High Hopes Foundation of New Hampshire

High Hopes Weekend - Yankee Lanes Manchester High Hopes Foundation provides life-enhancing equipment, assistance, and opportunities to New Hampshire’s chronically ill children. Our guiding principle is to Make Hope Happen!

Please welcome Charlotte to our High Hopes Family!!
Charlotte is an 11 year old girl from Londonderry diagnosed with Type 1 diabetes at the age of 3 and celiac disease at the age of 6. Mom reports that Charlotte has come so far these last couple of years adjusting to having not one but two “invisible illnesses” but has said many times in the past that she wishes she didn’t have to deal with them at all.

Charlotte loves music, animals and art and would love nothing more than to swim with the dolphins. Money has been tight for this family of 5, as mom put off going back to work after Charlotte, the oldest of three, was diagnosed. While the family is able to get by, they just do not have the money in their budget for the ‘extras’ like family vacations.

We are so excited to send Charlotte and her family to go swim with the dolphins in Orlando Florida! We hope she has the best time! 🐬🐬🐬🐬

Brook is a happy and bright 12 year old girl diagnosed with autism, epilepsy, intellectual delays and speech and language delays. She loves school, but struggles with building relationships and being independent amongst her peers. Brooke wanted to attend this summer, an all inclusive summer camp for kids offering supportive and caring 1:1 staff to camper ratio, but being raised by a single mom with a full time job, it just wasn’t within the budget for the family. When Brooke’s mom reached out the for help, we knew we had to make this happen for Brooke! Looks like she had a great time! ☀️🐟⭐️

New deck and ramp complete for Isaac to buzz around from the house to the backyard BY HIMSELF!!! 🧑‍🦽🧑‍🦽

You could win this Special Edition Venom ExJ bowling ball. Great ball to get thru the front part of the lane with a controlled back end.
Purchasing a chance will support High Hopes Foundation of New Hampshire thru High Hopes Weekend sponsorship. Chances are $5.00 each, 3 for $10.00 or 8 for $20.00. CASHAPP, Venmo, PayPal and cash accepted. Drawing set for August 1st.
Contact me to get your chance, and more information on High Hopes Weekend. A Pro Am and Scratch Challenge Fundraising event September 20-22, 2024
Highhopesweekend.com

THANK YOU to www.DWDreamfoundation.com and www.WINBIGNH.org for choosing US as one of the recipients of their bingo fundraising event, Bingo Gives Back. During this event, bingo participant winners are able to choose a charity to donate a matching donation and one lucky winner chose us! This amazing foundation awarded $16,000 to local charities through this event! Please check them out!

Fiona got her new adaptive bike today and we would say she’s pretty happy about it!!!!! Have fun Fiona!!

Happy first official day of summer! If you are visiting the Science Center this summer with someone with sensory needs, we have Sensory Inclusive Bags available for our guests to use courtesy of KultureCity . The bags contain noise-canceling headphones, fidget toys, a visual cue card, a VIP lanyard, and a sensory map of the Science Center. Ask to borrow a bag for your visit at the Admissions window.

What a Day!!!!!! Thank you to every single last vendor, volunteer, sponsor and attendee who supported our small but mighty fundraiser at the festival today!!!!! We are appreciative of each and every one of you!!!!

With boundless gratitude,

Bryan, Jill, Jeff, Lisa, Celia and Keith

Jack got his new wheelchair today and we think he looks pretty handsome in it!!!!

Introducing Fiona! Fiona is a sweet 9 year old little girl from Manchester with a complex medical history including cerebral palsy, microcephaly, epilepsy and global developmental delay.
As a result of her medical history, Fiona demonstrates deficits in muscular strength, muscular endurance, range of motion and fluctuating muscle tone impacting her functional mobility. She requires caregiver assistance for all transfers and her primary means of mobility is a manual wheelchair.
Fiona would LOVE to be able to ride a bike like her siblings and peers, but due to her physical needs she requires an expensive, customized adaptive bike that will not only maintain alignment of her posture while riding, but also keep her safe in the event of instantaneous seizure activity. When insurance wasn’t able to cover the bike for Fiona, her physical therapist reached out to us and we said YES!
Big thanks to Zoe McSweeney, physical therapist and for thoughtfully customizing the perfect bike for Fiona arriving just in time for summer 2024!!!

Ellie is a beautiful 4 and a half year old little girl diagnosed with a very rare condition only recently discovered in 2018 as RHOBTB2 Syndrome. This syndrome is characterized by developmental and epileptic encephaly resulting in global developmental delays, seizures, movement disorders, and growth delay. Ellie was born normally and began hitting developmental motor milestones on time until just before her first birthday. After extensive testing, Ellie was eventually diagnosed with the syndrome and shortly thereafter started having traumatic seizures resulting in extensive hospital stays at both Boston Children' Hospital and Spaulding Rehab. During her time there, she spent countless hours passing the time while watching Disney movies and listening to Disney soundtracks, far away from the most magical place on earth.
Mom believes that a trip to Disney World would be a most exhilarating experience for Ellie. WE believe that seeing Disney in person will allow her to experience and associate Disney with the magic is was intended for, rather than the hospital rooms that she has spent countless hours watching in from afar.
Have a magical time Ellie! We can’t wait to hear all about it!!

If you're snowed in and stuck at home it's the PERFECT opportunity for our followers to take advantage of pre-sale tickets to our biggest fundraiser! Our foundation is busier than ever before and your support means everything to us and more importantly, the children we serve! Thank you!

Andrew is a happy and cuddly 16 year old boy diagnosed with Lennox Gastaut Syndrome, a severe condition characterized by repeated seizures that begin early in life. Andrew has multiple uncontrolled types of seizures, developmental, delays, osteoporosis resulting in 4 stress fractures, and a VNS placement (vagus nerve stimulator) in the brain to assist in controlling the seizures. Andrew travels from northern NH to Boston Children’s Hospital twice a year to receive Zometa infusions with the hope that his bones will get stronger and reduce the chances of fracture after a fall.

Andrew’s favorite thing to do is to sit outside, and when he can’t be outside he likes to have the windows open in the house where he can feel the fresh air. Unfortunately, Andrew’s home does not have a covered or screened in porch and the family just doesn’t have the funds to complete this kind of project. Andrew’s mom reached out to the High Hopes Foundation to see if we could purchase a screened in gazebo for Andrew to sit in and enjoy. Well in less than two months, Andrew will be enjoying the sweet smell of summer on the horizon in his brand new gazebo funded in part by Yankee Lanes Manchester! YLM hosted the first annual High Hopes Foundation Pro-Am tournament in October raising $11,378 for our foundation!!! Thank you Yankee Lanes Manchester!

TESTOMONIAL TUESDAY!!

Check out our story to see the pics!! ❤️

We want to take a quick minute and thank everyone who has liked, tagged, followed, or shared a post, donated time or funds to our organization or invited us to speak about who we are and what we do! We are helping more kids than ever before and we appreciate all of the support we have behind us! ❤️

Look at this happy face!!!

Jack is an adorable, smiley, sports loving 10 year old boy diagnosed with Lesch Nyhan Syndrome. Because of his diagnosis, Jack presents with fluctuating muscle tone and unfortunately these muscle tone imbalances greatly impact his abiity to sustain postures and move safely. He also presents with self-injurious compulsions requiring every available support/padding and a specialized head rest.

Jack currently utilizes a power wheelchair at school and a Stingray R82 stroller wheelchair at home that he has had since he was 3 years old! Because insurance already purchased the power wheelchair used at school, they will not cover a new wheelchair for exclusive use at home and in the community. Unfortunately the power wheelchair is difficult to transport to and from school and difficult to navigate within the home.

With the help of Jacks physical therapist at DTS Inc, Therapy, Rehab, & Exercise and wheelchair vendor REQ Rehabilitation Equipment Associates, INC , Jack will soon have some brand new wheels to use at home and in the community that will take him well in to his teenage years!!

This is Seamus and Coen, 8 and 9 year old brothers, both diagnosed with autism. As a result of their diagnoses, both boys receive occupational, speech and physical therapy. Mom describes them both as sensory seekers with difficulty regulating their sensory systems throughout the day, stating that they are always on the go, pacing, rocking, wiggling and running throughout the house!! That sounds BUSY!
Mom is requesting a sensory room customized to the boys needs where they can experience and enjoy the benefits of a calming and relaxing environment to assist them in their ability to self regulate their bodies when they become overstimulated, thereby increasing their ability to participate more consistently in meaningful and purposeful activity!
With the help of their occupational therapist recommending specific items the boys would benefit from, Seamus and Coen will be receiving a suspended hammock swing, calming fiber optic lighting, a relaxation popcorn tube, tap lights, crash pads and more!
We're excited to see this room in person when its completed and will definitely be sharing photos of the room in action!

Please welcome Luke to The High Hopes Family! Luke is a nine-year-old boy born with a condition called congenital subcortical band heterotopia. This is a condition in which nerve cells do not move, or migrate to their proper locations in the fetal brain during early development. Signs and symptoms of the condition depend on the size of the bands and the lack of development of the cortex, but can include severe intellectual disability and seizures that begin early in life, and affect both sides of the brain. In Luke’s case, he has been having epileptic spasms since the age of two, and since May 2023 he has 3 to 4 seizures per day. Unfortunately, he is treatment resistant and is currently on his seventh medication. Luke has demonstrated behavioral and emotional regression and receives PT and OT biweekly.
Luke’s family and his physical therapist have requested an adaptive tricycle with safety customizations promoting head and trunk control, as well as accommodations to assist with the instantaneous onset of seizures. Having this strike at home will not only promote muscular endurance, motor planning and cardiovascular exercise, but also social interactions with his family and same aged peers in his neighborhood!
Enjoy Luke!!!

We were able to surprise one very unsuspecting little girl with something she’s ALWAYS wanted to experience….a trip to Walt Disney World this coming April!
Aubrey is diagnosed with Neurofibromatosis Type 1, a condition characterized by the growth of non-cancerous tumors along nerves in the skin, brain, and other parts of the body, along with changes in skin coloring. The signs and symptoms of this condition can very widely among affected people, but in Aubrey‘s case, she experiences bladder incontinence, generalized muscle weakness, and an optic glioma in the eye among other symptoms. Throughout managing her symptoms, bi weekly appts to Boston and visiting the school nurse twice a day, she maintains a sweet, innocent and empathetic disposition towards others!

It was such a pleasure to meet this humble and grateful family in person and we can’t wait to hear all about Aubrey’s trip to Disney!!

What Makes Me Special! is excited to be donating $1, 021.00 to the High Hopes Foundation of NH! @ flappingoodtale.com

Huge shout out to the guys for making sure Kevin got the perfect winter wet suit and surf board to meet his needs! He looks stoked to us! Have fun riding the waves Kevin!!

rainbows

The NH Bacon & Beer Festival (returning June 1, 2024 to Merrimack NH) announces a special one-day-only sale on Cyber Monday, November 27th. $10 off ALL TICKET TYPES – the biggest discount we offer!!!

Bacon & Beer benefits High Hopes Foundation of New Hampshire, providing life enhancing experiences and medical equipment to chronically & terminally ill kids for over 40 years.

Visit www.NHBaconBeer.com for tickets and more info. Don’t miss out!!

Colton and his brother Declan are swinging in style in their brand new swing set! Not only will the boys be able to enjoy countless hours of fun, their therapist also plans to use the swing set to address ABA therapy goals designed to improve delays as a result of their shared diagnosis of autism! Have fun boys!