Epilepsy Foundation of Metropolitan New York

SEIZE THE CURE 4 EPILEPSY presents Bronx Epilepsy Awareness & Education Event. Please join us on April 20th for these special Featured Presenters!!

***EFMNY and the 2024 United Airlines NYC Half Marathon***

Sunday, March 17, 2024
New York City

Congratulations to the 'Epilepsy Road Warriors' for your great run for our Epilepsy Cause! You are all Stars!! Please enjoy these heartwarming photos from this successful event.

https://www.dropbox.com/scl/fo/72dhns9sz0ql6vez4qb98/AOFRHvDAB3plyae9T3uNvYM?rlkey=3m4nf47f5d6ljyte7kamy0r4e&dl=0

With Profound Gratitude,

The EFMNY Directors & Professional Staff

***This April Donate and Honor Your NYC Epilepsy Healthcare Heroes!***

This April 1, 2024 kicks off the EFMNY’s Healthcare Workers Celebration to honor a community nurse, doctor, medical center employee, volunteer, or anyone who makes an important difference in the life of a person with epilepsy.

By becoming a Caring Donor, you are honoring your Healthcare Hero and joining a special community that supports the EFMNY’s vital mission of service in our community.

https://www.paypal.com/donate/?hosted_button_id=NAB87AD2F9GTL

When your Donation is acknowledged, you will have the opportunity to share your Healthcare Hero stories, for us to post them on our social media sites!

SEIZE THE CURE 4 EPILEPSY presents Bronx Epilepsy Awareness & Education Event on Saturday, April 20 2024, 1:00–6:00 PM at the Sonia Sotomayor Community Center.
For more information, contact [email protected] or 347-797-8938; www.seizethecure4epilepsy.com

Thank you to the NYPD for having us! If you would like a free presentation on Seizure Recognition & First Aid, please contact Logan Devlin at [email protected].

The Epilepsy Foundation of Metropolitan New York is now offering Chronic Disease Self-Management Program (CDSMP) starting this month!
Please contact Elinor LaTouche at [email protected] for more information.

Experience the 'unspoken symphony' Multimedia Expressions Art & Music Program—an exhibition open to the public—located at Atamian Hovsepian Curatorial Practice 227 East 24th Street in NYC. Visit us on Wednesday to Friday, from 1 PM to 6 PM. We welcome you to join us for the remaining few days!

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The Epilepsy Foundation of Metropolitan New York, in proud partnership with the generous caring support of Jazz Pharmaceuticals, proudly presents 'unspoken symphony' Multimedia Expressions Art & Music Program Public Exhibition.

This exhibition showcases the artwork of young adults living with Epilepsy who participated over the past months in 'unspoken symphony' Multimedia Expressions Art & Music Program.

'unspoken symphony' was created by Jazz Pharmaceuticals for all those who struggle to express themselves verbally. Inspired by a little girl who can’t speak, it transforms artwork into an original melody, giving the world a chance to communicate & connect with loved ones like never before.

Please enjoy this exhibition, & get to know the talented artists, the Jazz Pharmaceuticals professionals, Art Therapist Cici Ramirez, MPS, & the AH Curatorial Practice Host Christopher Atamian.

For more information, please contact Chilton Harper at [email protected] or 917-856-5717. Thank you for being a part of our shared Epilepsy Cause!

Meet Natalie! Natalie lives beyond her post-traumatic seizures.

As NEAM comes to a close, we want to thank each individual that reached out to share their journey with Epilepsy. It's because of you that we can spread awareness and help others feel less alone.

Meet Jazmine! Jazmine shares her journey with Epilepsy.

Meet Ella. Ella's parents share their advice for navigating Epilepsy. If you would like to share your advice, reach out to Logan Devlin at [email protected] or DM us!

Meet Nate! Nate shares advice that he's learned throughout his own journey with Epilepsy.

Meet Sher! The EFMNY is featuring individuals living with Epilepsy for National Epilepsy Awareness Month. Send us a DM and ask how you can get involved!

Meet Rosendo! If you would like to participate in NEAM and share your story, write to [email protected] or DM us to learn more!

Meet Christine! Christine shares how having a sense of community has helped on her epilepsy journey.

There's still time to participate in our initiative to spread awareness about Epilepsy for NEAM! Share your story to [email protected] or DM us to learn more.

Meet Nicole! The EFMNY is featuring individuals with Epilepsy for November. Send us a DM and ask how you can get involved.

Meet Heydi! Heydi talks about how she doesn't let epilepsy define her. If you would like to share your story with us, please contact Logan Devlin at [email protected] or DM Us! We look forward to hearing from you.

Meet Jess! Jess is an avid member of the EFMNY community.
This month, we are highlighting individuals in our community who are using their stories to help others overcome the challenges that come with their diagnosis. If you would like to join our initiative and share your story, please contact Logan Devlin at [email protected] to learn more.

Meet Joe! Did you know that 1 in 26 people will be affected by epilepsy at some point during their lifetime? For National Epilepsy Awareness Month, we are highlighting individuals with Epilepsy. If you would like to share your story, contact Logan Devlin at [email protected].

Kicking off NEAM with Arianna! Arianna shares how Epilepsy doesn't stop her from persevering and living her life.

November is National Epilepsy Awareness Month (NEAM), and we are celebrating you! Together, we can raise awareness and educate our community about Epilepsy. This month, we are highlighting individuals with epilepsy and their stories! If you would like to join our initiative, please contact Logan Devlin at [email protected] to learn more.

Happy National Epilepsy Awareness Month! All month we will be showcasing individuals affected by Epilepsy and their stories to raise awareness for every 1 in 26. If you would like to share your story, please reach out to Logan Devlin at [email protected]

Updates in Epilepsy: Advancements in Minimally Invasive Surgical Therapies.
Join us: November 2nd, 12:00-1:00pm

Click Here to Register:
https://nyph.zoom.us/webinar/register/WN_yiWDjgoUS-SXKySv4i-sOQ #/registration

Inviting members of the community to join Brett Youngerman, MD, MS, FAANS for a discussion on Updates in Epilepsy: Advancements in Minimally Invasive Surgical Therapies

This webinar will cover:
• Who should be evaluated for epilepsy surgery?
• Robot assisted seizure mapping
• Minimally invasive laser therapy
• Devices for seizure recording and stimulation therapy

This event is for members of the community and is free to attend. Registration is required.

Each epilepsy story is unique and deserves to be heard. We invite you to participate in our upcoming efforts to raise awareness for National Epilepsy Awareness Month (NEAM).

We will be featuring individuals with epilepsy for the entire month of November. If you want to share your story with us, please reach out to Logan Devlin at [email protected] to share. We look forward to your participation.

Please join us! Upon REGISTRATION, a link to the webinar will be provided. REGISTER today or for more information:
https://epiny.ejoinme.org/epilepsy2023

Last week at the EFMNY: Direct Support Professional Recognition Week is a great opportunity to highlight the dedicated, innovative direct support workforce that is the heart and soul of supports for people with disabilities. Your celebrations of the DSPs at the heart of our field are part of a nationwide party we throw every year to showcase the amazing and often unsung work of these incredible professionals, and mark just a small fraction of the recognition that they deserve throughout the year.
Thank you for all that you do!

Self-care is loving and supporting yourself as you are, knowing your limits and sticking to them. Self-care should be a daily practice and doesn't have to be complicated or time-consuming either. What are some ways you practice self-care? Let us know in the comments!

Mark your calendars! If you can't attend this date, make sure you schedule a free Seizure First Aid Training session for you, your friends, family, workplace or community group by contacting Logan Devlin at [email protected]. We believe anyone, anywhere can learn more about Seizure First Aid. We look forward to seeing you at our upcoming webinar. Click the link to register!
https://linktr.ee/EpilepsyFoundationMetroNY

If you or someone you know suffers from depression and epilepsy, know you are not alone. One-third of people with epilepsy suffer from some form of psychiatric disorder, of which anxiety and depression are the most common. Click the link to learn more about Epilepsy & Depression.

https://linktr.ee/EpilepsyFoundationMetroNY

Our Annual Walk is returning in 2023!! We are thrilled to have the continued support of our generous and loyal Sponsors. The Walk is open to everyone.

We encourage you and your family, friends, and colleagues to register and to raise funds that are so important for our ongoing shared Epilepsy cause.

We've moved! Here's our new location and our updated hours of operation. We look forward to seeing you in our new space.

New Webinar Wednesday, August 16th at 7:00pm!

***SEIZURE RECOGNITION & FIRST AID TRAINING***

On Wednesday, August 16th at 7:00pm, we are hosting a Seizure Recognition and First Aid Webinar. Learning Seizure First Aid can help you, your loved ones and even your community. We would love to have you in attendance.

Please REGISTER IN ADVANCE for this meeting using this link:
https://us02web.zoom.us/meeting/register/tZwsceuoqDMpHdY4z0EJPhX60Ww2FkVqhzLf