Epilepsy Foundation Eastern PA - EFEPA

the Epilepsy Foundation of America has an online Learning Portal where you can access online courses to enhance your understanding of seizures and epilepsy management.

Visit the portal and learn more at: learn.epilepsy.com

It’s almost time to head back to school!

While you and your kiddos are gearing to return to the classroom, keep these seizure safety tips in mind to assure epilepsy warriors of all ages stay seizure safe.

As we gear up for our fall walk to END EPILEPSY events in both Lancaster and the Northeast, we want to hear from you!

The walks are not only a vital opportunity to raise money for the EFEPA to continue programs and services, but to come together to see members of the community and connect on our shared goal to end epilepsy.

If you plan to attend either Walk to END EPILEPSY events in Lancaster or the Northeast, let us know in the comments and tell us about the friends you've seen at past walks!

Plus, don't forget to register for both walks at the link in our bio.

The EFEPA is going to the greens!

Join us for the 36th Annual Charley Roach Golf Invitational on Tuesday, October 8th.
Each year, we host the golf invitational to come together, honor our founder, Charley Roach, and to raise funds for the continuation of our programs and services.

Register now at: www.Golf4Epilepsy.org

That’s a wrap on Camp Achieve 2024!

Last week, we had the best week ever with our campers. We swam, climbed, laughed, and made memories to last a lifetime.

Thank you to everyone who made this year one for the books, stay tuned for the Camp Achieve reunion this winter!

We know how important Law Enforcement response can be to the health and safety of people experiencing seizures.

Join us for the next virtual Seizure Recognition & Management Training for Law Enforcement on Thursday, August 22nd at 5:30 pm, to learn how Law Enforcement personnel can recognize the signs and symptoms of various seizure types, ways to handle epilepsy-related events, and more.

Register at: https://us02web.zoom.us/webinar/register/WN_IhzuEHfCR5mAmasKZMBXBg #/registration

Attention Northeast PA!

The Walk to END EPILEPSY - NEPA will be held at a new location on Saturday, October 5th!

Join us at Kirby Park Pavilion 1 to come together as a community and unite to raise awareness and funds for the EFEPA.

Register now at www.epilepsywalknepa.org

This week, Senior Media Manager, Zoe, celebrates 2 years at the EFEPA!

Zoe has loved working closely with the local epilepsy community to raise awareness of the EFEPA.

Thank you, Zoe, for all you do!

Philadelphia area! A quick reminder that there will not be a support group meeting this month.

Please plan to attend our next meeting on Tuesday, September 10th.

2 days away Camp Achieve! We are so excited to welcome 70 campers to Camp Green Lane this Sunday, but we couldn’t do any of it without our incredible sponsors!

Thank YOU for your continuous support of the EFEPA and for making this year's week at Camp Achieve great!

Teachers! Help epilepsy warriors of all ages stay seizure safe this school year by joining the Seizure Recognition & First Aid training for Teachers and School Personnel on Thursday, August 15th, at 5:30 pm.

This training will review new seizure classifications, proper first aid, and more. The training will also present the social, psychological and cognitive impacts that epilepsy may have for a student.

Register at: https://us02web.zoom.us/webinar/register/WN_Vqy9sVg8Q_KAJ-Cj4Srl6Q

Lancaster County! This year’s Walk to END EPILEPSY - Lancaster event will be at a new location!

We’re bringing the power of purple to Greenfield Park (1828 William Penn Way, Lancaster) on Saturday, October 19th. Join us for a day of fun, family, and fundraising!

Don’t forget to begin forming your teams and registering yourself to walk at: www.epilepsywalklanc.org.

Just in time for back to school!

The EFEPA will host another Seizure Recognition & First Aid Training for School Nurses on Tuesday, August 13, at 5:30 pm.

This virtual training will acquaint school nurses with new seizure classifications, proper seizure first-aid, and much more to better understand epilepsy and implication for care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student.

Register at: https://us02web.zoom.us/webinar/register/WN_DUfXCbEGQXS0k_hylzujDA

Community member and parent, Colleen Quin will be joining Neurelis for their webinar, “Carry On With Confidence.” The webinar will discuss seizure clusters, and how you can carry on with confidence after experiencing multiple seizures.

The webinar will be held on Tuesday, August 13th at 7 pm.

Learn more at: https://valtocoprograms.com/

Summer isn’t over quite yet and for most, school is still out and family members may be home more throughout the day than during other seasons.

Home is the most common place for seizure-related accidents to happen. Keep these seizure-safety tips in mind to assure your home is seizure safe!

to last year’s Charley Roach Golf Invitational!
This year, we’re returning to RiverCrest on October 8th to hit the greens as we fundraise for the EFEPA’s programs & services.

Stay tuned for more details to come!

Lancaster and Northeast community members - it’s almost your time to walk to END EPILEPSY!

Both of our fall walk sites are officially LIVE for you to mark your calendars, begin registering, growing your team, and help us to fundraise for the EFEPA!

Walk to END EPILEPSY - NEPA: www.epilepsywalknepa.org
Walk to END EPILEPSY - Lancaster: www.epilepsywalklanc.org

Today on International Day of Friendship, we are reminiscing on all of our friends at Camp Achieve! We can't wait to see campers, counselors, volunteers, and medical staff in just 12 days.

If you have made friends at Camp Achieve, or any of our other programs, share some photos with us in the comments below!

As the Northeast gears up for the Walk to END EPILEPSY-NEPA and the Strike Out Epilepsy Bowl-A-Thon events, we could use the help if community members LIKE YOU to purchase gift cards from the MPL Center Wishlist so we can include them in raffle baskets and prizes.

Visit the wish list at:
https://www.amazon.com/hz/wishlist/ls/10RHKH35S5SN5?ref_=list_d_wl_lfu_nav_5

The American Epilepsy Society has developed a toolkit aimed at preventing epilepsy deaths.

Created by medical providers and people with epilepsy, the toolkit includes an assessment and action guide, information on how to have effective conversations about the risks of epilepsy deaths, and a patient handout that details how to decrease the risk of epilepsy death.

View the toolkit at: www.preventingepilepsydeaths.org

Community member and friend of the EFEPA, Tom Dixon, has released his first memoir!

The book, titled, “I’m Sorry…. That’s Awesome!” recounts Tom’s time recovering from a life-threatening accident, and how the accident led to living with memory loss.

Learn more about “I’m Sorry…. That's Awesome!” at: https://tinyurl.com/ThomasDixonMemoir

Rescue medications for epilepsy can stop a seizure crisis in its tracks.

We at the EFEPA advocate that everyone who has active seizures should have a seizure rescue medication readily available to provide a safety net for the possibility of prolonged seizures or seizure clusters. Talk with your epilepsy specialists on what seizure rescue medication is best for you!

For more information, visit: https://www.epilepsy.com/treatment/seizure-rescue-therapies

Yesterday, our incredible Vice President of Programs & Advocacy, Rena Loughlin, celebrated her 5th year anniversary at the EFEPA!

Rena has dedicated her life to improving the lives of those living with epilepsy. She meets every challenge she faces with compassion, strength, and resilience.

Rena will be heading out on maternity leave from August 1st to November 1st. We at the EFEPA will miss her dearly!

Bucks County! Join the Bucks County Support Group Picnic at Cora Creek Park on Thursday, August 1st at 6:30 pm.

Come out to meet others in your community while enjoying some delicious food on a nice summer evening!

For those planning to attend, please RSVP by July 25 to Denise at [email protected] or Sue at [email protected].

Mientras continuamos traduciendo nuestros recursos , esperamos expandir nuestra comunidad y la inclusión para todos. No importa su origen, nadie debe luchar solo contra La Epilepsia.

Para obtener más información sobre nuestros recursos en español, comuníquese con Janette Locke en [email protected].

to another fun summer at Camp Achieve!

Our talent show is one of our favorite nights of the week where campers get to show off their talents and have a blast while they do it. We can’t wait to see what this year’s talent show brings!

UCB Biosciences Inc. is conducting a phase 3 clinical trial called STARS to investigate a drug for prolonged seizures (seizures typically lasting more than 3 minutes).The study is looking for patients 12 and older who have focal or generalized epilepsy, or a combination of the two.

This study is to measure how well the body tolerates the investigational medication and whether it works in people who have prolonged seizures. It is required for the patient to have an active caregiver to be part of this study.

To learn more about the STARS study, visit www.starsepilepsystudy.com.

Everest Discovery is partnering with Concihairge on Thursday, July 25th from 11am to 7pm for a pop up fundraising event at HeadRoom Coworking (24 Veterans Square, Media PA) to support Camp Achieve.

Services include haircuts, blowouts, extensions and more. You can also schedule their hair services to come to your home for the month of July to benefit Camp Achieve.

Book your hair appointment at:
https://go.concihairge.com/everest_discoveryepilepsyfoundationofeasternpennsylvania

Join us for a morning of yoga in Northeast PA! The MPL Center will host a 1 hour session of yoga on Saturday, July 27, from 11:30am-12:30pm.

This session will be appropriate for all abilities. Session is free of charge for support group members and $5 for non-support group members to attend. Please wear loose fitting clothing and bring a yoga mat.

RSVP by July 21 to Rena Loughlin at [email protected] or 215-779-8828.

1 month away from Camp Achieve!!

We are busy as we continue to prepare for our favorite week of the summer! If you would like to help us provide necessary supplies to camp, don’t forget to visit our Amazon wishlist: https://tinyurl.com/CampAchieve024