KyrieStrong Movement

NEXT UP for RunFest 💚Support a good cause this month! Kyrie’s first race of the year and second year as an athlete 💪🏽💚

2024 ASA MD RunFest - #Kyriestrong WELCOME TO OUR TEAM PAGE FOR ASA RUNFEST! Family and Friends,I am so excited to be participating in ASA RunFest this year. Athletes Serving Athletes (ASA) is an awesome organization. They help athletes living with limited to no mobility train and participate in mainstream running events! I have comm...

Marley Quinn

2024 ASA MD RunFest - #Kyriestrong WELCOME TO OUR TEAM PAGE FOR ASA RUNFEST! Family and Friends,I am so excited to be participating in ASA RunFest this year. Athletes Serving Athletes (ASA) is an awesome organization. They help athletes living with limited to no mobility train and participate in mainstream running events! I have comm...

We need your help! We will be running along side at this years MD Run Fest 💚💪🏽💚

Share or Donate or Both 💪🏽💚Thank you!

2024 ASA MD RunFest - #Kyriestrong WELCOME TO OUR TEAM PAGE FOR ASA RUNFEST! Family and Friends,I am so excited to be participating in ASA RunFest this year. Athletes Serving Athletes (ASA) is an awesome organization. They help athletes living with limited to no mobility train and participate in mainstream running events! I have comm...

TODAY IS RARE DISEASE DAY 2024💚💚

Rare Disease Day is a day raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families, and carers.

Duchenne Muscular Dystrophy is the rare disease near and dear to our hearts. Not only is Duchenne a progressive muscle-wasting disease, but individuals with Duchenne also frequently experience extreme social isolation, higher rates of mental health diagnoses, and significant obstacles to achieving life goals.

You can help us raise awareness and advocate for the individuals and families living with this rare disease.

FOREVER…WE DO THIS FOR YOU 💚💪🏽💚WE LOVE YOU KYRIE🫶🏽💚

🗣️EVERYONE STOP WHAT YOUR DOING & WISH THE G.O.A.T A HAPPY BIRTHDAY🥳

WE LOVE YOU KEEP GOING STRONG 🫡💚💪🏽

CASHAPP HIM SOME BIRTHDAY 💚💚🥳$Kyrie2strong2

November is National Family Caregivers Month and we're celebrating those who have embraced this role by lending strength to the ones who need it the most.
Being a caregiver is a journey that goes beyond the surface of tasks, it's a testament to resilience, patience, and the profound impact of love.

Thank you for all that you do 💚

A special thanks to ’s Caregivers🫡🫶🏽💚💪🏽

WE GOT YOUR BACK 💚💯💪🏽

SAY LESS DMD WARRIOR MOM IS IN THERE‼️💯🫶🏽💚

MEDIA day for the TWU…My daughter starts another wrestling season representing …We wish her a strong season ahead and ZANYA GO SHOW THEM WHAT YOU ARE MADE OF & WHO YOU ARE DOING THIS FOR 💪🏽🫡🫶🏽💚💯

BIG S/O TO Ebony Renwick & SOME OF THE ABERDEEN LACROSSE TEAM FOR RUNNING Cats & Bats Haunted 5K
FOR ME & 💚 🫡💚

THIS DMD AWARENESS YEAR WE LEVELED UP AND NOW HAVE
💚Shirts
💚Cups
💚Car decals
MORE TO COME STAY TUNED… DMD Store coming soon🙏🏾💯

BRING AWARENESS

THE MORE YOU KNOW THE MORE YOU WILL UNDERSTAND💚💪🏽

https://www.mda.org/disease/duchenne-muscular-dystrophy

💚

Duchenne Muscular Dystrophy (DMD)

What is Duchenne muscular dystrophy? In the early stages, DMD affects the shoulder and upper arm muscles and the muscles of the hips and thighs. These weaknesses lead to difficulty in rising from the floor, climbing stairs, maintaining balance and raising the arms.
In the early stages, DMD affects the shoulder and upper arm muscles and the muscles of the hips and thighs. These weaknesses lead to difficulty in rising from the floor, climbing stairs, maintaining balance and raising the arms.

Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness due to the alterations of a protein called dystrophin that helps keep muscle cells intact. DMD is one of four conditions known as dystrophinopathies. The other three diseases that belong to this group are Becker Muscular dystrophy (BMD, a mild form of DMD); an intermediate clinical presentation between DMD and BMD; and DMD-associated dilated cardiomyopathy (heart-disease) with little or no clinical skeletal, or voluntary, muscle disease.

DMD symptom onset is in early childhood, usually between ages 2 and 3. The disease primarily affects boys, but in rare cases it can affect girls.

In Europe and North America, the prevalence of DMD is approximately 6 per 100,000 individuals.1,2,3,4

What are the symptoms of DMD?
Muscle weakness is the principal symptom of DMD. It can begin as early as age 2 or 3, first affecting the proximal muscles (those close to the core of the body) and later affecting the distal limb muscles (those close to the extremities). Usually, the lower external muscles are affected before the upper external muscles. The affected child might have difficulty jumping, running, and walking. Other symptoms include enlargement of the calves, a waddling gait, and lumbar lordosis (an inward curve of the spine). Later on, the heart and respiratory muscles are affected as well. Progressive weakness and scoliosis result in impaired pulmonary function, which can eventually cause acute respiratory failure. For more about DMD symptoms, see Signs and Symptoms.

Becker muscular dystrophy (BMD) is a similar to DMD, but with onset usually in the teens or early adulthood. The disease course for BMD is slower and less predictable compared to DMD.

What causes DMD?
DMD was first described by the French neurologist Guillaume Benjamin Amand Duchenne in the 1860s, but until the 1980s, little was known about the cause of any kind of muscular dystrophy. In 1986, MDA-supported researchers identified a particular gene on the X chromosome that, when flawed (mutated), leads to DMD. In 1987, the protein associated with this gene was identified and named dystrophin. Lack of the dystrophin protein in muscle cells causes them to be fragile and easily damaged.

DMD has an X-linked recessive inheritance pattern and is passed on by the mother, who is referred to as a carrier. For more about the way gene mutations cause DMD, see Causes/Inheritance.

What are DMD “carriers”?
DMD carriers are females who have a normal dystrophin gene on one X chromosome and an abnormal dystrophin gene on the other X chromosome. Most carriers of DMD do not themselves have signs and symptoms of the disease, but a minority do. Symptoms can range from mild skeletal muscle weakness or cardiac involvement to severe weakness or cardiac effects and can begin in childhood or adulthood. For more, read Females and DMD in Causes/Inheritance.

What is the life expectancy in DMD?
Until relatively recently, boys with DMD usually did not survive much beyond their teen years. Thanks to advances in cardiac and respiratory care, life expectancy is increasing and many young adults with DMD attend college, have careers, get married, and have children. Survival into the early 30s is becoming more common than before. For more about living with DMD, see Medical Management.

What is the status of DMD research?
MDA-supported researchers are actively pursuing several exciting strategies in DMD, such as gene therapy, exon skipping, stop codon read-through and gene repair. Human clinical trials are underway for some of these strategies. For an overview of DMD research strategies and the latest research news, see Research.

On Sept. 19, 2016, the U.S. Food and Drug Administration (FDA) granted accelerated approval to eteplirsen (brand name Exondys 51) as the first disease-modifying drug for DMD. For more, see Top 5 FAQs: Eteplirsen (Exondys 51) for DMD Treatment.

On Feb. 9, 2017, the FDA approved deflazacort (brand name Emflaza) to treat DMD. For more, see FDA Approves Emflaza for Treatment of Duchenne Muscular Dystrophy.

In December 2019, Vyondys 53, an "exon skipping" drug that targets a section of DNA called exon 53 was approved by the FDA for treatment of individuals who have a confirmed mutation of the DMD gene that is amenable to a therapeutic strategy called exon 53 skipping and may help up to 8% of individuals with DMD. For more, see https://www.mda.org/press-releases/mda-celebrates-fda-approval-vyondys-53-treatment-dmd-amenable-exon-53-skipping.

In August 2020, Viltepso, an "exon skipping" drug that targets a section of DNA called exon 53. was approved by the FDA for treatment of individuals who have a confirmed mutation of the DMD gene that is amenable to a therapeutic strategy called exon 53 skipping and may help up to 8% of individuals with DMD. For more, see https://strongly.mda.org/fda-approves-ns-pharmas-viltepso-for-treatment-of-dmd-amenable-to-exon-53-skipping

For stories of families living with DMD, see our DMD stories on Strongly, the MDA blog.

Download our Duchenne Muscular Dystrophy (DMD) Fact Sheet

FDA Approves NS Pharma’s Viltepso for Treatment of DMD Amenable to Exon 53 Skipping - Quest | Muscular Dystrophy Association Quest strives to empower, inform, and engage with updates on research and clinical trials, conversations with thought leaders, and stories that explore independence and well-being, access to healthcare, education, employment, financial literacy, and more.

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Today is the last day 💚 SUPPORT MY BRO🫡

Khalil’s Pop-Up Store Click here to buy ultra-premium popcorn and 50% of your purchase benefits this fundraiser.

My lil bro helped me a few months ago so now is the time that I help him and his football team! Please help support 9U💚💙

The link is below and it comes right to your doorstep!

https://popup.doublegood.com/s/ew528ep3

Thank you 💚

WE CELEBRATE YOU KYRIE ON A JOB WELL DONE AND FINISHING STRONG💪🏽🫡💚5TH GRADE OUT✌🏽

WE ARE SO PROUD OF YOU KYRIE 💚💪🏽LOVE YOU

LOVES ALL THE LOVE AND SUPPORT THE STAFF & STUDENTS GIVE HIM EVERYDAY🫡💚FOREVER THANKFUL Church Creek Elementary. 💪🏽 Designs by Maguire

SALUTES🫡 Delta Air Lines 💚

He is BIGGEST supporter💯Representing at the Iron Birds game💪🏽💚WE 🫡 YOU💪🏽

KyrieStrong Movement updated their information in their About section.

Good morning everyone!! Today is the last day to hit goal for Kyrie!! We have until 11am, so please hit the link below and buy your favorite flavor of popcorn! And remember, 50% of all funds spent go directly towards helping Kyrie in his day to day activities 💚💚💚💚

THANK YOU ALL!! We are very close to goal 💚💚

https://s.dgpopup.com/ew528ep3