Epilepsy Foundation Hawaii

Special delivery to the offices of Dr. Keith Abe, Dr. Aileen Tanaka, and the pediatric neurology offices of Kapi’olani Medical Center for Women & Children.

By Your Side bags provide useful information for parents, families, and caregivers of a newly diagnosed child with epilepsy. This resource tool is helpful when taking on the responsibility of managing your child’s epilepsy. Contact us if you or someone you know would like this resource.

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KELLY’S OHANA

Kelly, your ‘ohana got you! Nice to see both your husband and son run by!

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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TEAM NORA

Loved having you guys join us!

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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TEAM DELLA

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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team Tromp

Kudos to members of the Dutch Navy who put together a team, raised funds, and individually ran either the 5K or 10K. HNLMS Tromp is a significant vessel in the Royal Netherlands Navy with an operational history of participating in numerous international missions and exercises. It has been involved in anti-piracy missions, humanitarian aid, and disaster relief efforts. Team members expressed that they were not used to running in the heat and humidity that Hawaii’s summer weather is known for.

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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HI-HO SILVAS

‘Ohana Silva has marched in the Freedom Run and Walk since the very beginning in support of their and our EFH board member, Robert Silva. They have raised a ton of awareness of epilepsy throughout the community over the years and funds to support our programs and services. 👏🏼❤️😊 TEAM

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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TEAM SIGMA

Wish we captured all the teams from this year’s Freedom Run and Walk for Epilepsy Awareness, but glad to highlight the teams we could rally together at the end. 💜😊💜👏🏼


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Mahalo Director of Naomi Manuel and Board Member Donna Mendes for joining us on 🤙🏽

Check out the 4th of July Freedom Run walk in Kailua to support the Epilepsy foundation.



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🌟🏃‍♂️ Join us for this summer’s Freedom Run for Epilepsy Awareness! 🏃🏽‍♀️🌟

Support Epilepsy Awareness and enjoy a beautiful morning of running in Hawaii! 🌺✨

📅 Date: July 4, 2024 📍 Location: Kailua High School, O’ahu

Choose your race:
5K Timed Run
10K Timed Run

Special Promotion: Youth rates are now 50% off! Instead of $20, it’s just $10! 🎉👟

This event is perfect for runners of all ages and abilities. Gather your family and friends, and let’s make a difference together!

🔗 https://runsignup.com/Race/HI/Kailua/FreedomRunOahu?blm_aid=0&blm_aid=15667

Don’t miss out! Register now and help us spread awareness and support for those impacted by seizures. 💜💪

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In honor of Asian American, Native Hawaiian, and Pacific Islander Heritage Month we are offering a national training virtually on Zoom on Tuesday, May 7, 2024 at 10:00 am HST or 4:00 pm EST.

You can sign-up for the training and register with the link in bio.

While the research available on Asian American communities and epilepsy is limited, according to Epilepsy and Behavior, 140,000 Asian American adults in the United States have epilepsy. This means about 0.6% of Asian Americans have epilepsy. Due to the challenges of collecting data, as well as fear and confusion about having and disclosing an epilepsy diagnosis, the number of Asian Americans with epilepsy could be much higher.

Lack of understanding about epilepsy, along with challenges finding affordable, quality care available in Asian and Pacific Island languages, can make it hard for many Asian Americans and Pacific Islanders with epilepsy to live full and healthy lives. In addition, some people have negative perceptions about epilepsy, such as the mistaken belief that epilepsy has a spiritual cause or is a mental illness. Talking about epilepsy is often seen as taboo, not something shared outside of the family. Additionally, some providers have inadequate knowledge and lack of training in cultural humility, making it harder to have honest and productive conversations between patients and their healthcare teams.

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Happy 💜 PURPLE Day💜!

is a global movement to raise awareness of epilepsy! 🟣 Let’s start here:
The word “epilepsy” simply means the same thing as “seizure disorders.” It does not state anything about the cause of the person’s seizures or their severity.

Epilepsy is the fourth most common neurological disorder in the world. If you have epilepsy, surges of electrical activity in your brain can cause recurring seizures.

Everyone is encouraged to show their support by wearing purple or highlight anything purple to shine light on epilepsy.

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Mahalo nui loa to the Honolulu Elk’s Lodge No 616 for their generous donation to the Epilepsy Foundation of Hawaii! Their support of our mission and programs will go a long way!

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The Epilepsy Foundation of Hawaii held a Seizure Recognition and First Aid Certification training with staff, case managers, and partners of the County of Maui - Office of Economic Development and the Maui American Job Center, who assist Maui’s community with employment-related needs. This group of partners help to identify barriers and solutions to employment and create individualized goals toward self-sufficiency.

We were happy to offer this training in person and look forward to supporting our communities in any way that we can. We are available and flexible to train or present on seizure first aid to any business, organization, school, or entity that wants to learn more about it.

Give us a call at 808-528-3058 or email [email protected].

It’s ! Quality sleep plays a vital role in managing epilepsy and seizures. This week is a reminder to prioritize your sleep hygiene, establish a relaxing bedtime routine, and create a restful sleep environment. Your well-being matters!

Today is ! Join us and other advocacy organizations worldwide as we spotlight rare epilepsies and the challenges that come with a rare disease. We aim to raise awareness and improve health equity, including access and timely diagnosis, for people affected by rare diseases.

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Having a Seizure Action Plan is crucial for effectively managing epilepsy. Don’t delay – take control of your health today by creating your Seizure Action Plan! Download your SAP today, available in seven different languages. LINK IN BIO.

The Epilepsy Foundation of Hawaii was one of the many resources at the 11th annual Footsteps to Transition Fair 2024, hosted by the Department of Education Leeward District - held at Ewa Makai Middle School. This informational fair was designed to provide our youth with special needs (and their families) post-secondary supports and services in education, employment, recreation, and social opportunities offered in their community and open to all families and professionals across Hawaii. 


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Mark your calendars! Seizure Action Plan Awareness Week is set for February 12-19. If you’re a person with epilepsy, a caregiver, or a healthcare professional, join us to raise awareness about epilepsy and the importance of having a seizure action plan in place.

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With November being Epilepsy Awareness Month, KHON2 wanted to highlight the disease, as well as some of the resources available for those affected by it.

14K Hawaii residents live with epilepsy: What you need to know About 14,000 people in Hawaiʻi suffer from epilepsy, a brain disorder that often causes seizures.Hawaii News, Hawaii Weather, Hawaii SportsSee more of the te...

The Epilepsy Foundation of Hawaii is excited to host the 2023 Hawaii Epilepsy Education Conference in person at the Aloha Tower Market Place!

Registration link in bio.

Speakers include:

- Dr. Keith Abe, MD - Pediatric Neurologist, Kapi'olani Medical Center for Women & Children

- Dr. Leslie Rudzinski, MD - Epileptologist, The Queen’s Medical Center

- Dr. Kore Liow, MD - Epileptologist, Director and Principal Investigator, Hawaii Pacific Neuroscience

- Naomi Manuel - Executive Director, Epilepsy Foundation of Hawaii

- Kelly Voelkel - Epilepsy Warrior & Epilepsy Advocate

* Free to register and attend - all are welcome
* Free onsite parking with validation
* Refreshments provided

We're excited to have you and your community attend!

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It was an honor to have the Epilepsy Foundation of America’s new president and CEO, Bee Martin Lee, join us for this beautiful lei making event. She shared a bit about her journey with epilepsy and her personal mission to improve the lives of people living with epilepsy through her work at EFA and professional experience in the nonprofit and healthcare sectors. Bee learned how to wili a ti leaf lei and was able to talk story with individuals and families impacted by epilepsy here in Hawai’i. It was so wonderful to get to know her and we are beyond thrilled to join forces and strengthen our shared mission to improve the lives of people touched by epilepsy. Our warmest aloha to Bee. 💜

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Late post, but we had a wonderful day making lei and weaving connections with aloha. In addition to the beautiful flower lei creations, we contributed over 150 ti leaf lei or lei la’ī to Ho’omaluhia Botanical Garden’s ongoing collection of Memorial Day lei. This is in collaboration with the City and County of Honolulu’s initiative to have a lei on each gravestone at Hawaii’s veteran cemeteries on Memorial Day.

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Let's gather our epilepsy ʻohana together to make lei. It will be a hands-on experience and is an opportunity to learn together, make connections, and share knowledge & stories. This free workshop is open to individuals, caregivers, and families living with epilepsy. No experience is necessary; all levels of experience are welcome. This will be a morning full of reflection and relationship-building.

Date: Sunday, August 27, 2023
Time: 9:30 am to 11:30 am

Location:
Hoʻomaluhia Botanical Garden, Education Center
45-680 Luluku Rd,
Kaneohe, HI 96744

*There is no fee to participate in this workshop. Plenty of free onsite parking. Refreshments provided.

Register on our website www.epilepsyhawaii.org or https://forms.gle/yjKLhUHGyABnhPr87

For more information:
Ph: 808-528-3058
Email: [email protected]

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There are now at least three different providers actively aiding in Medical response to the needs of those in the West Maui community.


>> Click the Link in Our Bio for More Details

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HOW CAN YOU HELP the people of Maui?
 
Donations: Hawai‘i Community Foundation, this fund is currently being used to support communities affected by the wildfires on Maui: www.hawaiicommunityfoundation.org/maui-strong
 
To locate missing loved ones:1-800-RED-CROSS
 
Please do your research and donate responsibly.