Fighting Pressure with Pressure

Hello, we are hosting a little fun stall with tombollla, guess how meny sweets in tub, lucky dip and a squares game, on the 19th of July on Alness high street. so if you fancy a chance of winning a wee prize head on down. 100% of the money raised will go to supporting IIH UK 🙂

Competition time -
This time we have decided to do a guess how many sweets are in the tub 🙂 closes guess wins the tun and it’s contents. 50p a guess with 100% of the funds going to making me jump out a plane ✈️. Thank you all for your continued support as best of luck 🙂

Thank you so much to Macphee Makings - by Emma Macphee for your kind donation. It will go to help people that suffer from a very unknown condition nd helps me get closer to jumping out a plane :)

Thank you to everyone who supported us today and to The Place for such a great event. We managed to raise £74 in support of Fighting Pressure with Pressure for IIH UK National Charity . Remember all my proceeds up until the deadline will be going to this cause, so any orders most welcome 😎💚💙

Thank you Tesco (Inshes retail park) for providing the ingredients for our next bake sale 😊💙💚

That’s all squares filled, thank you to everyone that purchased a square, it means a lot that you want to support us to help such a little known charity and want I see me jump form a plane 😆 we will be at the Tesco extra car boot sale on Sunday the 30th of April with some yummy home baking, lucky dip nd a few other things, if you are there feel free to come an say hi 🙂 thank you all again for your continued support and we will be doing the live number draw in the next few days 🙂

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Squares game 🙂 🙂 each square is £1 and when all squares are filled will use google number generator live to reveal the winner, which will receive half the pot with the other half going to IIH UK. Please share this post to reach as much people as possible. Thank you for taking time to read and good luck 🙂

This is just one way that IIH UK support people affected by IIH. This is why we want to support them 💙💚

Kathryn Macphee you have won this or similar commission piece … Thanks for supporting us!
Happy Easter 💙💚💙💚

Something people often don’t know about chronic pain is that while people can notice acute pain in others- by their facial expressions and body language etc - when you feel pain over a long period of time you become desensitised to it and you show very little emotion towards it and start to show no signs. The illness becomes invisible but the pain is still something we live with day in and day out and it doesn’t get any easier, so if it helps anyone to understand- THIS is the extent I went to make it stop. However unfortunately my pain is still very real and it’s the case for many others. This is why Brett wants to do a skydive.. to raise awareness, to fund research, to help me and others in this situation. Please help Brett to help IIH UK National Charity. 💙💚

EDIT: Please LIKE and share the post if you would like to be included in the prize draw as I can’t see all of the shares due to privacy settings.. Thanks 😊

💚💙💚💙Competition time 💙💚💙💚

Please LIKE and SHARE this post and page Once you have, PM or comment DONE to be in the prize draw.

Raising awareness of 💚💚IDIOPATHIC INTRACRANIAL HYPERTENSION 💙💙

Let it be is a song close to my heart but I’m willing to make something similar if that suits.

Many thanks 😊

I am, IIH

I cause pressure in your head,
I swell up, behind your eyes.
Flood your brain with my secret,
I am a master of disguise.

They won't know how I happen to be,
I am not something, to be seen.
I am an aftermath,
An invisible disease.

Catch me if you can,
I know you never will,
You're trapped under my spell,
I can always make you ill.

You see it is in the depths of my deceit,
No one will know I am really here,
In a society that won't believe you,
without evidence or fact,
I hide in the darkest of corners,
Rarely even show up on a scan.

You'll fight and fight and think it's the world that hates you,
When really it is just me,
I am clever and deceitful,
I am the devil with my greed.

People care and they want to help,
But they will never know in what way,
Because I will never show them,
I am here to stay.

I will give you as much life as I choose,
And as much as you can battle through,
Then when I want,
I'll take everything you fought for,
I'll take it right from you.

I will hold you in my invisible handcuffs,
Lock you in your own front door,
Stop you from standing, or lying,
Have you pace all day - I just might.
Then when you think of sleep,
I'll whistle in your ears at night.

I will drive you to despair,
Take you right to the edge,
Along with all the words that describe,
What it's like to have me in your head.

Unless you turn to those around you,
And find it is beside you, they stand.
While they might not know what it's like,
They will always hold your hand.

Sometimes others will need facts,
To know exactly what to do,
But just because they can't see,
Doesn't mean they don't believe you.

The storm you may not control,
But to find shelter in it you can,
It is days when the darkness comes,
You must trust them to understand.

Then whatever you need,
Put any judgement aside,
For gods sake take whatever will help you,
Get through the hardest of these times.

Remember not to push away,
All you hold that's good,
By focusing on all you couldn't,
And ignoring what you could.

Because while that's human in all of us,
It's the power in our hands -
To realise what life can be,
Even if it's not what we had planned.

Just promise you won't wait,
for your final breath to leave,
Before remembering how much your life was worth,
Just to be able to breathe.

Happy 💙💚

"Idiopathic intracranial hypertension (IIH), also known as benign intracranial hypertension or Pseudotumor cerebri, is a rare condition with an unknown cause or causes. The condition is associated with raised fluid pressure around the brain. The fluid that cushions the brain is called cerebrospinal fluid (CSF). It can cause disabling daily headaches and visual loss, which can be permanent" - (https://www.iih.org.uk/section/9/1/all_about_iih_also_known_as_benign_intracranial_hypertension/33b5e7d7350d887deba1670718587da9

IIH causes so much more than a sore head, it is a condition that can affect every aspect in a persons life, including being unable to or having to miss work opportunities, missing key mile stones due to several hospital visits ETC.

So many hospital visits...... my wife that suffers from this has had over 60 head operations, with one of them having her skull cut to expand it leaving small sections of her brain without any skull to protect her brain. Another surgery she needed to have while she was pregnant with our first child.

This is only one way in which IIH affects her life and so few people have every heard of it. My aim for this is not only to raise money for this charity to continue to support people with IIH but also to raise more awareness about this conidition and allow people to understand the impact it can have on a person life.

thank you all for taking the time to read and if you would like more information about IIH follow the link below

https://www.iih.org.uk/

Brett

Will keep this link here for anyone that wishes to donate to help support people with Idiopathic intracranial hypertension (IIH)

fighting pressure with pressure - sky diving for IIH UK - JustGiving

I have decided to make a page to keep everyone up to date an for me to share more information about the very scary sky dive :) I will highly appreciate if everyone could share and invite as many people as possible the more people that know the better to will be :) also have a few wee competitions planned so stay tuned :)