Emerge Australia Inc

Learn with Emerge Australia (LEA) is a free education platform for people who live with
ME/CFS, long COVID, their carers and supporters. ​
Once you sign up to the education platform, enrol in a course and join free live
education sessions with Registered Nurse Camille. ​
Click the link to learn more about our live sessions and pacing packages. ​
https://vist.ly/3mgvw53

The pacing education package includes:
Session 1: Basics of ME/CFS and its links with long COVID
Session 2: PEM
Session 3: Pacing and Pacing with the Heart
Session 4: Q&A and follow up questions.

Reminder: Live session with Nurse Camille today!

Learn with Emerge Australia (LEA) is a free education platform for people who live with ME/CFS, long COVID, their carers and supporters.

Click the link to learn more about our live sessions and pacing packages
https://vist.ly/3mgmyys .

For Healthcare professionals:

Sign up to Emerge Australia's mailing list to hear about exciting new educational opportunities regarding diagnosis management and treatment of energy limiting chronic conditions such as ME/CFS and long COVID.

HERE: https://vist.ly/3mgjckr

Deakin University (VIC) are looking for people with ME/CFS (18+) located in or around the Greater Melbourne and Geelong regions that would be interested in participating in a 12-week krill oil supplementation study.

For more information, visit:
https://vist.ly/3mggq8n

📢 Did you know? According to the AusME registry, the average number of years a
participant has lived with ME/CFS is 11.24 years. 🕒

Important information like this helps advocacy efforts and highlights the need for increased investment in medical research for ME/CFS and long COVID.

By joining the AusME Registry, your valuable health data will accelerate a better understanding of these illnesses from the perspective of those directly affected.

Join the AusME Registry to accelerate research outcomes and improve the quality of life for those affected. Together, we can make a difference! 🌟

Sign up today and be a part of the change: https://vist.ly/3mgbfgy

We are excited to announce a new partnership between The Safer Air Project and Emerge Australia! We are proud to be working together to protect the health and wellbeing of people living with ME/CFS) and long COVID with the prevention of airborne infection through improved indoor air quality.

Recognising that everyone should be able to breathe safely, without risking poor health
outcomes, the Safer Air Project (SAP) advocates for safer indoor air quality as a critical accessibility and inclusion issue for people living with chronic health conditions.

Through our collaboration, we will promote the importance of maintaining clean indoor air. This will reduce the risk of poor health outcomes from infection faced by people with ME/CFS and long COVID and prevent more people from developing post-infection diseases.

Together, we aim to create safer, healthier and more accessible environments that better support everyone’s wellbeing.

Learn with Emerge Australia (LEA) is a free education platform for people who live with
ME/CFS, long COVID, their carers and supporters. ​
Once you sign up to the education platform, enrol in a course and join free live
education sessions with Registered Nurse Camille. ​
Click the link to learn more about our live sessions and pacing packages. ​
https://vist.ly/3mg8t54

The pacing education package includes:
Session 1: Basics of ME/CFS and its links with long COVID
Session 2: PEM
Session 3: Pacing and Pacing with the Heart
Session 4: Q&A and follow up questions.

We have an awkward question to ask....

We’re taking part in the social change campaign called Charity Week.
Charity Week is all about asking an awkward question to friends, family, colleagues -anyone who will listen.

So here goes...
Do you plan to include a charity in your will?

Gifts in wills help charities all over the world.
At Emerge Australia, the gifts we receive through wills help us to ensure that anyone impacted by ME/CFS or long COVID has access to support, information and advocacy that empowers them with knowledge and skills to improve their quality of life. We offer support to the over half a million Australians who live with ME/CFS and long COVID, 75% of whom are women and many of whom are left house or bedbound by their condition.

But, we know will-writing can be expensive.

So we’ve partnered with Gathered Here, Australia’s most trusted online will platform, to bring you access to 100% free online wills with unlimited free updated for life.

👉Write your free will today: https://www.emerge.org.au/gift-in-will/

Reminder: Live session with Nurse Camille today!

Learn with Emerge Australia (LEA) is a free education platform for people who live with ME/CFS, long COVID, their carers and supporters.

Click the link to learn more about our live sessions and pacing packages
https://vist.ly/3mg3icx .

National Carer Strategy: call for submissions

-Help make ME/CFS and long COVID carer voices heard!
-Consultation period open now. Closes 13 September.

The Australian Government is developing a new National Carer Strategy. They want to hear from carers about what is important to you, and how the government can ensure you have the supports and services you need to participate fully in society and fulfil your caring role.

Carers, you can contribute to the development of the Strategy by responding to a questionnaire or making a submission here.

Click here: https://engage.dss.gov.au/national-carer-strategy/

For Healthcare professionals:

Sign up to Emerge Australia's mailing list to hear about exciting new educational opportunities regarding diagnosis management and treatment of energy limiting chronic conditions such as ME/CFS and long COVID.

HERE: https://vist.ly/3mfyvz4

If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research!

Learn more today https://vist.ly/3mfw9kq
www.ausmeregistry.org

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The Murdoch Children’s Research Institute (VIC) are looking for young, healthy people aged 12-19 years to participate in their adolescent ME/CFS research study.

For more information visit:
https://vist.ly/3mfncgq

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Write your free will today

On this International Day of Charity, did you know, a third of Australians say they would consider including a charity in their will?
But only half even have a will!

We’re on a mission to close that gap, so we’ve partnered with Gathered Here, Australia’s most trusted online will platform, to bring you access to free online wills - with unlimited free updates for life!

You don’t have to include a charity in your will to take advantage of this offer. But we do ask that you consider it.

Gifts in wills will make a significant difference to the work we do at Emerge Australia, ensuring that anyone impacted by ME/CFS or long COVID has access to support, information and advocacy that empowers them with knowledge and skills to improve their quality of life.

It is crucial that we can offer support to the over half a million Australians who live with ME/CFS and long COVID, 75% of whom are women and many of whom are left house or bedbound by their condition

👉Write your free will today: https://vist.ly/3mfjq4y

Even if you don’t pledge a gift to Emerge Australia, writing a will can give your loved ones financial and emotional clarity in a time of great confusion and grief.
If you don’t do it for us, do it for them!

Learn with Emerge Australia (LEA) is a free education platform for people who live with ME/CFS, long COVID, their carers and supporters. ​
Once you sign up to the education platform, enrol in a course and join free live
education sessions with Registered Nurse Camille. ​
Click the link to learn more about our live sessions and pacing packages. ​
https://vist.ly/3mfi3dd

The pacing education package includes:
Session 1: Basics of ME/CFS and its links with long COVID
Session 2: PEM
Session 3: Pacing and Pacing with the Heart
Session 4: Q&A and follow up questions.

Are you an unpaid carer? You’re invited to Carer Gateway’s 2024 Carers Week Event!
On October 12th, Carer Gateway is hosting a special family day for unpaid carers at Grazeland
in Melbourne.
There will be dozens of food and drink stalls to choose from, live music, roving entertainers
and the opportunity to connect with other carers.
📅 Date: Saturday, October 12​
📍 Location: Grazeland, 20 Booker St, Spotswood​
⏰Time: 12:00 PM – 4:00 PM​
🎫Cost: Free!
Tickets are limited, so be sure to reserve your spot now! Maximum of four tickets per carer.
Click for more details and to register: https://vist.ly/3mfhht2
Carer Gateway is a free nationwide service that provides support tailored to the needs of
unpaid carers. National Carers Week (Sunday 13 to Saturday 19 October) celebrates the
invaluable contributions of unpaid carers to the community.

National Carer Strategy: call for submissions

-Help make ME/CFS and long COVID carer voices heard!
-Consultation period open now. Closes 13 September.

The Australian Government is developing a new National Carer Strategy. They want to hear from carers about what is important to you, and how the government can ensure you have the supports and services you need to participate fully in society and fulfil your caring role.

Carers, you can contribute to the development of the Strategy by responding to a questionnaire or making a submission here.

Click here: https://vist.ly/3mfh3r3

Do you know an ME/CFS and long COVID aware GP? We need your help to list them on our GP Directory so that others may be helped.

This is what we need you to do:
1. Check that your GP is happy to be listed - please ask them.
2. If they are happy - please complete this form. https://forms.zohopublic.com.au/emergeaustralia/form/RecommendaService/formperma/GLa-JsxrMDtRIG4rIAaQiIZhucSv3ssXtkP2Ojsm6z4
3. You may also wish to send them this link if they prefer

If your GP would like more information, they can take a look at the directory at:https://directory.emerge.org.au/, or they can email Emerge Australia on: [email protected] to find out more.

There is a helpful set of FAQ’s to help you understand how the directory works and who might be listed: https://directory.emerge.org.au/faqs/

Will you give the gift of a lifetime?

Charity Week is back so we’re asking a big question - Will you include Emerge Australia in your will?
A lot of people don’t know this, but gifts in wills make up 25% of all charity revenue in Australia -and it doesn’t need to cost a cent to put this in place.
Write your free online will today and you can pledge a life changing gift that will help Emerge Australia deliver crucial professional services across clinical education, patient support and education, advocacy and biomedical research for those living with ME/CFS and long COVID.

👉Write your free will today: https://www.emerge.org.au/gift-in-will/

The Baker Institute (VIC) are looking for people aged over 18 who have been diagnosed with ME/CFS or are otherwise healthy to participate in their research study.

For more information visit:
https://www.emerge.org.au/get-involved-in-research/

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Happy Father’s Day

Today, as Australia celebrates Father’s Day, Emerge Australia would like to send a message of support to all those families affected by ME/CFS or long COVID and recognise that what you do on this day may be quite different than others.

To the fathers and father figures living with or caring for someone with ME/CFS or long COVID, we recognise the tremendous effort you make in challenging circumstances.

Thank you for all the love, help, and support you have given us throughout our lives. You continue to inspire us every day!

Yesterday, one of our posts about the NDIS created concern and confusion for some of you, and for that we wish to apologise.

The NDIS has not been functioning as well as it could for many people with disabilities, especially those with ME/CFS and long COVID. For this reason, we welcome the government’s plan to reform the system. However, we share our community’s concerns that some of the proposed changes may make life harder for people living with ME/CFS and long COVID.

We have been lobbying strongly for the needs of people living with ME/CFS and long COVID in the reform of the NDIS. In recent weeks, we have:
• met with Minister Shorten’s office
• made a submission on the proposed list of NDIS supports
• presented to the Joint Standing Committee on the NDIS: Inquiry into the NDIS participant experience in rural, regional and remote Australia.

The NDIS is vital to the quality of life for all Australians with disability. We will continue to advocate for the needs of those with ME/CFS and long COVID, both in accessing the scheme and receiving necessary supports from it.

You can read our submission on the proposed list of NDIS supports here: https://vist.ly/3hpyj

🔬 Are you ready to drive transformative discoveries in medical research?🔬
🩺Join the AusME Registry today to be part of groundbreaking medical research for ME/CFS and long COVID!🦠
🌟Signing up is simple and impactful🌟
📣Check out the registry’s state and territory’s geographic distribution – and join us in making a difference together👏🏽

"

Learn more today: https://www.emerge.org.au/ausme/

Emerge Australia welcomes Minister Shorten's NDIS reform announcements and major investment in the NDIS to ensure it is adequately resourced. We will continue to work with the Government and NDIA to ensure that people living with ME/CFS can readily access the NDIS and that the Scheme meets their needs via

1. Submissions and advocacy
2. Advocacy to ensure that people living with ME/CFS are able to access the Scheme based on their level of functioning

We will work together to build a better NDIS for our community.

/CFS

🔬 Exciting News! 🔬 Introducing Emerge Australia’s latest edition of the Research Digest, curated with the latest findings in ME/CFS and Long COVID. Stay up-to-date with groundbreaking discoveries and advancements in the field.

Subscribe now for exclusive access! 📚✨
https://vist.ly/3hg73

If you haven’t prior, please provide your feedback rating in response to a brief question to help Emerge Australia understand how you perceive the work we do on your behalf.

Please click here: https://vist.ly/3hatg

Thank you for helping us to continuously improve.

Advocacy update: NDIS

The federal government is undertaking a reform of the NDIS. This is a significant task, which will have an enormous impact on Australians living with ME/CFS and long COVID. The NDIS reform presents us with many opportunities to have input into the scheme, and help make it better for people with ME/CFS and long COVID.

Emerge Australia is engaging with the government on this vital reform for many months. In recent weeks, we have
* met with Minister Shorten’s office
* made a submission on the proposed list of NDIS supports
* presented to the Joint Standing Committee on the NIDS: Inquiry into the NDIS participant experience in rural, regional and remote Australia.

There were several areas of concern in the proposed NDIS Supports list, and we used our submission to provide further education on the nature of energy-limiting conditions and the support needs that arise when living with them.

The NDIS is vital to the quality of life for all Australians with disability. We will continue to advocate for the needs of those with ME/CFS and long COVID, both in accessing the scheme and receiving necessary supports from it.

To learn more, click here: https://vist.ly/3h9vk

Your help is needed!

Can you help us?

We’re on a mission to create helpful, joyful assistive products that people feel good using. 

To do that we need your help!

We’ve chosen the very useful but ugly shower chair to redesign first, and are very excited to have teamed up with talented product designer Nila Rezaei from RK. Collective to help make that happen.

To make sure our design works for as many people as possible we need to understand a broad range of experiences, needs and insights. 

We have created a survey for shower seat users which you can access here:

https://survey.zohopublic.com.au/zs/szDbvl 

Whilst we’ve done our best to keep things simple, we understand that talking to us or filling out surveys can take a lot of physical and mental energy and can be challenging for some. If you’d like a different way of communicating with us then do let us know!

We’re also hoping to interview:

☑ Carers and Support Workers who support people using shower seats

☑ Occupational Therapists and health professionals who prescribe assistive technology

☑ Anyone who can help us add another piece to the puzzle!

If you'd be able to talk with us in a 30minute or so video call that would be absolutely amazing! You can PM us or email us at [email protected] and give us your details and we'll be in touch soon to organise a time. 

We're super excited to start this journey with you all 🌻

National Carer Strategy: call for submissions

-Help make ME/CFS and long COVID carer voices heard!
-Consultation period open now. Closes 13 September.

The Australian Government is developing a new National Carer Strategy. They want to hear from carers about what is important to you, and how the government can ensure you have the supports and services you need to participate fully in society and fulfil your caring role.

Carers, you can contribute to the development of the Strategy by responding to a questionnaire or making a submission here.

Click here: https://vist.ly/3gvxu

The AusME Biobank relies on your blood to further its mission to advance medical research outcomes for ME/CFS and Long COVID! If you reside in Victoria or NSW and have ME/CFS or are willing to donate blood as a healthy volunteer, find out how you can become an AusME Biobank blood donor by visiting: www.ausmeregistry.org