at the ERS Congress European Respiratory Society

07/09/2024

Thanks to everyone who attended the ELF Patient Organisation Networking Day! We hope you have enjoyed the day as much as us. It was great to be joined by so many people, in person and online, and hear lots of interesting perspectives on ‘Driving Policy and Healthcare Change’

The recording will be available to watch on the event page soon: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

07/09/2024

Good afternoon from Vienna! We are at the entrance to the Vienna Prater bringing Healthy Lungs for Life to residents and visitors in the city. Come and join us for a free lung test, and to learn more about how to keep your lungs healthy. We are open from 11:00 – 18:00 CET today and tomorrow.

Not here with us in Vienna? Learn more about testing your lungs on our website: https://europeanlung.org/en/information-hub/lung-tests-and-procedures/testing-your-lungs-spirometry/

07/09/2024

Today is the International Day of Clean Air for Blue Skies! We all have a responsibility to protect our atmosphere and ensure that we can all .

Find out how the campaign aims to improve lung health, and learn more about getting involved: https://europeanlung.org/en/projects-and-campaigns/healthy-lungs-for-life/

United Nations World Health Organization (WHO) European Respiratory Society

07/09/2024

If you are joining us at the , today we have Patient Organisation Networking Day (in-person and online) and the official ERS Congress Opening Ceremony in Vienna. Follow us for updates throughout the day!

Share your thoughts

https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

07/09/2024

Welcome to the

If you are joining us in person this year, we have lots of exciting opportunities to offer. From meeting in our new Patient Community Space, to running or walking around the for , there is something for everyone!

Make sure to follow us on Twitter for regular updates throughout the day!

07/09/2024

Saline nasal drops reduce the duration of the common cold in young children by two days, according to new research being presented at .

The common cold affects the average child 10 times per year and the findings suggest the drops can also reduce the onward transmission of colds to family members.

Learn more: https://europeanlung.org/en/news/

06/09/2024

Do you want to help teach others how they can improve their lung health, worldwide?

At the , the “How to hold an impactful Healthy Lungs for Life event” session will introduce the campaign, as well as top tips for hosting your own event.

Learn more: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

06/09/2024

Interested in learning more about lung transplantation and the perspective of those who have received one?

The ELF and ERN-LUNG Transplantation Forum at the provides an opportunity to hear the experiences of lung transplant recipients and discuss issues to be addressed in the future.

Learn more: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

06/09/2024

We will be in Vienna for the next few days sharing live updates from the !

Follow us for news from our Healthy Lungs for Life public events in the and patient-focused session at Congress. Each day we will share our top highlight here or you can follow us on Twitter for more live updates throughout the day. European Respiratory Society

To see what we have coming up, visit our website: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

05/09/2024

Do you have questions about that you have so far been afraid to ask?

Come along to this session at the , where people living with bronchiectasis will have the opportunity to ask their questions to clinicians.

Find out more here: https://europeanlung.org/en/news-and-blog/elf-events-at-ers-congress-2024/

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Videos (show all)

It has been a fantastic week for Healthy Lungs for Life in Vienna, with activities held every day to raise awareness of ...
Following #WorldCleanAirDay and the launch of #HealthyLungsforLife in Vienna, Dr Maria Neira - Director of Public Health...
We have just launched our European Patient Ambassador Programme in Ukrainian!Hanna Boiko, who works on policy and projec...
That's a wrap! We had a great time at the #ERSCongress 2023. Thank you to all the patient speakers and patient organisat...
We’re already halfway through this year’s #ERSCongress! It was great to see everyone on the ELF stand to better understa...
What a great first day we’ve had here in Milan with Forestami! A huge thanks to the volunteer testers who’ve been busy c...
#TaketheActiveOption and help raise money for the Healthy Lungs for Life campaignJoin the movement for healthier lungs a...
Powerful speech from Blessi Kumar to the UN High-Level Meeting about how we can, and should, all come together to #EndTB
Irantzu Muerza lives with severe asthma. On this World Asthma Day, we want to share her experience of managing the condi...
Watch our recent webinar about patient advocacy!Get an overview of how to run a successful advocacy campaign, along with...
Recordings from our latest bronchiectasis patient conference are now available!Last month we held our 3rd annual patient...
Hear more from ELF Council member Oksana Kulish-Skaara on #RareDiseaseDay:

Website

http://www.youtube.com/user/lungfoundation, http://twitter.com/EuropeanLung

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