Living with Lupus in Aberdeen Support Group

Just opened the latest Lupus UK news and views and they have printed my photo from the kiltwalk. £500 final total raised for Lupus UK thanks so much everyone who sponsored me for the kiltwalk. Can't wait for next year's ones.
A catch up will be arranged soon for the Aberdeen group. Hope all keeping well and safe.

Please message me if you need a chat / vent always here. Thanks Laura xx

Do you have lupus or another autoimmune condition?

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD).

This is to provide valuable insights into the way services are being delivered.

Taking part in the survey is voluntary and all answers are confidential. If you would like to take part, please click the following link: https://ipsos.uk/RAIRDAsurvey2024?fbclid=IwZXh0bgNhZW0CMTAAAR1RrVkEU0sLJQRQeQ6QImk0R7TCix00fj4eNwLubi2oCXrbMHFddsrL5fk_aem_AWA-yr7doEPyzDnuq0xLpXDFZvuQKFPmKzZPvQXEfV2SQJW5V6KkLm7Z9bMDf_2NBLp030GaOLesNI6SgbFLOgOi

For more information, please talk to your clinician.

Do you have lupus or another autoimmune condition?

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD).

This is to provide valuable insights into the way services are being delivered.

Taking part in the survey is voluntary and all answers are confidential. If you would like to take part, please click the following link: https://ipsos.uk/RAIRDAsurvey2024

For more information, please talk to your clinician.

Hello Everyone, just wondering when everyone is free for a Lupus Catch up.

Looking at November/ December since we are nearly finished in October.
29th October
4th November
5th November
18th November
19th November
25th November
26th November
2nd December
3rd December
16th December
17th December

Let me know your thoughts folks 🙂 thanks Laura x

I shared my story with lupus UK about our support group 🦋💜

We would like to say a big thank you to Laura for setting up our Aberdeen Lupus Support Group! 🫶

If you would like to learn more about the group, contact [email protected]

Sharing our stories 💜🦋

"Today I accept myself, give myself grace, and love myself unconditionally."

Thank you Tonnisha for sharing your experience with us for 🦋

Fact:
Did you know about 60% of people with get sun-induced rashes and a further 10-20% experience sun-induced symptoms like fatigue, brain-fog and headaches.

For more information visit www.lupusuk.org.uk/coping-with-light-sensitivity ☀️

Every Monday throughout we will be sharing a key quote. We hope you will find the quotes useful because we certainly do! Sometimes, we enjoy reading them out loud as it is a good reminder to ourselves to keep going and doing what is best for our physical and mental well-being 🙌

Worth a read folks 🦋

This week is !

A migraine is usually a moderate or severe headache felt as a throbbing pain on one side of the head. Some people have migraines frequently (up to several times a week) while other people only have a migraine occasionally.

We published a blog article on coping with migraines which you can read at https://www.lupusuk.org.uk/headaches-and-migraines/

Our next catch up next Sunday . Hope to see you all there ☺️ xx

Do you live in Aberdeen or the surrounding area? Join us at the next meeting of our Aberdeen Coffee & Chat Group on Sunday 27th August - informal and friendly - everyone is welcome including those with lupus or an associated condition, and their friends and family.

Hey everyone, hope you are all keeping well and coping in this heat.
Need to get another meet up arranged . Might be looking more like August as July is a bit crazy for me.
Are there any dates in August that would suit everyone best?

Thanks Laura 🙂.

For any males living with Lupus 💜

Calling men with - we want to hear from you!

If you are a male living with lupus, please spare 2-5 minutes to send [email protected] a quick email about how LUPUS UK can improve their services for men living with the condition.

The email can consist of bullet points and all feedback will be helpful in the development of future materials – thank you!

Was lovely seeing everyone yesterday 😊. I made a few notes of what we yapped about yesterday and also for anyone who couldn't make the meeting. Was lovely speaking about anything and everything yesterday and not just Lupus . Can't wait to meet up again soon. Take care Laura. X

Looking forward to seeing everyone tomorrow. For anyone who cannot manage please don't worry, we are going to have more meetings coming up 😊. For any new faces coming along I will have my lupus t shirt with me and be in Pret on Union Street for 12 😊.
Thanks Laura x

Hello Everyone, hope you are well?

Just wondering when everyone would be free for the next meet up ? The lupus nurse at rheumatology has emailed to ask when it will be so she can tell people in clinic about it ☺️

Thanks Laura x

Hey everyone, sorry for the lack of response on here lately, been busy with the kids and work etc. But wanted to update you all. So we had our first face to face catch up at Pret on 5th March. We had a fantastic turn out and was fab getting to meet you all and share some stories, info on meds , feelings and any tips. Can't wait for the next meet up. I've sent out an email to those who managed to attend and also a what's app . If anyone didn't receive my email / what's app please let me know. For anyone who couldn't make it , we can't wait for the next catch up and please feel free to get in touch.
I'm hoping to get a twitter or Instagram page also set up for the group soon .
Thanks Laura x

Hey just a reminder we have a face to face meeting at Pret in Union Street this Sunday . Our first meet hope people can make it as would be lovely to meet you all 😊 thanks Laura xx

****EDIT unfortunately, we are going to have to cancel Saturdays meet up but hoping to get arranged for as soon as possible ***Please come along if you can make it folks xx

UNFORTUNATELY, DUE TO UNFORESEEN CIRCUMSTANCES, THIS MEETING HAS BEEN POSTPONED. A NEW DATE WILL BE PUBLICISED AS SOON AS POSSIBLE.

Join us for our first Aberdeen face to face Coffee & Chat group meeting on Saturday 4th February at 10 a.m. at Pret (coffee shop), 234 Union Street, Aberdeen AB25 1HJ. The meeting is for anyone with a diagnosis of lupus, or an associated condition, as well as anyone who is currently going through the diagnosis process. The meeting is also open to friends and loved-ones.

If you would like to attend, or would like further details, please contact me at [email protected], or on 01708 731251.