Spina Bifida Texas

Timberwood Park Families!
🌟 Join FashionABLE: Embrace Diversity, Embrace Style! 🌈

Are you a fashion enthusiast with a unique flair for style, facing challenges in getting dressed due to a disability or diagnosis? We want YOU to redefine fashion and be a part of something extraordinary!

FashionABLE is on the lookout for disabled fashion models aged 3-18 who can inspire others with their resilience, courage, and exceptional sense of style. If you're ready to break barriers and showcase your unique beauty, we invite you to join our inclusive fashion movement!

Event Details:

📅 Initial Meeting: Wednesday, January 10, 2024
🕡 Time: 6:30 PM
📍 Location: Pieper High School, Timberwook Park Area

Requirements:

Must have a disability or diagnosis that makes getting dressed challenging
Age between 3-18 years old
Able to attend the initial meeting, fittings, and the grand FashionABLE show on April 13, 2024
A refundable deposit of $50 is required (due at the initial meeting)

At SBTX, we celebrate diversity, uniqueness, and the strength that comes from overcoming challenges. Let's all shine bright on the runway.

How to Apply:

Fill out our online application form www.sbtx.org/fashionable.
Attend the initial meeting on Wednesday, January 17, 2024, at 6:30 PM, at Pieper High School.
Bring your fabulous personality, your story, and a $50 refundable deposit to secure your spot!

Don't miss this chance to be a trailblazer in the world of inclusive fashion!

For inquiries or more information, contact us at [email protected] or call (210) 826-7289.

Spread the word and let's make fashion truly accessible for all! 🌟

Model Registration is OPEN!!
www.sbtx.org/fashionABLE

Schools are filling up fast!
We are looking for models for
🏫 Brennan High School
🏫 Harlan High School
🏫 Warren High School
🏫 Pieper High School
🏫 Smithson Valley High School

*Model must be between 3-18 years
*Model must have a disability/diagnosis that requires adaptive clothing
*Refundable deposit of $50 must be paid before the initial meeting (Deposit will be returned at Fashion show once the model has completed the program)

Model Registration is OPEN!!
www.sbtx.org/fashionABLE

*Model must be between 3-18 years
*Model must have a disability/diagnosis that requires adaptive clothing
*Refundable deposit of $50 must be paid before the initial meeting (Deposit will be returned at Fashion show once the model has completed the program)

S.T.E.P.S. Support Group Holiday Dinner!!

RSVP at [email protected] or on the S.T.E.P.S Support Group page!

⚡️Lending Closet Notice⚡️We just received a large donation of adult briefs 📦 📦 📦 . If you are in need, please let us know. You can call 📞 our office or email 📧 us at [email protected]. We will reserve items for 24hrs.

The Spina Bifida Lending Closet has a box of essentials. If this is something you or your loved one needs email [email protected].

🌟 Gratitude Alert! 🌟 A heartfelt shoutout to our amazing volunteer, Shawna, who travels all the way from West Texas to support SB events. 🚗💙 Her dedication to our community is truly inspiring. 🤝 After learning about the recent burglary, Shawna stepped up with a generous donation, showcasing her firsthand appreciation for everything SBTX does for our community. 🙏 Thank you, Shawna, for your unwavering commitment and generosity! 🧑🏻‍🎄💥

🌟 A Heartfelt Thank You to the Chipman Family! 🌈 We’re beyond grateful to Mrs. Chipman, a valued former board member, for her incredible generosity. 👏 Her swift response to our recent office burglary allowed us to not only fortify security with an additional door prize but also to procure more gift cards for our community. 🎁 Your unwavering support makes a significant impact, and we truly appreciate your dedication to our cause. 🙌

🙏 Gratitude Overflowing! A huge shoutout to the incredible Rivera family for their generous donation! 🌟 Thanks to their support, we’ve managed to replace the majority of the stolen gift cards. Special thanks to Mrs. Rivera, a former Spina Bifida Texas employee, for her ongoing dedication to our community. Your kindness makes a world of difference! 💙

🌟 Good Morning! Our beloved youth Pink chair is back at the Spina Bifida Lending Closet, ready to empower another Spina Bifida warrior who needs it. Huge thanks to our incredible supporters who make moments like these possible! 🙏 Wishing you all a Happy Thanksgiving filled with gratitude and joy! 🍁🦃

🎉 Exciting News! Spina Bifida Texas is thrilled to have assisted a traveler coming to San Antonio for the holidays, ensuring a safe restroom experience. A huge shoutout to everyone supporting our lending closet! 🙏 Despite a recent break-in, we’re resilient and committed to serving our community. Thank you for your ongoing support! 💙

🎄🌟 Exciting News: Christmas Party Deadline Extended! 🌟🎄

🎉 We've got fantastic news for you! 🎅 Due to overwhelming enthusiasm, we've decided to extend the registration deadline for our Spina Bifida Christmas Party! 🎁✨

Don't miss out on the festive fun! 🎊 Secure your spot before it's too late, as we're closing entries once we reach capacity to ensure a magical experience for all. 🎅🤶

🔒 Act fast and reserve your spot ASAP, once you're sure your family will be able to make it. 📆 Remember, this event is exclusively for children with Spina Bifida and their immediate family members. In order to be eligible, you must have attended every SBTX event you have registered for (even FashionABLE) 🤍 Let's come together for a joyous celebration!

Spread the word, tag your friends, and let the holiday spirit unite us all! Children's gifts provided by the Kym's Angels Foundation.🎄🤍

Our friends at CPW Customs are helping us with this raffle. All proceeds will go to gift cards to the SB community! We are humbled by their willingness to help us. Thank you Noah, Rebecca & Tony for your continued support!

RAFFLE TIME! Family and friends, I am doing another raffle. This raffle is to raise money for a nonprofit organization that has helped me and my family over the years. SPINA BIFIDA TEXAS was the recent victim of a burglary. The people who broke into the office stole the gift cards used for their annual Christmas party for the kids and families they help. I want to do my part to help pay it forward so I am raffling: $10 per spot

1 - 20 ounce custom tumbler
1 - 40 ounce custom tumbler
1 - shirt of any design, any size

I will also give one 20 ounce tumbler to the SECOND place winner!!! Please help me reach my goal!!! THANK YOU AND GOOD LUCK!!! (Zelle, Venmo, Cash App, or Apple Pay)

1. Nena Alviar 16. Rudy Skultety
2. Chris N Charity Trevino 17. Mary Lukkes
3. Angela Cantu 18. Alyssa Alvarez
4. Zoa Gutierrez 19. Brianna Maldonado
5. Andy Lukkes 20. Rudy Skultety
6. Jess Buentello 21. Jess Buentello
7. Angela Cantu 22. Open Trail Ranch
8. JoAnn Valles (Jr) 23. Arturo Liento Jr
9. Josie Sandoval 24. Jennifer Allen
10. Girasol Margain 25. Ted Ferguson
11. Chris N Charity Trevino 26. Yvette Gonzales
12. Alyssa Alvarez 27. Girasol Margain
13. Andy Lukkes 28. JoAnn Valles (Jr)
14. Zoa Gutierrez 29. Brianna Maldonado
15. Ted Ferguson 30. Mary Lukkes

🚨 Urgent Announcement 🚨

Over the weekend, our office, along with several other suites in our building, fell victim to a break-in. While we're relieved that our computers remain untouched, it's disheartening to share that our safe was compromised.

The thieves made off with the gift cards we had earmarked for our incredible volunteers, families, and adults with Spina Bifida, who were set to receive them during our Christmas celebration. 😔

Despite this setback, we want to focus on the positive - the safety of our team and community members. We are immensely grateful that no one was harmed.

Please take a moment to ensure your own security measures are up to par, and be vigilant in your surroundings. Let's come together as a community to support one another during this challenging time.

Despite this we remain committed to making this holiday season special for those we serve.

Stay safe and look out for one another. 🌟

🌟👻 Making Halloween Dreams Come True! 👻🌟

We're overjoyed to share a heartwarming story that's just in time for Halloween! 🎃

This weekend, we received a special request from a family in need. Their child's wheelchair accidentally fell off their uncle's truck, leaving them without mobility and worried about how they'd enjoy Halloween. 🙁

We're thrilled to announce that we not only provided this incredible child with a wheelchair, but we also ensured they'll be able to join the Halloween fun and trick-or-treat with their friends tomorrow! 🎉

Our SBTX Lending Closet is here to support anyone in need, whether or not they have Spina Bifida. We offer donated medical equipment for those in temporary or long-term need because we believe in the power of community and the difference it can make. 💪❤️

This heartwarming story reminds us that together, we can be the real superheroes, making dreams come true one act of kindness at a time. 🦸‍♀️🦸‍♂️

Wishing everyone a safe and magical Halloween! 🍭👻

🌟📚 Celebrating Spina Bifida Awareness! 📚🌟

Today, we shine a light on the incredible Gabriel, who shared a heartwarming book with his class - "How to be a Knight." 📖🛡️

In this story, a knight who uses a wheelchair becomes the hero who saves the village, proving that anyone can be a knight. 🌟💪

His amazing teacher, Ms. Fernandez, not only read this book to her class but also added it to her library, ensuring that future students will also experience the magic of this tale. 📚✨

Thank you, Gabriel and Ms. Fernandez, for spreading the message of inclusion and empowerment! 💖

Let's continue to raise awareness and support those affected by Spina Bifida. Every small act makes a big difference. 🙌

🌟🧡 Celebrating Spina Bifida Awareness Month 🧡🌟

In honor of Spina Bifida Awareness Month, we're thrilled to have shared the gift of knowledge and understanding with the incredible children in our community! 📚💪

Erick recently provided "MEETING MIMI" to the amazing students in his class at Raul B. Fernandez Elementary, and their smiles say it all! 😃

"MEETING MIMI" is a beautiful story that encourages empathy, acceptance, and the celebration of differences. 💖

These books not only enrich the lives of the students but also contribute to the growth of the teacher's library, creating a lasting impact on the entire classroom. 📖📚

Let's continue to raise awareness, support, and empower those affected by Spina Bifida. Education is a powerful tool, and we're grateful to be part of this journey. 💫

🌟🧡 October is Spina Bifida Awareness Month! 🧡🌟

At Spina Bifida Texas we're dedicated to spreading awareness and supporting those with Spina Bifida. Today, we have a heartwarming story to share with you!

We sent "Meeting Mimi" to the incredible Mrs. Hrncire Earnest, who graciously read it to her entire class at Howard Early Education Center at AHISD. 📚💫

"Meeting Mimi" is a touching tale that not only educates but also inspires young minds about understanding differences and embracing diversity. We're thrilled that Mrs. Earnest took the time to share this wonderful story with her students, helping them learn the importance of inclusion and acceptance.

Let's continue to raise awareness and support for Spina Bifida. It's not just a month-long effort but a year-round commitment. 🌍💪

Join us in celebrating Spina Bifida Awareness Month by sharing your own stories, spreading the word, and supporting organizations that work tirelessly to make a difference.

Together, we can make a world that's more inclusive and understanding. 🤝💕

🌟🎗️October is Spina Bifida Awareness Month! 🌟🎗️

At SBTX, we're excited to join the movement and celebrate the strength, resilience, and unique abilities of our friends with Spina Bifida. 💪

In honor of this special month, we've sent out inspiring books to local elementary schools where kids with Spina Bifida attend. 📚 Our goal is simple: ignite conversations and promote awareness and acceptance among all students. 🌈

By sharing these heartwarming stories, we hope to encourage open dialogue and create a more inclusive and understanding environment for children with disabilities. Together, we can make a difference! 🤝

Let's raise awareness, spread kindness, and show support for our extraordinary friends this Spina Bifida Awareness Month. 🎗️💛🎗️

Thank you to the SB 250 riders for makinng this outreach possible 🚴🚴‍♀️🚴‍♂️🦸🦸‍♀️🦸‍♂️

Arnold Chiari Malformation ll is a condition where the brain develops too low in the skull and into the spinal canal. This often occurs due to Myelomeningocele Spina Bifida. Complications include:
-neck pain
-hearing or balance problems
-muscle weakness or numbness
dizziness
-difficulty swallowing or speaking
-vomiting
-ringing or buzzing in the ears (tinnitus)
-curvature of the spine (scoliosis)
-insomnia
-depression
-problems with hand coordination and fine motor skills.

If severe issues occur individuals may require decompression surgery.

🎄✨ Calling All Elves! We Need Your Help to Make Christmas Magic Happen! ✨🎄

Hey, RGV Community!

The holiday season is just around the corner, and we're gearing up to host the most magical Christmas party our valley has ever seen! 🎅🎉 But, we can't do it alone - we need YOUR help to make it truly special!

If you've got a knack for party planning, love to deck the halls, or just have a heart full of holiday cheer, we want you on our team. From finding a location, and tracking down sponsors, to decorating and organizing activities.🎁

We're thrilled about the idea of creating unforgettable memories together, but here's the deal: without your support, this party won't be possible. So, let's come together and make this holiday season one to remember.

If you're interested in being part of this festive adventure, please drop us an email or comment below. Together, we can make our valley's Christmas party the stuff of legends!

Let's spread the word, share the joy, and bring the magic! 🌟🎉

Have you seen the video created for new moms? Do you have any additional words of advice you would like to say? If you missed it, you can see it on our YouTube channel here: https://www.youtube.com/watch?v=evNI4f4mhNc

Post your words of advice below!!

🎗 🧡💙

Spina Bifida is a birth defect in which a developing baby's spinal cord fails to develop properly. The place of the defect determines the abilities affected (any functions lower than the lesion).

On this we’d love to feature Aldrin. He won 🏅 gold 🏅 at the .

📢 Today, we had the honor of visiting Wagner High School’s Child Development class to raise awareness of 🎗️Spina Bifida🎗️.

💚 We shared valuable insights and information about Spina Bifida with these future leaders. Let’s continue spreading awareness and support for this important cause!

Thank you Kyms Angels making this possible. We were able to provide these students with info packets, goodies, vitamins & awareness.



🧡💙

Happy Spina Bifida Awareness Month

Today, we would like to shine a light on our annual family event...
🌟 SB Day! 🌟

🤗 Spina Bifida Day is all about coming together as a community to raise awareness, share knowledge, and provide vital resources for individuals and families touched by Spina Bifida. 💪

🧠 Gain valuable insights through educational sessions/workshops.
❤️ Connect with a supportive and caring community.
🌐 Discover essential resources to empower your journey.

Let's unite to make a difference! Together, we can create a brighter future for the Spina Bifida community. 🌈 If you would like to be invited to SB Day 2024 next July, sign up to be a part of our mailing list!

sbtx.org