ALS United North Carolina

Let's give a huge shoutout to Mark's Barks and his yearly Papa Barks Gaming Charity Event! Mark hosts this online event in honor of his father who passed away from ALS. This year his incredible gaming event has already surpassed $22,000 is running now through August 11th. Anyone can be a part of Papa Bark’s- including you! Whether you are a streamer who would like to stream for the event, an artist or creator who would like to contribute prizes, or a supporter who like to donate. Get more info at PapaBarks.org . We want to wish all the participants of this year's event Good Luck! Thank you Mark's Barks for your continued support of ALS United North Carolina and the ALS Community!

The 2024 Annual Catfish Classic Golf Tournament will be held at Prestonwood Country Club on Monday, November 11, 2024 and is always a tremendous day of GOLF AND GIVING! Visit www.CatfishClassic.org for more info and to register - $1500 for a foursome, $250 to sponsor a hole, raffle tickets available for purchase online as well. We are so thankful to long time friend of the chapter, Mr. Wes Hare and his committee for this wonderful Community Partner Event, and we look forward to seeing you there!

August is right around the corner! We'll start seeing our memories pop up from 2014 and the original Ice Bucket Challenge - can you believe it's been 10 years? We're still pushing, still making progress, and still NEED TO FIND A CURE! Let's keep the momentum going and challenge everyone we know to do the Ice Bucket Challenge this August and share the videos! To learn more, or to make a donation, go to: https://alsnc.org/ice

Corporate partners are at the core of our success - we could not do what we do and fund the programs we provide without the support of our sponsors! Looking for ways to make a difference in your community? Become an ALS United NC sponsor and get involved with the ALS community at our six walks and other events across the state! Share this opportunity with the corporations and local businesses you know - send them our way by emailing [email protected] and we'll connect. Sponsorships are available this fall at our walks in Charlotte, Greensboro and Wilmington, the Navigating ALS Symposium in Colfax, and in Raleigh for Drive Out ALS at Drive Shack. Lots of great ways to be involved in finding a cure for ALS and providing direct support for people living with ALS in North Carolina.

Joe's Camp registration is open! Joe’s Camp is a camp for kids whose family has been touched by ALS, and is organized by The Joe Martin Foundation. This year, Joe’s Camp is offering two sessions, Joe's Camp for Kids August 16-18 (for ages 8-13) and Joe's Camp & Hike for Teens September 13-15 (for ages 14-17). Registration is FREE! The goal of Joe's Camp is to give kids the chance to have fun, explore new activities, and talk about ALS with others who understand. We are thrilled to continue to join forces with The Joe Martin ALS Foundation for this amazing opportunity to serve the ALS community. Go to https://joemartinalsfoundation.org/joes-camp/ to learn more!

Spread the word and share this post! Are you ready to be a part of ?
Show your love by sharing this post if you plan on participating in the 10th anniversary challenge this August! To learn more, or to make a donation, go to: https://alsnc.org/ice-bucket-challenge

Please share this post! It's time to walk together, united for a cure for ALS! Walk Registration is now open for the Wilmington Walk on October 19th, the Greensboro Walk on October 26th and the Charlotte Walk on November 2nd! Go to alsnc.org/walk to register! We will keep shining the spotlight on the need for a cure, so please join us to help fundraise and build awareness. We walk in honor of our friends and loved ones with ALS, and in memory of the friends and loved ones we've lost. Let's walk together, united for the ALS community, with wheelchairs and scooters, families and friends, neighbors, kids, strollers, dogs too – all are welcome! If you can't make it to the walk, please consider making a donation. With your support, we can make a difference in the lives of people affected by this disease right here in North Carolina. YOU can make a big difference for the ALS community - go to alsnc.org/walk to register or donate!

Walk ALS Registration is Open! Get ready to Walk United, Hollywood style - come dressed as your favorite movie character or red-carpet ready to help shine the spotlight on the urgent need for a CURE for ALS! Make sure you register to walk and fundraise to help support people living with ALS here in North Carolina. It's free to register and free to walk, we ask that you share the opportunity to donate because together we can make a difference for the ALS community and help spread ALS awareness - go to alsnc.org/walk to sign up in your area!
Wilmington - October 19th, Long Leaf Park
Greensboro - October 26th, Greensboro Grasshoppers Stadium
Charlotte - November 2nd, Symphony Park
Want to be a sponsor? email [email protected]
Come join us, we need YOU in the fight to !

Let's Walk United this Fall! Walk Registration is now open for the Wilmington Walk on October 19th, the Greensboro Walk on October 26th and the Charlotte Walk on November 2nd! Go to alsnc.org/walk to register! We will keep shining the spotlight on the need for a cure, so please join us to help fundraise and build awareness. We walk in honor of our friends and loved ones with ALS, and in memory of the friends and loved ones we've lost. Let's walk together, united for the ALS community, with wheelchairs and scooters, families and friends, neighbors, kids, strollers, dogs too – all are welcome! If you can't make it to the walk, please consider making a donation. With your support, we can make a difference in the lives of people affected by this disease right here in North Carolina. YOU can make a big difference for the ALS community - go to alsnc.org/walk to register or donate!

Applications are being accepted until Monday, July 15 for the Northeast ALS Consortium (NEALS) ALS Clinical Research Learning Institute®.
This two-day program is designed to provide education and training to individuals impacted by who are interested in clinical research and the therapy development process.
If you are a person with ALS, an ALS caregiver, or have been impacted by ALS, you can learn more at https://www.surveymonkey.com/r/2024CRLI

We are thrilled to be the title sponsor of this event. Congratulations to all the winners! We look forward to celebrating with you on August 15th.

A big old bucket of ice water sounds good right about now! Are you ready to be a part of
Show your love for this post if you plan on participating in the 10th anniversary challenge.

It's hard to think about fall when it's 100 degrees outside. Nevertheless, mark your calendars and plan to join us at one of our fall walk stops! Register your team today at alsnc.org/walk. Together we will END ALS!

Tonight at 630pm

Thank you Lily for sharing your “why”.

Joe’s Camp Counselor Spotlight!

Joe’s Camp, our FREE weekend summer camp for kids whose lives have been impacted by ALS, is made possible with the support of our amazing volunteer counselors.

My name is Lily Cola, flower soda to help remember! This will be my third-year volunteering at Joe’s Camp. I first learned about Joe’s Camp through als ALS United North Carolina (formally ALS Association of NC) when my supervisor shared that The Joe Martin Foundation was looking for volunteers for Joe’s Camp. Once I first heard about the fun that was going down...I had to join in! Joe’s Camp is a great space for kids to be kids—they get the chance to hang their caregiver hat up for the weekend to talk with other young caregivers who are facing the same things. One of many favorites that I like about Joe’s Camp is being able to lead therapeutic activities for kids to really talk about what is going on or at least remind them that “hey you’re not alone.” Now since you know a little about me, I hope I get the pleasure to meet you and have some fun!

These important programs would not be possible without the partnership of ALS United North Carolina and our Joe's Camp Presenting Sponsor The ALS Association. Thank you to these two great organizations!

To register for Joe’s Camp visit this link: https://joemartinalsfoundation.org/summer-camps/

Did you know that June is PTSD Awareness month? How can PTSD affect ALS?
Log in tonight.

The release of the National Academy of Sciences report "Living with ALS" marks a significant step in the discussion about ALS care and research. ALS United North Carolina appreciates everyone's involvement and looks forward to the collaborative efforts to come.

The National ALS Registry is a program from the Centers for Disease Control and Prevention (CDC) that collects and analyzes data about people who are living with ALS. If you are a person living with ALS, your participation in risk factor surveys can help researchers build a better picture of who gets ALS and the risk factors for the disease. Join today at https://www.cdc.gov/als

Joe's Camp is coming soon! Joe’s Camp is a camp for kids whose family has been touched by ALS, and is organized by The Joe Martin Foundation. This year, Joe’s Camp is offering two sessions, Joe's Camp for Kids August 16-18 (for ages 8-13) and Joe's Camp & Hike for Teens September 13-15 (for ages 14-17). Registration is FREE! The goal of Joe's Camp is to give kids the chance to have fun, explore new activities, and talk about ALS with others who understand. We are thrilled to continue to join forces with The Joe Martin ALS Foundation for this amazing opportunity to serve the ALS community. Go to https://joemartinalsfoundation.org/joes-camp/ to learn more!

An ALS diagnosis is not only devastating physically and emotionally, but can overwhelm a family financially. No matter the amount, your donations go a long way to provide critical items for patients. We have partnered with Your ALS Guide to provide you with more information.

It was a great night for baseball and the ALS community at the Greensboro Grasshoppers last night! Thank you to everyone who came out to the game, Lee and Mary Ellen for throwing out the first pitch, our wonderful volunteers for your time and support, Fox 8 for the news coverage, and to the Hoppers for your great partnership! Exited to host the Walk ALS Greensboro at the stadium on October 26th - save the date and join us!

What an awesome ALS Community night with the Durham Bulls Baseball Club!! Thank you to everyone who came out to the game to support the ALS community, shout out to the Bulls for letting us use the Owner’s Box, and to Dr. Bedlack and Holley for throwing out the first pitch! And added bonus, the Bulls won!! It was such a fun night together, thanks everyone!

Today is Lou Gehrig Day at many Major League Baseball, as well as minor league ballparks. This is the 4th annual day to raise awareness and funds for the fight to strike out ALS. Continuing the fight for treatments and a cure in honor of "The Iron Horse" and all who have been impacted by this disease.

ALS United North Carolina will commemorate Lou Gehrig Day at four ballparks this week. We thank these teams and encourage you to attend.

June 2, 2024 – Lou Gehrig Night at Fayetteville Woodpeckers
June 2, 2024 – Lou Gehrig Night at Down East Wood Ducks
June 5, 2024 – ALS Community Night/Lou Gehrig Day at Durham Bulls
June 6, 2024 – Lou Gehrig Night at Greensboro Grasshoppers

We are incredibly thankful for the support of the Greater Charlotte community at this past Wednesday’s 5th Annual ALS Topgolf Challenge! It was a wonderful evening full of golf play, a live auction and amazing conversations and connections. Thank you Mike Bedell for leading this year’s campaign and allowing us to honor him with the Ed Shea Community and Courage Award. Thank you to our sponsors and leading sponsors Walbridge, Cooper Steel, Sunbelt Rentals Fessler & Bowman, Inc., Lithko Contracting, and Feyen Zylstra for making the night possible. Looking forward to Topgolf 2025 next year!

May is National Mobility Month!🦽