UW Health Comprehensive Program for Bleeding Disorders

All are welcome at the UW-Health Comprehensive Program for Bleeding Disorders. We are taking the month of June to celebrate, honor, and support the rights of our LGBTQIA2S+ population within our community.

If you made it to the Wisconsin Bleeding Disorders Conference feel free to stop by and say hi to Noelle!

We are so excited to see you all this weekend!!

The countdown to the 2023 Wisconsin Bleeding Disorders Conference weekend is on! Shout out to our friends at UW Health Comprehensive Program for Bleeding Disorders for their support in making GLHF's largest educational event for the bleeding disorders community of Wisconsin possible!

It is Administrative Professionals' Day and we are shouting from the rooftop our gratitude for our administrative assistant, Noelle Cedarleaf!! We are so incredibly lucky to have a wise, efficient, compassionate and positive woman supporting our team. Noelle, you are irreplaceable! Thank you for all that you do for our clinic and patients!

April 17, 2023 is World Hemophilia Day. The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”.

Safe to say, Madison’s Best Bloody was an absolute blast! Thank you for all of your support today!

Best Bloody is not your typical Sunday funday. All proceeds raised benefit Great Lakes Hemophilia Foundation in our mission to support the bleeding disorders community in Wisconsin.

Up to 1% of people in the US may have a bleeding disorder and many don't know it. Many think their symptoms are "normal" without realizing their quality of life could be better with a diagnosis and proper treatment.

Thank you to State Line Distillery, Molson Coors, UW Health Comprehensive Program for Bleeding Disorders, CSL Behring and Bayer for sponsoring Madison's Best Bloody.

It’s National Social Work Month, and our program is privileged enough to have one of the best! Molly Lippold-Meinholz works tirelessly on behalf of our patients to break down barriers to care and connect them to resources, and her kindness and compassion are one of our biggest assets. Thank you, Molly, for all you do!

Group medical visits spring 2023

Group Medical Visits offer an innovative and interactive approach to meeting your healthcare needs. Patients with common health goals are brought together and led by one or more healthcare providers in a supportive environment.

Please call (608) 440–6600 to register
Visit uwhealth.org/wellness for more information

Led by a healthcare provider, each 90–120-minute visit allows patients to share as much information as they feel comfortable sharing. Patients can share experiences while also learning how to incorporate key elements necessary to live a healthier life. Through hands-on learning, we explore self-management skills to support lifestyle and behavior changes that directly relate to a certain medical problem.

Living Well with Atrial Fibrillation
Thursday ¦ February 16; March 2, 16, 30; April 13, 27 (meets every other week)
¦ 4:30—6:30 PM in Preventive Cardiology Gym at East Madison Hospital
During this 6-session Group Medical Visit, we will focus on living well with Atrial fibrillation. Nearly 6 million American adults are affected by this common irregular heart rhythm. Lifestyle risk factors play a large role in how you feel while living with this chronic condition. Together, we will learn to make positive changes to improve your overall health while living with Atrial fibrillation. Each visit will incorporate exercise,
nutrition, and stress-reduction techniques with group sharing and support.

Mindful EcoWellness: Steps to Healthier Living
Tuesday ¦ February 28; March 7, 14, 21, 28; April 4, 11
¦ 3:00 PM—4:45 PM in Conference Room 1111A, Science Drive Medical Center
Imagine creating lifestyle changes that are better for your health and the environment. This eight-week
mindfulness-based Group Medical Visit is aimed at helping to reduce stress, improve your eating habits, and increase your physical activity. This visit series will involve hands-on practice with body scanning, mindful eating and walking, compassion meditation, breath awareness, and nature appreciation.
Participants will be expected to have a smartphone to track physical activity.

Yoga 4 cancer
Tuesday ¦ March 7, 14, 21, 28; April 4, 11
¦ 1:00—2:30 PM in Wellness Studio, East Madison Hospital
This six-week Group Medical Visit offers an introduction to Yoga 4 Cancer which is a yoga method developed by a cancer survivor that supports the unique needs of those living with and beyond a cancer diagnosis.
Yoga has been shown to decrease stress, improve sleep, and enhance overall physical and emotional
wellness after cancer treatment. Breathing exercises, short-guided meditations, and physical postures will be used to support healing after treatment. No previous yoga experience necessary. Open to all patients during or after treatment.

Kitchen wisdom
Thursday ¦ March 16, 23, 30; April 13, 20, 27 (no visit on April 6)
¦ 5:30—7:30 PM in Learning Kitchen, East Madison Hospital
Practicing mindful awareness is a foundational skill in the kitchen. The focus of this six-visit Group Medical
Visit series is on developing healthy eating and cooking habits in a hands-on, supportive environment. You will gain confidence in the kitchen and learn how eating well can be an additional “medicine” for health
conditions like high blood pressure, high cholesterol, pre-diabetes, diabetes, and heart disease. This visit
series will help you explore basic cooking techniques using wholesome ingredients, prepare nutritious and satisfying recipes all while learning about the health benefits of different foods along the way. Together, we will learn to build a diet around the Mediterranean anti-inflammatory principles.

Mindfulness for your health
Tuesday ¦ April 18, 25; May 2, 9
¦ 5:30—7:30 PM in Conference Room 1660, East Madison Hospital

Monday ¦ March 6, 13, 20, 27; April 3, 10
¦ 4:00—6:00 PM in Conference Room 1111A, Science Drive Medical Center
Beginning can be the hardest part. This introductory series will help you establish a mindfulness practice to support your health. Each visit will incorporate mindfulness teachings and meditation with group sharing and support. Research shows that mindfulness can help relieve stress, reduce suffering from chronic pain, lower blood pressure, improve mental health, improve sleep, and increase a sense of well-being. If you are curious about mindfulness and want to learn more, this is a great opportunity to start on that path.
Please note the differences in location, time of day, and length of series when registering.

Healthy aging
Monday ¦ April 3, 10, 17, 24
¦ 10:00 AM—12:00 PM in Conference Room 1111A, Science Drive Medical Center
Healthy aging start with nourishing the mind and body. Eating to age well and physical movement are
important factors in preventing cognitive decline. This four-week Group Medical Visit is designed for adults 60 and older who are looking to adopt healthy lifestyle habits and manage chronic conditions to enhance well-being and quality of life. You will focus on what matters to you and what you want your health for as you create your Wellness Action Plan. Weekly topics of discussion include: nutrition
education; memory and mood changes; medication management; and fall prevention.

Getting to the HEART of a healthy life
Wednesday ¦ April 19, 26; May 3, 10, 17, 24
¦ 5:30—7:00 PM Virtual (a virtual meeting link will be sent prior to the start of the visit series)
During this 6-week session, we will focus on the health of our hearts. We will discuss the basic
mechanisms underlying heart and vascular disease and how we can positively impact these by making simple changes to our lives. We will discuss food and nutrition, exercise, sleep, mindfulness, and how to make positive changes in these and other areas of our lives. Discovering how to make these changes will not only protect our hearts but also our minds so that we can extend both our health and life-span.

www.uwhealth.org

We are excited to introduce State Line Distillery as this year's vodka sponsor for Madison's Best Bloody and Green Bay's Best Bloody!

Drink Local. State Line Distillery is Madison's first grain-to-glass distillery, using regenerative agriculture and fresh, local ingredients to craft spirits that are uniquely Wisconsin. State Line bottles the best of Wisconsin in every spirit, cultivating its bounty, preserving its beauty, and enriching its culture.

All of the local bars and restaurants competing will be supplied with State Line’s craft vodka to use in their signature Bloody recipes for you to try. Think of State Line’s craft vodka as the constant variable between all the samples.

Give Local. All proceeds from Best Bloody support GLHF in our mission to educate, support and advocate for the Wisconsin bleeding disorders community. All dollars stay local to support initiatives including sending kids to Camp Klotty Pine each summer, educating newly diagnosed families and providing emergency assistance to pay medical bills, insurance premiums, and basic living funds.

Social Worker, Molly, went to the Capitol today in support of Great Lakes Hemophilia Foundation’s Legislative Day to educate local legislators about bleeding disorders! It was a very fulfilling and impactful day!

Calling all former campers and LITs! We are now accepting applications for Camp Klotty Pine's 2023 Leader in Training (LIT) program until March 26. This three-year comprehensive program focuses on skill building, leadership development and service learning as ways to not only build competent counselors, but ambitious leaders for the future.

You can find the full application, program description, qualifications and dates here: https://glhf.org/what-we-do/camp/

Wisconsin Legislative Day: March 1
Madison's Best Bloody Mary: April 16
Wisconsin Bleeding Disorders Conference: June 2-June 4
Camp Klotty Pine: August 7-12
More information can be found here: https://glhf.org/events-calendar/

Please join us in saying our bittersweet goodbye to our Program Manager, Jessie Pindilli! Jessie has been with UW-Health since 1998, starting as a nurse intern, and she has been the Program Manager since 2009! We cannot begin to express our immense gratitude to Jessie for the positive impact she has made in our HTC and within the bleeding disorders community. We wish Jessie the best on her next endeavor!!

HFA Scholarships, Summer Internships, and Job Readiness Grants are open!

Scholarships HFA Scholarships Now Open BioMatrix and BioTek Scholarships Opening March 1, 2023 Other Scholarships

It is our goal that people living with a bleeding disorder have access to educational opportunities that will enhance their lives and prepare them to become self-sufficient and productive members of the workforce.

Each year, GLHF is proud to support people in the Wisconsin bleeding disorders community with educational scholarships. Read more about GLHF scholarships, qualifications and applications here: https://glhf.org/what-we-do/scholarships/

Save the Date! NHF's Washington Days 2023 will be held March 8-10, 2023 and is planned to be an in-person experience. We can't wait to see you there! Visit the to learn more about Washington Days and to register.

We wish you happy holidays and a health new year!

Some of our locations will be closed or have adjusted hours on December 24, 25 and January 1:
Urgent Care Clinics will be open 8 am - 5 pm.
The Outpatient Pharmacy at University Hospital will be open 9 am - 5 pm. All other pharmacies will be closed.

F.Y.I:
Our office will be OPEN December 23rd + 26th!

Copay accumulators are notoriously hard to identify in health plans. Check out this graphic from Western PA Bleeding Disorders Foundation and follow the steps to find out if your health plan has a copay accumulator.

Today would've been the 51st birthday of Ryan White. Learn more about his lasting legacy.

Who Was Ryan White? | Ryan White HIV/AIDS Program Ryan White was 13 when he was diagnosed with AIDS after a blood transfusion in December 1984. Living in Kokomo, Indiana, doctors gave him six months to live. 

11/21-11/25 Hours:
Monday-Wednesday: 8am-4:30pm
Thursday: CLOSED
Friday: 8am-4:30pm
If you have a medical emergency outside our hours please call the on-call hematologist at 608-262-0486.

NHF's Own Your Path Program has officially launched! If you're a male aged 18-26 with moderate or severe Hemophilia A or B, you qualify to join this program. This free 6-month program provides resources for you to be able to thrive with your bleeding disorder. Email [email protected] for more info.

If you are in need of holiday assistance, it is time to apply for Toys for Tots! If you need help with the application, please call 608-890-9493.
Application: https://www.toysfortots.org/request_toys/Default.aspx